“Can’t you just wear glasses?”

Such is the trial of being a Keratoconus sufferer.

No, we can’t wear glasses. Glasses don’t reshape the cornea. Lenses do (sort of, see diagram above). Yes, in the early stages, glasses can sometimes be used, but for the most part, no, contact lenses are our only option. Yes, it is irritating. Thanks for mentioning it.

But just saying contact lenses doesn’t really sum it up. Keratoconus has spawned a raft of lens-based solutions while appropriating some traditional options. There are so many different options, in fact, that every few months or so someone will bring a new type to my attention that I had missed off the list that used to be on this page.

As a result, I have decided to only “review” the ones I have tried. I have even done Pros and Cons. How lucky you are. At the end are links to the ones I haven’t tried. Enjoy!


Hydrogel lenses for Keratoconus are very similar to, though slightly thicker versions of, the standard daily contact lenses people wear for normal eye conditions. They are soft, squidgy and very comfortable on the eye. They are corneal lenses, so cover only the cornea, not the sclera (white bit) of the eye.


  • Extremely comfortable
  • Won’t slice your eye if you get hit in the face as they are soft and unthreatening (try and avoid getting hit in the face whatever lens you have). I wore them playing rugby and had no problems.
  • Good oxygen supply to the eye
  • Easy-to-handle and clean option


  • Tearing was common
  • Difficult to get good results of vision when cornea becomes steeper as the lens can take the shape of the eye
  • Life-cycle was about two months per lens for me with these due to tearing

For more information, see this All About Vision website


This lens combines the optical correction advantages of a rigid lens with the comfort of a hydrogel by fusing the soft rim of the hydrogel around a small hard lens in a high-tech Frankenstein-type manner. You are left with a nice squidgy bit that sits on your eye and a hard centre that sits on your cornea. Imagine a fried egg. The yolk is the hard lens, the rest is the soft skirt.


  • Good vision (for two and a half out of the three years I wore them)
  • Comfortable
  • Good oxygen supply to the eye


  • Extensive use led to the bond breaking and the soft ‘skirt’ (outer rim) of the lens coming away from the hard centre.
  • Expensive (mainly due to having to buy new lenses due to the former problem)
  • Visual performance dropped off as cornea steepened

For more information, see this All About Contact Lenses website.


A tiny little contact lens that sits directly on to your cornea above your pupil. It is a popular option for Keratoconus suffers, but one that some opticians wrongly believe is the end of the line as far as contact lenses are concerned. It does give great visual results, but I didn’t have a lot of fun with these after the first six months as my cornea steepened.


  • Correct vision very well in Keratoconus of certain stages
  • Unobtrusive and easy to clean
  • Good oxygen supply


  • Easy to lose (both in the eye and outside on the floor)
  • Initially uncomfortable, like having a piece of grit in your eye, but this passes
  • Tendency to flip out of the eye when the cornea is too steep, despite the continued best efforts of your optician. I must have gone for ‘refittings’ every two weeks for months, but the result was always the same. The lenses catapulted themselves out of my eye. Save yourself the hassle if this happens. Ask for a Scleral lens.

For more information, see this All About Vision website

You may not have heard of Scleral lenses, but in fact they were the first ever lens invented, back in 1888. Despite that, not many people know about them, even though they can be life changing for Keratoconus sufferers. So life-changing, I have given Scleral Lenses their own page. So for more information, click the tab above or click here.

The following have been brought to my attention. Click on the name and it will take you through to more information about them. If you have come across any not listed, email me using the tab on the right and I shall add them on:


105 thoughts on “Lenses

  1. Ivan says:

    there is a new type of lenses for karatoconus – Rose K
    I’m still on RGP with eye drops (Refresh Contacts/Blink). But I’ll go next week on corneal topography (Orbscan) in Optical Express Croatia.
    I’m looking forward to find out whether I’m good candidate for cross linking – a new method for stopping keratoconus progression.

    Hope this help someone.


  2. Rafael says:

    Hi, I would like to know whether using rigid lenses does really stop keratoconus progression, and if not why do oftalmologists prescribe them. So could I use soft lenses anyway? Also I must say that my right eye is 0,75 and my left 1,5 but this one continues to worsen. Should I try the rings surgery or what about the cross-linking (this one I would not trust so mucho because in my country (Colombia), it seems not to be very developed)?

  3. Pablo says:

    Hi, I´m from Spain and I have rigid gas permeable for one year. I think it works very good. In my case, when I used normal contact lens I only could see 40%; with RGP I can see 80%.
    At start are very irritating, but when you use it more time are very comfortable. I can use it during 14 hours every days with no problems.
    In my opinion, the more important thing is to consult very good doctors, because in my country (Spain) the Social Security doesn´t work good.

    Answering to Rafael, since I use RGP my keratoconus is stable, it doesn´t grow. I thing that surgery shouldn´t be your first option, first try to use RGP.
    If you want, I can inform you of very good doctors and opticians.

  4. Eric says:

    First of all, you need to read this article by Dr. Alan Carlson.


    Keratoconus is a progressive disease that will not be stopped just by putting a lens on it. Also, It is very important to stop rubbing your eyes. This is one of the main reasons KCN progresses. Also, the part about the RGP lenses is pretty uncommon as long as you get a Contact Lens specialist that has all the tools available to him. I am going to school at Duke and have seen the Contact Lens Specialists do wonderful things for KCN sufferers. Don’t just go on to surgery just because your KCN is progressing. You may just need new lenses.

  5. Angela says:

    Love the comment – “Can’t you just wear glasses?”. So often people think it’s a vanity thing. My vision started deteriorating about 3 – 4 years ago. I don’t have a definitive Kerataconus definition yet. The problems didn’t start until I turned 40, which is atypical for keratoconus.

    This spring I was fitted with mini-scleral lenses and love them. My soft lenses weren’t working anymore, and I couldn’t tolerate the gas permeable lenses. I live in Canada, and the MSD lenses I’m wearing are made in Canada: http://www.ahfmr.ab.ca/researchnews/2007/fall/forefront/ Sorry that the article is a bit dated. They cost $1300 including the fitting. I’m thrilled, and have my fingers crossed I’ll be able to wear them for a long time. I am also being assessed for the collagen cross-linking.

    Thank you for the website – it’s very informative! Great sharing everyone – it’s good to know we’re not alone. My favorite part is the picture at the top of each page — it’s so hard to describe what our vision is like…this picture is definitely worth a thousand words.

  6. keratoconusinfo says:

    Thanks for the comment. My fiance did the picture in photoshop and when I saw what she had done I was so amazed as indeed that’s exactly what it looks like!

    Really good to hear you’re having some success with Sclerals. As for the atypical for Keratoconus, nothing I have experienced is typical so I wouldn’t worry. I’ve never come across two experiences of it that are the same, there are so many variables!

    Best of luck.

  7. Mikael - Greece/Denmark says:

    Hello All,

    Here a question for Angela, hope she’s still following…

    I’m quite interested in those MDS lenses, as I believe that a smaller lence than the typical Scleral lense would be more comfortable and I have might have difficulties placing them in my eye, as they are not that “big” – There is not much information on this MSD lense or testimonials – know more cases like yours? Thinking if in general people will be just a positive for the MSD lence (mini-scleral lense) ?

    Live in Greece (but from Denmark), had keratoconus for the last 16 years – had surgery/transplant done about 10 years back on one eye, and crosslinkling (Riboflavin -vitamin-b drops) on the other 2 years back, to stop the development. Further to the transplantation, after thry removed the stiches after a year, vision went from -1.5 to -7,0. This was “unseen” doctors told me, and they suggested to do a laser surgery on the transplant – they “shaved” as much as possible of the top, but didn’t help, just the opposite – ended up being a bit “hazzy” and then -7,75.

    Been wearing RGP lenses for a while not, and started at first with softlense on the the transplant, but not able to see much. Then after a cople of years, desiced to try using a RPG lense on that eye – and got excellent vision. The minus is that my eyes are quite sensetive and easily get small “scratches” and from time to time hurts so much I can’t wear the RGP lense. On the eye trated w. crosslinking (riboflavin) vision is lilited, do need the other eye to work.

    As I’m now tired of trying ned RGP lenses for the transplanted eye and being so sensetive to scratches and being allergic, also makes the nerves under my eyelid very sensetive – gotta try something else – therefore looking in to the world of scleral lenses.

    Will also today write to the manufacturer of the MSD (mini-scleral lense) in Canada if someone is fitting this in Europe either preferrable close to Greece or maybe in Denmark!??

    Here a bit about the lense and a 15 min presentation:

    By the way – great place for information sharing – wonder how come I didn’t find this site earlier…

  8. Jon Severs says:

    Hi Mikael,

    Thanks for sharing your experience, hopefully someone will be able to help you out re MDS!

    Would be interested in hearing more about these lenses also


  9. Angela Clair says:

    Mikael – I hope you’re able to find some information from the company in Canada. I don’t know anyone else wearing the lenses. The doctor I’m going to is quite new in our area. I recently saw my optometrist, and she took my MSD lenses around the office to show her colleagues because no one had seen them.

    I have now been wearing them for about 4 months. I LOVE them. That being said, I understand that my experience can’t be guaranteed for everyone. My doctor said that lots of people have the same trouble with MSD as with RGP lenses. Can’t tolerate them, lots of discomfort and so on. However I have no trouble 🙂

    I find them very easy to put in and take out. The expectation is that if I take good care of them and continue to tolerate them, I could continue wearing them for 20 years. My kerataconus is not progressing according to mapping done last week. Fingers crossed.

    Hope this helps!

  10. abhi says:

    guys..im from india..my lens fitter fits scleral, mini scleral, rgps, hybrids..first of all..collagen cross linking really helped me..i got it done 2 yrs back…my cornea has stabilized since then..absolutely stable…the treatment has been documented to be successful..secondly..mini sclerals r good..but last only for 2-3 yrs ..not 20 yrs..they r easy to break though..sclerals on the other hand last fr 5-10 yrs and more fitting options present …and can be customized to ur eyes…have tried rose k..but not happy with them…

  11. Mikael says:

    I wrote earlier regarding the MSD Angela wrote about earlier – i located the ones producing thi mini scleral lense MSD in Canada – but also found, when talking to a contactlense producer and distributor in Denmark, that there are several companies offering similar miniscleral lenses. Now thinking to travel to Denmark to try them out.

    Seen these Synergyeyez lenses – wihch are a new hybridlense – and supposedly more stable and robust than the first hybrid – the Soft Perm…

    Anyone got experience with Synergyeyes ?



  12. Mikael says:

    Mikael again – also just found information about a mini scleral lense calles SOClear – anyone got experience with this lense ?



  13. Shontiel says:

    I’ve been wearing the SOFTPERM HYBRID LENS for about 2 months now. Best lense so far, but they still irritate. I tried the boston drops to keep them moist or any other drops that dont have preservents in them. But once the solution dries out, it irrtates like hell and I have to hurry and take them out or I will be left with a sore red eye. I put drops in my eye every hr, still irritates so I came to the conclusion that its the solution in the middle that dries out. I dont know when they will start irritating and how long I can wear them sometimes. Sometimes I can only wear the lense for up to 6 hrs. Im so scared to get a job, because of the lense, which is the reason I had to quit my last job. Sometimes when the solution dries out, I just take them out, put more solution and Im ok but sometimes it doesnt help. Im thinking about getting the transplant but Im quit young and dont even want to consider that. But I need a job! And these contacts are enabling me. Any suggestions?

  14. Daniel says:

    My optician first spotted i had keratoconus when i was about 15 and quickly got me some RGP’s which i wore for about 6 years before my corneas got too steep for them. After a while of messing around trying to find suitable lenses at Birmingham eye centre, i have a lens for one eye and will be trying a ‘nipple’ RGP lens in the other (once it arrives). If that doesn’t fit then i will be getting a scleral lens.

    I have found being a chemistry student quite fun with this condition, explaining to the staff i have to wear contact lenses in the lab else i won’t be able to see enough to be able to carry out some procedures safely. To get around this I wear goggles rather than safety glasses when certain solvents are used.

  15. szemészet says:

    Shontiel: try to find new and new ways and lenses, I think that’s our only chanche.

    I’m living with KC sine 1994 – and only God and new type of lenses saved me. So head up, new lenses are always on the way:)

  16. shontiel Robinson says:

    Are there any other lense besides the hybrid? Because after I told my doctor these lense wasn’t helping, my doctor mentioned the surgery.

  17. dr neha jain says:

    hi abhi
    m also from india , its nice to see that u r happy with scleral lense , i have advanced keratoconus , m using rose k lense but due to very dry eye i can nt wear it more than 5 hrs in a day … i want to know from all of you that how much the cost of scleral lense ? is it realy beneficial ? i had keratoplast in right eye in 2006 still there is residual astigmatism of 8 d …but still v r not alone …keep smiling always and wait for new invention …
    Dr neha jain

  18. I got Synergeyes fitted last week and im wiring for my pair to arrive. During fitting they are bloody amazing, they dont move at all on your eye, you can do sports and not thing about the lens moving at all:) I’ll post more when they’ll arrive

  19. Jeremy Sadleir says:

    Many thanks for your efforts in putting together this very useful website – i have worn RGP lenses for 25 years as i have KCN. I have found that having two sets of RGP lenses with different diameters (one set 0.75cm, the other 1.1cm) and swapping every couple of days between the two sets provides me with less irritation and longer more comfortable wearing time. I think this works because the lens probably causes most irritation at the edge of each lens. I am however a lay person and have no medical expertise or professional knowledge. Regards Jeremy

  20. Shontiel says:

    So you wear the hard small lens? Why not switch to the hybrid lens? I lasted one month with the RGP, then I tried piggy back for 2 months. Finally couldn’t handle that and switch to the hybrid (synergize) lens. Much more comfortable.

  21. Savannah says:

    I was given the hard glass lenses, and I struggled with them for a year. I just couldn’t take the pain and discomfort… even when I doggedly wore them every day, it never became much easier. . Some days I just couldn’t get them in at all. I was only able to pay for them thanks to a friend, and now I have no way to go back to the eye dr. or explore other options. My vision is just steadily getting worse and I can’t afford to do anything about it. 😦 I’ve been told I shouldn’t even be driving… but, well, I gotta get to work.

  22. Ashish says:

    Hello Dr Neha Jain,

    I wanted to know where did you get your Rose K lenses fitted from? Are they comfortable when you wear them? I am thinking about getting these lenses. So I wanted to know about a good optometrist who can fit them. ALso what is the cost of tehse lenses?

  23. Ashish says:

    Hi abhi,

    I wanted the info about your fitter. I wanted to get in touch with some experienced fitter with whom i can discuss all the options. Kindly help me.


  24. Robert R. says:

    I have been wearing ClearKone lenses by SynergEyes and they have been working fairly well for me. They are a hybrid lens with a rigid center and a soft skirt. The overall diameter is larger than the previous hybrid lenses I had worn so they are a bit more cumbersome to put on the eye and take out. I had trouble with dryness but have been using Systane eye drops and that has helped. Does anyone know where I could buy a replacement pair of these lenses at a good price? My eye doc sells them for about $700 a pair.

  25. Shontiel Robinson says:

    $700 a pair? Geez I thought I was being over charged, because I pay $465 for a pair. Yours is a bit much.

  26. George Kephart says:

    I have stable KC, and have been living with it for 30 years. I have gotten by with glasses and squinting. I have tried RGPs multiple times with no success, but I recently gave it another go, and so far it is going great. I have been wearing them for 10-12 hours per day for weeks now. I have some discomfort, but overall its going really well. The difference is better materials, and more importantly, fitting. I am lucky to be fitted by a team of an optometrist and a technician who work directly with the ophthalmologists to fit lenses for KC patients (Halifax, Nova Scotia, Canada). They have a contact lens clinic with lab on site, and routinely make on the fly adjustments while you wait to get the fit just right and address comfort issues. They will put in a lens, look at it together, and discuss strategies. Then Bill heads to the lab down the hall to make some adjustments, and the process is repeated. It has taken 4-5 sessions and multiple lenses to find something that works for me.

    This standard business of getting lenses made off site in is not the way to go, and I suspect most problems with RGP are the result of poor fitting.

    These folks tell me that they start with RGP providing the cornea is not too steep, and have success rates greater than 90%. They also do scleral for advanced cases of KC, also with very high success. Their lab gives them tremendous flexibility with lens shape, and allows them to experiment in real time to see how shape adjustments affect fit and comfort.

    My only problem now is getting my brain to adjust to tremendous vision improvements, and having to get by with glasses when I take the contacts out late in the day. I now find it harder to cope with glasses!

  27. shontiel Robinson says:

    You been wearing RGP lens for 30 yrs? How come you never tried the hybrid (synergies) lens? That’s what I wear, and they are way more comfortable then the RGP. Even though they are very expensive, they last longer and fit more suitable for keratoconus patients. You should try them 🙂

  28. George Kephart says:

    No, I have been entirely unsuccessful tolerating contacts until now. I have been wearing glasses alone for 30 years, with several intervals of misery trying contacts (the last over 10 years ago) . I got back into trying RGP after trying a new soft lens for KC (Kerasoft), which while comfortable, did not improve my vision much. If the RGPs do not work, we will move on to other options, but so far they are going great.

  29. Katie says:

    Interesting to hear your experiences regarding contact lenses. However to state that soft contact lenses and hybrid lenses supply the cornea with a good oxygen supply is false.

    Corneal Neovascularisation (where the conjunctival blood vessels grow into the cornea due to lack of oxygen) is a major problem. Soft Perm was taken off the market due to safety reasons a couple of years ago, which says it all!

    I have seen patients in the complex hospital contact lens clinic where I work with horrendous neovascularisation due to hybrid lenses and would not touch them with a barge pole! A much safer alternative if patients are intolerant to a good fitting RGP corneal lens is to do piggybacking which is a non-powered soft lens under the RGP corneal lens.

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  33. J. Jayakumar says:

    Hi Dr. Neha jain, Abi & Ashish
    I too have keratoconus in both the eye.. my left eye cornea was broken… but i not tried the keratoplasty still.. the shape of eye changed in right eye also… docotors advised for collagen cross linking and i done it two years before.. Rose k lens advised for right eye but iam not comfortable with that Rose k lens., still i am wearing specs only… but i am struggling in vision.. My eye get very much tired and i go to sleep within a minute at any time…any suggestions for lens suit my right eye?

  34. Fernando says:

    I have worn rigid gas permeable lenses for 30 years. They have remained the same for about 25 years. I replace them every year or so. Use baby shampoo twice a day, it seems to be the key to keep eyes clean.

  35. Pradeep Reddy says:

    i am a keratoconus patient which was detected around 12 years ago &
    i used spects & then RGP lenses then after my CCL, now i am using Rose-K lenses.

    i wear them more than 8 hrs a day without any discomfort.

    i live in USA & use clear care lense solution which extends the lense wearing time atleast 2-3 hrs for any type of lenses.

    FYI, rose-k lenses (for both eyes) cost me nearly 25K-30K rupees.
    & clear care solution costs atleast $17 (twin pack).

    i go to sankara nethralaya in Chennai (BEST EYE HOSPITAL IN ENTIRE ASIA) as far as i know.

  36. Thank you so much for all of this info – and to the commentors as well – I didn’t really know what was available and out there and was pretty frightened about it all.

  37. eddie says:

    Hi. I had cross-link done in both eyes. After heeling, My doctor has tried all type of contacts. I haven’t gotten any luck.

  38. I am thinking of getting contact lenses. This article contains some very useful information.

  39. Michele Hayes says:

    I am an Optometrist in Santa Rosa, Ca. I have practiced Optometry for 27 years, and have fit many Keratoconus patients. Every patient has different needs at different times of their lives. It is very hard as a doctor to fit Keratoconus patients- you get good results with one lens for awhile, and then the cornea will change out of the blue- sometimes in very wild ways, and sometimes virtually overnight. You have to be persistent !
    Being a patient is tough-it is very expensive to change contacts every 6 months or whenever your eyes change as the Keratoconus advances, and many insurance companies do not cover this condition fully- even when you are on Medicare. The only insurance that covers well is VSP and Eyemed. You have to request that they cover it, too.

    I strongly urge the patients who have been diagnosed early to go and have a cross-linkage evaluation before you get to the stage that the cornea has gotten too thin centrally. If you think that you are ok now, and don’t want to bother with it, think again. You need to have a dialog with your eye doctor about this procedure. The best results so far for cross- linkage have been with those who have early Keratoconus. I would like to hear from people who have had the procedure and what their experiences have been.

  40. Robert R. says:

    How do I find a reliable cross link provider? I live in Colorado.

  41. Angela says:

    George, I’ve been going to the same clinic as you in Halifax. Have you heard that Dr Ritenour has transferred to BC? When I spoke with my local optometrist last month, she hadn’t heard of a replacement yet, and her understanding is that without him as the corneal opthamologist on site, the contact lens clinic cannot continue. Just wondering if you were aware…

  42. George says:

    Yes, I spoke to him before he left. I am sorry to see him go! The good news is that the contact lens clinic is continuing as before. In fact, I was there this week. I am not sure what, if any, replacement plans are in place but there are two other opthamologists who specialize in corneas (Seamone and George).

  43. I appreciate the review of the lenses that you have tried. I’m due for an eye exam and am doing all the research I can so I can go in there knowing what I want.

  44. Jeff Fin says:

    It is great to read about others suffering from this condition. Most people don’t have to think twice about having good sight or simple solutions to gain good sight. I have been dealing with wearing RGPs for my steep Keratoconus for about 15 years and to the point of RGPs not being comfortable enough and providing enough vision that I am going to get an Intacs and transplant consultation. The new vitamin B2 (riboflavin) process sounds exciting. I’m 45 years old and still active with sports so I was always weary of a transplant, but with some of these new processes I am leaning towards being ready to try something other than contacts.
    I wish everyone the best in finding a solution for their Keratoconus.
    Thank you for the site!!!

  45. Robert R. says:

    Just spent $600 on a pair ClearKone contact lenses.. Definitely a lot of money for a couple of pieces of plastic but then again, they will help me see better and I cannot put a price on that. I sometimes fear dropping them down the drain or misplacing them at a cost of $300, but knock on wood, over four years, I have not ever lost one.

  46. it was grt to know about your experience…..hhi i m lisa….i m 22 year old….i had grft in my right eye…n now i m wearing rgp in right eye…vision is perfect but i have problems wearing lense….like my eyes turn dry after wearing them…after 1 or 2 hours..i told the doctors but they told that nothing was wrong in my eyes…i do not feel comfortable in rgp now..i can wear them for 2 hours n then it feels too much uncomfort….what should i do?

  47. Pradeep Reddy says:


    if you live in US, use below solution which will increase the lens wearing time considerably.


    also, if this is your first time wearing lenses, then it eill take atleast 2-3 months to your eyes getting used to.
    if they are uncomfortable outside/in work etc. try to wear them atleast 3-4 hours when you are in home & gradually increase the wearing time going on….

  48. Angela says:

    @ sanjana – I agree with Pradeep, and would add that I use Systane Balance prior to putting in my contacts and after taking them out. Really helps with the comfort.

  49. George says:

    Hi Lisa,

    I also have dry eyes and often have the same problem as you, especially in hot, dry weather. What works for me is:
    1. Try to keep hydrated – drink plenty of water.
    2. Use re-wetting drops. I always carry a small bottle of Bausch-Lomb Boston rewetting drops and a small bottle of “tears” (e.g. Blink moisturizing eye drops is what I have now). The former feel thicker and seem to gum up the lenses if I use them much, but work better with an application or two. If my eyes feel dry I just put a drop or two in each. Most days I do this a few times. Sometimes I use 4 drops or so of the instant tears in each eye if the lenses feel dry and gummy – kind of a clean and rinse. I don’t think the brand matters much, but you will find instant tears and rewetting drops for RGP lenses at most pharmacies.
    3. Patience and time: I have been wearing the RGPs for 1.5 years now and it gradually gets better. If they fit well you will get more and more used to them over time.


  50. George says:

    Jeff Fin:

    My understanding is that if you are 45 and your eyes are pretty stable, then the riboflavin cross-linking probably won’t do much. It does not reverse the process. It stops/slows progression.

  51. Jay says:

    I have been using glasses from last 13 years and tried rigid lenses 4 years back when i couldnt take it because of sise and it gave me redness and itchiness. My doctor retired last year and the new doctor this year asked me to try hybrid lenses which will cost 900$ for 6 months (300$ for fitting and 600 for one pair)…I dont know if i will be able to adjust them but i want to try as with glasses now i am having difficulty to read.

    I asked Collagen Cross linking but she said we will have to see if you are candidate for it. But after reading this thread it seems lot of people have got this done.

    To people who has got it done in India How much does it cost to get it done in India ?? And once i get prescript for Hybrid lenses can i order it from India (if it is cheaper).

  52. Danielle Brooks says:

    I had lasik surgery 6 years ago and only began experiencing a significant decrease in vision 8 months ago. I’ve been diagnosed with post-lasik ectasia (medically induced keratoconus). I was told that my lasik surgeon went to thin with my cornea and I probably should not have been a candidate for lasik surgery due to a pre-disposition for this condition. Needless to say, I’m VERY angry and scared to have such a loss of vision so quickly. I just got my first pair of hybrid lenses yesterday and my vision is great, but they are a bit uncomfortable so far. Kind of like an eyelash in my eye and it seems dry. It probably doesn’t help that it is the start of allergy season where i live! Anybody else everything from this condition because of a medical procedure?

  53. Arb NIla says:

    I have Keratoconus for four years, I cannot wear those tinny RGP lenses, I will travel this week in London, can anyone tell good eye clinic in London for HIbrid concact lenses (synergeyes lenses)

  54. Shontiel Robinson says:

    The hybrid lens are the cheapest in Florida. After you get your fit you should start ordering them from here. From Anderson Eye Care.

  55. Amrit Sandhu says:

    Hello, I’m in your boat.
    I would like to get involved with your campaign.
    I’ve been living with kerotoconus for 24year.
    I had the corneal graph done on my left eye when iI was 16,im now 37.
    It has been an interesting journey.
    Please get in touch.
    0796796 001

  56. jay sharma says:

    Frnds i m 20 yr old nd i am from india …. and i would like to go for c3r…cross linking operation…. pls tell it is safe or good or not….@ 09826336362 or zharma2jay@gmail.com
    I am w8ng for all your responc plsss… give feedback… plsss plsss

  57. jay sharma says:

    Frnds i m 20 yr old nd i am from india …. and i would like to go for c3r…cross linking operation…. pls tell it is safe or good or not….@ 09826336362 or zharma2jay@gmail.com
    I am w8ng for all your responc plsss… give feedback… plsss plsss
    Plsss frndsss

  58. Great post! Been reading a lot about contact lenses. Thanks for the info here!

  59. pratibha says:

    Hi,i m from india;one of my friends sonhas recently been diagonosed with keratokonus;he is 17;could anyone help me with the various career options available for him? i m told that such people cannot b engineers or doctors….

  60. Jon Severs says:

    There is nothing stopping him or her being whatever they want to be (bar the airfroce or a pilot probably!), as long as the condition does not make their eye sight to a level that prevents it. With lenses he should be fine.

    On 20 August 2014 09:58, Keratoconus Info wrote:


  61. pratibha says:

    Hi again,thanx Jon severs for a quick response;however,with so many apprehenshions cris-crossing our minds right now,i would like to hear fm someone in india,what are the career limitations of such people in India?what are the career options for them?Mr Amrit Sandhu,i shall b thankful to you if you can respond to my query.i have been trying the no,which u have given in ur post without any success.pl help..

  62. Shon9tilr says:

    He can be whatever he wants. I was diagnosed at 20, now I’m 26 and I’m about to get a corneal transplant ( one eye at a time). If I was him I would get one of the operations now before it gets worst, and it will. I’m sure he’s still in the mild stage. Im a nurse by the way. He need to see a corneal specialist. Not a regular eye care professional.

  63. pratibha says:

    Hi Shon9tilr, thanx for your response, its in his right eye at the moment;but we have been told to b equally careful about his left too;the corneal specialist has advised for c3r ,we r planning it for next week; pl remember him in your prayers.

  64. Shon9tilr says:

    Good! I wish I had acted on mines right away. Best of luck to him.

  65. pratibha says:

    Hi Shon9tilr, for how long have you been working as a nurse?

  66. Shon9tilr says:

    I just started. It’s very overwhelming because of my poor vision but things will get better.

  67. pratibha says:

    Had u tried c3r?

  68. Shon9tilr says:

    My doctor said the cross-linking hasn’t been successful. He recommended intacts for my good eye.

  69. pratibha says:

    where do you live?

  70. Shon9tilr says:

    I live in Florida. My doc told me theres a possibility that I may have to travel somewhere where keratoconus is known. To get intacts or a corneal transplant.

  71. pratibha says:

    good luck.pl b in touch.

  72. Alicia says:

    40-50 days ago I had cross linking. Hopefully, it was successful. Now I have to wear cantact lens only on one of my eyes. My optometrist told me that the lens costs 280 € but I think that its too much. Does anyone know how much contact lenses for keratoconus cost?

  73. Shon9tilr says:

    I wear hybrid lens that cost me $410 each. And insurance dont cover, or maybe i just need to find the right kind. Anyway, what kind of lens do you wear?

  74. cnon12 says:

    This is very informative. I’m currently being fit for RGP lenses right now, first set wasn’t quite right, so I’m on my second set now. Hopefully these are the ones that work out. Did a small trial with some hybrid lenses from Kerasoft, but they didn’t correct my vision as expected.

    One question though, with RGP lenses, I work in an office and find that due to the air conditioning, my eyes dry out and it has been known to cause some discomfort with the lenses. Any advice?

  75. cnon12, are you trying the regular RGP lenses? Or are they scleral lenses or semi-scleral lenses? I do not kerontoconus, but I do haev a progressively worsening eye problem. I wore soft lenses for 40 years and finally reached a point where they could not correct my vision well enough for me to even drive. My doctor tried me in RGP, several variations, and I could not tolerate them. She then referred me to my current docotor who fits scleral and semi scleral lenses. He first put me in scleral lens but I had unbearable clouding. He them moved me to semi-scleral. They are about the size of a soft contact lens and are super comfortable. No dryness in my eyes at all and I wear them approx 16 – 18 hours per day. In my office, the air blows direct onto me from the A/C vent and I never have an issue with dryness. PLUS I have amazing accuity. I see 20/20 with these lenses and wear a weaker reading glass lens than before, even.

  76. George says:

    Cnon12: I also have dry eyes and it often causes me discomfort. I just carry a small bottle or rewetting drops and use them if my eyes feel dry. Make sure they are ok for RGP. I use the Blink drps or preferably the Bausch and laumb boston rewetting drops. They make a big difference.

  77. Cnon12: I did read on another thread in this blog that scleral lenses can sometimes be an effective treatment for some dry eye conditions. I have a friend who suffers from it badly and he is waiting for his referral to my doctor to see if it can help. When I learn more, I can circle back. Meanwhile, it would be worth asking your own doctor for a referral to someone who fits sclerals, if he does not.

  78. Shon9tilr says:

    I have keratoconjunctivitis sicca which involves dry eyes. Wetting drops help, but punctual plugs are even better. Maybe you should talk to your doctor about getting punctual plugs.

  79. Shon9tilr says:


  80. […] Lenses | Keratoconus Info – Hi, I would like to know whether using rigid lenses does really stop keratoconus progression, and if not why do oftalmologists prescribe them…. […]

  81. ashish says:

    Hello…I m suffering from karatokonus since 2002….had corneal transplant in 2010 in LE…had c3r in RE in 2012…in gujsrat, india….as of now both eyes are ok rgp lens…bt now I m looking for better lens for RE..as vision is not perfect with rgp…c3r is best…do it at any cost at earliest….ny vision in LE after transplant is best…

  82. […] Lenses | Keratoconus Info – Hi, I would like to know whether using rigid lenses does really stop keratoconus progression, and if not why do oftalmologists prescribe them…. […]

  83. sunglass says:

    l like to wear contact lense……

  84. Brandi Nienhuser says:

    Hi! I have been trying to figure out what’s wrong with my eyes for about 5 years now. Been to 3 different eye doctors and have gotten nowhere. It’s like they just don’t understand what I’m describing. So I started googling so I can maybe figure it out myself.

    When I try to wear glasses, my vision starts out perfect but after about 30 min I start getting ghosting (like the picture at the top of he page) and the ghosting gets worse and worse until I can’t take it anymore and my eyes ache. I have to take off my glasses and put my contacts in. After a bit, the ghosting will then slowly go away. My contacts are regular contacts though. I still find myself squinting when reading with my contacts but it’s 1000 times better than when I try to wear my glasses.

    Does that sound like symptoms of keratoconus to you?

    Thank you in advance for any advice you can give!

  85. Brandi Nienhuser says:

    I should also add the I was diagnosed near sighted with astigmatism at age 11. I was able to wear glasses until age 30.

  86. PR says:

    @Brandi Nienhuser
    first, Contacts give much better vision than glasses, since they are just laying on your cornea unlike Glasses.
    so, Contacts wiill ALWAYS give you best possible vision.

    i have keratoconus since last 13-15 years & i have never experienced what you described.

    but, i can tell you what my regular cornea specialist do,
    1) yearly once, whenever i visit them, they do some tests & check the internal Topography of my cornea & check if there is any increase in my astigmatism & other chenges from last year topography.

    2) do the vision test just like when you visit a eye specialist for glasses

    3) like 3 years back ,my doctor performed Collagen cross linking, to avoid the Keratoconus getting worse & since then my eyes are perfectly fine & my eyes state is pretty unchanged.
    she said, she might do the CCL for my other eye may be after 1-2 years, but nothing yet.
    since, she felt it’ not needed.

    what ui can suggest is, please see a good cornea specialist who got good experience in Keratoconus/astigmatism related things.

    couple of tips: never wear contacts more than 10-12hrs in a day.
    trying drinking at-least 2 small cups of carrot juice daily (IT’S THE BEST NATURAL THING TO DO FOR NOT GETTING WORSE).

    i live in US & visits india.
    if you live in India, got to Sankara Netralaya in Chennai, that’s my place to go whenever i visit india for eye checkup.
    it’s almost impossible to find a better cornea specialist nearby town here in US & need to pay A LOT LOT $$$$ when compared to India.

  87. PR says:

    sry for lot of spelling mistakes, i was typing on my phone 🙂

  88. Shon9tilr says:

    *PR* where in the U.S. Do you live?

  89. PR says:

    i live in Tulsa, Oklahoma.
    but i get my treatments in India(once in 1-2 years), because of VERY BIG $$ difference & the ease of finding BEST specialist.

  90. PR says:

    if visiting near by country is not an option,
    go to below website & under Doctors tab enter ” Cornea & Contact Management ” without quotes & enter your zipcode & search.
    check who got the most/best reviews.


  91. Louis Engelbrecht says:

    Hi, I have been diagnosed with Keratoconus more than 35 years ago. I started off with conventional gasperm lenses and was introduced to softperm lenses. I found these to work excellent. I had a corneal transplant on the left eye and only recently started wearing a soft lens on that eye. I find it to work very well. My right eye is the problem. As I said, I found softperm lenses to work very well. However, my optician informed me softperm lenses have been discontinued in South Africa. I am a scuba diving instructor and am currently wearing a piggy back type configuration on the right eye. I find the hard lens slipping and this causes me to abandon dives, due to obvious reasons. I have recently been told about the synergy hybrid lens system. Can anyone advise me on that. I live in Gauteng, South Africa. I am 55 years old.

  92. Robert Romaniak says:

    I use a brand called ClearKone by synergEyes. Not sure if they are available in South Africa but you could look into it. http://www.synergeyes.com My experience has been great using these hybrid lenses.

  93. Swati says:

    Hi, I live in India and have keratoconus since last 10 years and it was diagnosed when i was 22. From past 9.5 years i have been using RGP lenses and it was working fine for me but 3 months back i started having pain in my eyes and burning sensation while wearing RGP.

    I consulted Sankara Nethralaya, Bangalore and doc asked me to put off my lense for 3 weeks and told me that inflammation had happened in both eyes. Doc gave some eye drops to get rid of inflammation.

    After 4 weeks, i consulted the doc and she asked me to start putting on lenses again. But the problem remained same and i have same pain when i put on the lenses.
    Yesterday, i went to Narayan Nethralaya, blore and doc asked me not to use lense for next 3 months and then to try scleral lenses.

    I am not sure if scleral will help me to get rid of the pain and burning sensation. Also could anyone let me know the price of scleral lenses in India. It seems a costly venture in terms of fitting and maintenance. It there any other lens i.e Rose K or Piggyback etc. which can help me. I will be moving to US in next 3 months so want a long run cost effective solution.


  94. I do not know about India, but I will share my experience. I was unable to tolerate RPG. They were very painful to wear, so the doctor referred me to a specialist who fits scleral lenses. I tried scleral and semi-scleral lenses. I actually had the best results with semi-scleral. With my doctor, the initial cost seemed high, but it included all the consultations and various fittings and re-fittings until the lenses were right for me. After that, the lenses should last for 2 years or more, unless my eye condition worsens. Averaged over 2 years, the cost is no more than I was paying for soft lenses or the RPG lenses that I could not wear. The cost of the solutions here is no more than the cost of solutions for soft lenses, so I cannot say that I find the maintenance difficult or expensive compared to other types of lenses. I hope this helps.

  95. Tiel says:

    So you developed clouds ( hydrops) over your
    cornea? That’s what I’m dealing with with now and it took 10 months for the inflammation to go away. Every time I got a cloud it kept me from wearing my hybrid lens. I wore rgp and I did piggy back 8 years ago when i was first diagnose and those lens were to uncomfortable.

  96. Kaushal Patel says:

    Hallo Friends.
    I am also have keratoconus in my both eye but my left one is worst than Right one.If you want to Save your eye go for C3R as early as you know you have keratoconus.

    If you think any lense or medicine can stop it not possible my friend. So,go for C3R & stop your cornia from further damage.


  97. Roberta Conway says:

    I have had keratoconus for most of my life (I remember my piano teacher freaking on me at the age of 5 because I played the piece exactly as though every single note was one note down and I could never figure out what she was talking about) and was finally diagnosed about 6 or so years ago. My husband is military and we have been all over Canada. Finally took Ontario to diagnose it. I have had 2 laser surgeries (yes, I know that’s sort of contraindicated with keratoconus but my surgeon said I didn’t have keratoconus . I could see fine for about 2 years). I’ve had glasses, soft contacts (in my teens and early 20s), piggy backing the contacts and RGPs.. I’ve had CXL which worked wonderfully with one eye and didn’t do a damn thing in the other. Having such a huge difference in prescriptions between eyes is a pain all on its own My RPGs are so irritating that I find them almost impossible to wear and I work 12 hour shifts which also make them almost a waste of time. My current specialist has suggested doing CXL again which I think is pointless seeing as how it only worked on the one eye the last time and I can’t afford it anyway as our province doesn’t cover it and neither does our insurance (and yet both will cover Corneal transplants). Transplants are very quickly becoming my next solution, at least in the one eye.

  98. Roberta, not sure what kind of information you are looking for. But have you checked to see if you can be referred to a doctor who fits scleral lenses? I wore soft contacts for approx 40 years, until they could no longer come with enough astigmatism correction. Then I tried RPG lenses, which were excrutiating to wear after anything more than 4 hours or so. my doctor referred me to a doctor who fits scleral lenses and my life was changed.They may not be the answer for you, but perhaps you should ask for a referral?

  99. George says:

    I think the big problem with RPGs is getting a proper fit. KC results in an irregular shaped cornea, and no two people ( or eyes) are the same. I am in my mid-50s now and developed KC when I was in my teens. I went through multiple efforts with RGPs from multiple providers, and all were failures. I made do with glasses for 30 years, and got used to having very poor vision. This was possible only because I was able to correct one I to 20/35 vision with glasses. In the other eye I could only be corrected to about 20/65 when squinting.

    About five years ago, in Nova Scotia, I trialled new hybrid lens but by corneas were too steep and the visual improvement was minimal. They convinced me to try RGPs again, promising me they could make them work. They were correct, and I now wear RGPs with great success. Dust, allergies and some activities (e.g. cycling without goggles) are a problem, but I routinely wear them 14 – 16 hours per day.

    So what changed? Materials have improved (greater gas permeability), but the key is how my current lenses are made. The clinic here (Halifax, Nova Scotia) has a team of an optician and a technician (both near retirement…) who manufacture lenses on site. Bill has a small lab with lathes and equipment. They start with a set of trial lenses, finding the one that fits best, and then work from that to develop a lens that is matched to your cornea. They work as a team, carefully examining the fit and discussing exactly how to modify the lens to improve comfort and fit. It took about five visits, and sometimes 2-3 “tweets” to the lenses, but they were able to make lenses they were comfortable and which did not pop out. Incidentally, this team also manufactures and fits scleral and semi-scleral lenses, and use them for patients that have very advanced KC.

    In other settings it is necessary for your ophthalmologist or optometrist to order RGP lenses from a specialized supplier. The better ones (e.g. lots of people have success with Rose-K) have a wide range of trial lenses, and if there is one that fits you well it will probably work. Adjustments can be made, but they have to be sent back to the manufacturer, and your optometrist or ophthalmologist has to be experienced in fitting these lenses so that they can communicate how to modify the lens. Few are. I think the real need is for teams that are specialized in both fitting and making lenses.

    I would be curious to know if others know of similar clinics? I worry about what I will do when these guys retire, as there seems to be no secession plan in place.

  100. Angela says:

    I have been wearing mini sclerals since 2010. My first pair was sourced through the clinic George references above in Halifax. My second pair were obtained through my optometrist. She worked with the manufacturer in Alberta to get the appropriate fit. I was very surprised that the lenses fit so well with no tweaking necessary. My current challenge is that I can’t get glasses to “work”, and I’m only able to comfortably wear my sclerals about 9 or 10 hours a day. Love the mini sclerals, love the comfort, but wish I could wear them longer, or could get glasses that did a better job of correcting my vision. I also have severe astigmatism, which compounds the problem. I have a new pair of glasses with Shaw lenses (from Ontario) in them – my doc was hopeful they would help, but unfortunately they don’t. Very blurry…I am grateful however for my 9 or 10 hours of sharp, clear, excellent vision 🙂 Roberta, I recommend you find out if sclerals are an option for you as well.

  101. Wanda Jollymore says:

    Roberta, do you find the vision improves after a few hours? For me, with the sclerals, I find that the shape of the eye changes temporarily. Vision withy glaglasses improves after a few hours or if I put the glasses on in the morning. I am not sure if mini sclerals work the same or not.

  102. nitin bansal says:

    i m from india , haryana, i got lasik laser from aiims dly, at 20 , then i stared wearing specs after 2 -3 years of lasik, now 1 year back i am diagnosed with post lasik ectasia ( kerataconus) i got rgp hard lenses for 1 year from chandigarh, now they broke into two while cleaning during rubbing on my palm . please suggest rgp best price in india
    nitin bansal 9812148482

  103. Christa Ek says:

    Die Tür ist verschlossen/verriegelt und kein Schlüssel mehr da, oder der Schlüssel ist im Schloss abgebrochen oder ihr Zylinder wurde Verklebt. Bei verschlosssenen Türen ist es meist nicht mehr möglich die Tür ohne Zerstörung des Zylinders zu öffnen. In diesem Fall haben wir verschiedene möglichkeiten zu öffnen. z.B. Bohren, Ziehen, Knacken oder Fräsen. Material wie Schloss oder Zylinder (falls erwünscht) werden zusätzlich berechnet.

  104. I also have dry eyes and it often causes me discomfort. I just carry a small bottle or rewetting drops and use them if my eyes feel dry. Make sure they are ok for RGP.

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