You may not have heard of Scleral lenses, but in fact they were the first ever lens invented, back in 1888. They were also the only lens available up until the 1950s. They were fitted to cover the entire eye and rest upon the sclera, creating a dome over the eye and the corne that is filled with saline solution.

In the old days, they used to take an impression of the eye in order to fit the lens. Nowadays, thankfully, this is not the case. They are very big, scarily big some may say, reaching a diameter of 25mm in some cases. But this initial impression should be overcome as they are an extremely effective and useful lens for Keratoconus sufferers. They do not fall out, you cannot get bits of grit or dirt behind them, and they are surprisingly comfortable. Also, the problems with oxygen reaching the cornea have been overcome with the use of gas permeable materials.

The capacity to correct vision is also high and they can be worn for all stages of Keratoconus, from slight cases to the very advanced. They are also useful for Hydrops patients, as the cornea remains untouched while the lens is in. On the downside, learning to put them in is extremely difficult (but possible) and you do spend a large amount of money on saline solution!

The trouble is keeping the saline in the lens as you insert the lens in the eye. Failure to do so means bubbles of air get in and these float in front of your vision. The lens itself is also expensive to fit and make, meaning some practitioners are put off offering the service. However, its benefits mean that you should push for this type of lens as it really is an ideal option for Keratoconus.


Scleral lenses have transformed my life. They are comfortable, I get great vision from them and they are so much easier to wear and control than other lenses. They do look intimidating and the size can be troublesome for some, but you really should persevere. It took me around 2 months to get used to putting them in without getting bubbles in the saline solution – so that gives you some diea of the commitment you need. The pay off is great vision and great comfort.

The saline lens kit, for me, looks like this:

Cleaner, storage box and saline solution

You store the lenses dry. So each morning, you take them out of the container, clean them with the peroxide cleaner between your fingers, rinse with the saline solution, then comes the tricky bit. You hold the lens between your thumb and first two fingers, fill the lens with saline solution, bow your head down to the lens, and insert into the eye. To get the lens out, you flip it using the top lid. It takes a lot of getting used to. Below are a couple of videos to help you get a better idea of getting the lens in and out.

The storage box has to be cleaned every two weeks using the cleaner and saline then wiped dry with tissue. Two weeks is a minimum. The lenses also have to be cleaned using a protein remover tablet every couple of weeks. My choice of protein remover is Amiclair. You stick the lens and a tablet in saline in a container over night and then clean as usual in the morning. This prevents the build up of gunk that can cloud vision when it floats around in the saline, and cause conjunctivitis. I also changed bedding and towels every 7 days for the same reason.

When the lens is in the eye it looks like this from the side:

Left Eye With Scleral Lens In

Left Eye With Scleral Lens In

Right Eye With Scleral Lens In

Right Eye With Scleral Lens In

446 thoughts on “Scleral

  1. kimberly says:

    Just yesterday the specialist did a fitting for the screral lens. I have no insurance and the product and fittings are expensive. My collective family will attempt to cover the cost if I chose to do so. I suffer from keratoconus. I have been a trooper for 28 years. NOW these lenses intimidate me due to size. Also I did not see myself in them. Do they have the special effects look when used under normal circumstances? Will I now have to overcome that social circumstance? I look forward to reading about your experienced and reflect on how they mirror mine. Thank you so much for being here. I appreciate your humor and you have extended a hand to a fallen comrade. smile Your making an impact in the world! Thank you so very much for being here.

  2. keratoconusinfo says:

    Hi Kimberly, the size freaked me out a bit too, but you get used to them after a while, and you shouldn’t worry about people noticing, all the comments i get are positive in the sense they wonder how my eyes look so big! I tend to not tell them I am helped out by the lenses 🙂 They don’t have the special effects look, and they are really comfortable to wear. The docs say you should only have them in for 8 hours but i regularly do 16-hour days without any trouble. It’s such a shame that the US health system does not cover you for the lenses as they really make a massive difference. The NHS isn’t perfect, but when I hear from the US i realise how lucky I am to have my lenses for free. I hope the expense isn’t too bad, perhaps contact a forces charity or an eye charity? They might be able to help!

    I wish you all the luck!

  3. karen says:

    Hi thank you for the information.
    Do these lenses help with the glare and halos that are associated w/ KC.
    I have been using synergy lenses for 2 yrs. They do help to some degree, but nothing has helped w/ the horrible shadowing, halo and glare – day and night.
    Maybe these scleral lenses do?? Hope so.
    How would I find a specialist in fitting these type of lenses?

  4. keratoconusinfo says:

    Hi Karen,

    As I’m not a doctor I don;t know all the ins and outs of the reasons for glare and shadowing, what I can say is that for me Sclerals have indeed solved these proiblems. The trouble with Scleral lenses is that little is known about them for KC purposes, even amongst doctors. So you have to find someone with some experience. It would be worth getting your optician to look into it for you, where are you based?

  5. Bec says:

    Hi Karen, I have just found this great site and read your posts. I have had K since I was 20 and only 6 months ago was fitted with a schleral lens in my left eye. I am doing my best to persevere with it because it IS difficult to put in but I am finding with practise it is becoming easier! I also noticed your question about glare..I have had awful “Light and Glare” issues with my eyes. I basically live in my big sunglasses – even when I wake up in the morning! I find that the schleral lens still lets a small amount of glare in BUT not as bad as my rigid lens I previously had. I am still in the “fitting process” though at the moment so still testing a few. Where abouts are you situated because I can recommend a great lens fitter in Australia! Good Luck!

  6. keratoconusinfo says:

    I live in my sunglasses too. Got scleral in my left eye but right eye has a hydrops so nothing in there at the mo! Worse still, it is hayfever season which is pretty much hell on earth! Glad you like the site!

  7. Silviu says:

    Hi there…
    Can u tell me around how much a sclerall lens cost? With fitting and everythig? in Uk i mean…

  8. Vision 4 All says:

    Just wanted to add that higher order aberrations are the cause of glare and haloes. In the early stages of keratoconus,
    Intacs can be very helpful.
    Patients appreciate the crisper vision.

  9. Bruce says:

    I have had keratoconus for about 14 years now. I have been lucky in that it has been pretty stable over the period and only in one eye (although I don’t have any central vision in the other eye).

    My biggest problem is the sensitivity of my eye – I spend far too much time with eye streaming tears when foreign bodies get under my gas permeable lenses.

    I was first introduced to scleral lenses last year and they have been a revelation. I only wear them occasionally and I am not sure that the prescription is right yet. However, they enable me to do things (like work in dirty conditions e.g gardening; cycle etc) much more comfortably than I would otherwise be able to do. They also enable me to rest my cornea (I have been wearing contact lenses for 29 years now).

    I am off to Moorfields again tomorrow morning to have my eyes (and the sclerals) checked – but I am really glad to have them as an option and once you have ceased to be intimidated by their size, putting them in and taking them out is quite manageable.

  10. Barrott says:

    Hey Guys.

    I’m 22 y/o post music grad and known i’ve had keratoconus for bout 5 years, and only today decided to read up about it.
    Reading these posts i’m surprised the scleral lens aren’t used in most cases.
    Believe me i remember seeing the sky dish size contact lens for the first time and looking at my parents in fear (when i could make out where they were sitting) ha.
    Despite this i didn’t have a choice. It was either sclerel lens’ or the cornea transplant.
    I wear these lens’ in both eyes and it really does make a huge difference. Yeah it takes a while to master the art of getting no air bubbles but it really is worth it and comfortable.
    Only downside i’ve found is that they have caused conjunctivitus everytime i’ve fallen asleep with them in but thats my fault.

    Hope it’s of any help

  11. keratoconusinfo says:

    Haha I haven’t fallen asleep in them yet, but echo everything else you’re saying. It was sclerals or transplant for me too and I can’t speak highly enough of them. It’s kind of good freaking people out with the size of them as well 🙂

  12. barrott says:

    especially if you saty at someones house and use the plunger to get them out. ha. Good party trick

  13. carlos says:

    I live in the Caribbean. Can someone tell me where I can get a good clinic for these lenses (scleral) (Florida Atlanta) Thanks in advance

  14. Matt says:

    I am sitting here wearing my new scleral lens (day 2). I am so far, so impressed with the experience that I decided to spend a few minutes doing some reading about them.

    I have been suffering from KC for 25+ years and have done it all. GP lenses for many years, Cornea Transplant in one eye, piggy backs, synergeyes, and now Sclerals (in non transplant eye).

    For the past 6 months I have been trying to address lens intolerance in my remaining kc eye. Piggy backs had been working for a while, but that was no longer the case. We tried synergeyes with no luck, and yesterday I got my scleral. I was more than skeptical, I really thought I would never be able to wear them comfortably (if a small gp lens hurts like hell, how can a big one possibly be comfortable) Granted i am only about 10 hours wear time in so far, I’m amazed at how comfortable they are. For the first time, in a long time, I feel like I may have a lens I can wear.

    It hasn’t come cheap, with all the various fittings etc… my out of pocket is going to come to over 500, insurance will pick up the remainder (I think).

    Now I just hope this will last a while, I am trying to postpone surgery in this eye as long as possible.

  15. abhi says:

    hi…i had been diagnosed with kc 2 yrs back…goy collagen cross linking done in both eyes…stabilized my condition..but was not happy with rgps..wearing rose k since 1 yr…but haloing present at night..tried piggybacking..but not useful…tried scleral lenses last week..have ordered them..early to say but i think many of my problems seem to have been solved…these lenses need to be given a try..fingers crossed!!

  16. arsh says:

    Hi All!

    I’ve keratoconus in my right eye. I was diagnosed in January, 2010. I see 10-12 images of a single point of light :(. I tried RGPs for 2-3 months but they didn’t work. I went for C3R about 2 weeks ago.
    My question is, after how much time from getting C3R done , will my vision come to earlier levels? I feel my vision has deteriorated after C3R, and I’m not talking about the usual haze that we encounter after a procedure, its the umber of images that has increased.
    Also, can anyone tell what is the cost of Scleral Lenses and what is their operating cost (saline solution, new pair etc)?

    It would be of great help!!


  17. Jon Severs says:

    In the UK, on the NHS, my Sclerals were around 265 pounds for a spare pair… they cost, in my experience, about a bottle of saline a week (2.95) and a bottle of cleaner every two-three months (3.95)…

    Not sure on the C3R I am afraid but hope someone else can help with that

  18. thomas etchels says:

    hi everyone….. Im from scotland/dundee was wondering bout the scleral lense.does any body know if you get them on the nhs up in scotland?

  19. Jon Severs says:

    Hello Thomas,

    You should be able to yeah, but the trouble is, a lot of doctors don’t see the benefit of them, mainly caus they don’t ever ask you how you feel and don;t realise the difference they make to your life.

    Ken Pullum, the guy at Moorfields who is leading Scleral Lens stuff in the UK really, says persuading practitioners of the benefits is one of his hardest jobs. If your guys up their don’t do it it is worth contacting Ken to see if he knows anyone up in Scotland, or depending on how desperate you are, you could try and get a Moorfields transfer to see him, I think NHS contributes to travel….

    Have you got Keratoconus?

  20. thomas etchels says:

    hi jon….. Yes i have had keratoconus for about 4 years i’m 26 years old,there is a practitioner near me,im going to see him in two weeks time about them but don’t know how much they cost ,it would be great if my doctor at ninewells hospital can give me them.
    The keratoconus is quite bad in my right eye and gradually getting worse in left.iv’e ever only heard of the piggyback lense. Thanks

  21. Jon Severs says:

    Ah there’s a fair few alternatives. I had piggybacks, then i had small corneal lenses, then now got the sclerals. Best of luck, try and get him to let you test a few options to work out what gives you best vision

  22. Pedro Rosario says:

    Hi everybody.. I have keratocunus just in my left eye. In this moment I’m trying the kerasoft 3 and until I’m very impressed. This lens is very comfortable and can used for many hours.

  23. Mellie says:

    I am a long time sufferer of Keraconus in both eyes, I was diagnosed at around 18 and now 11 years later I am almost a year out from my third (Yes third) corneal graft (Penetrating keratoplasty). The level of astigmatism is still off the charts in my left eye (this is the eye which has had 2 grafts) and a small cone has returned in my right eye (I had the PK done in 2001 on that eye).

    I have tried every trick, tool, lens and potion known to man. I have had lasik over the graft on my right eye, and the vision was great for around a year until the cone returned!

    so here I am back at square one, still unable to pass the eye test for a drivers license, and so now they are trying me on sceleral lenses. The lens for my left eye is GIGANTIC as it has to vault over the recent cornea graft. Putting them in is somewhat of an ordeal and if I wear them for any extended period of time getting them out is not much better. I use my fingers to put them in and my handy dandy plunger to get them out!

    The vision I achieve with these lenses is nothing short of phenomenal, especially considering that I have been looking at the world like I had vaseline smeared on my eyeballs for the last 10 years. BUT I just cannot get the comfort right, they iritate, I constantly get bubbles trying to put them in, if I wear them one day my eyes are too irritated to put them in the next day.

    Does anyone have any advice on how to make these lenses more comfortable/wearable?

    Thank you

  24. Jon Severs says:

    Hi Mellie

    Wow you have been through the mill! Three grafts is a lot to go through, have they told you why the other two failed?

    As for the Scleral lenses, the only advice I can give is patience and perseverence. They do iritate and they are daunting but my own experience is that, eventually, you can get them confortable. I upped my use of them by an hour each day over a long period of time and this seemed to work. If problems persist there may be something wrong in the fitting of them I guess? What really helped in putting them in was having someone film me put them in and i suddenly saw where i was going wrong!

  25. Richard V says:

    Hi dear friends,
    I live in Holland so sorry for my imperfect English writing.

    When I read the foregoing I am impressed about the perseverance of everyone, we must always be positive but realize that sometimes we are tired of our KC.
    I am 47, KC at both corneas, always corrected with lenses all types, normal and piggy back system (double lenses) in 1991 and 1994 the corneas are transplanted. from the transplantation till now I’ve used glasses, but lately my right eye cornea is not very stable, and very soon I will have sclera lenses in both eyes.
    I am so glad that these lenses have such extremely good results with vision and are also comfortable in the eyes but this is what I have heard and soon will experience by myself.
    Till last year I had a vision of 1.0 and today it is approximately .7 total at the best days, but there is variation every day, therefor I have 3 glasses to try in the morning and I take the best for that moment. (the 3 glasses all have the same correction but are mounted in different degrees in the frame, 3,5 and 9 degrees) This is because of the instability of the cornea.

    I am lucky that the sclera lenses (cost about 1200 euro each in Holland) are mostly covered by standard insurance. I will inform later about my experiences, can someone with experience tell me if these lenses can sit a whole day without refreshing the “inside fluid” in between.
    Thanx for replying,

  26. Jon Severs says:

    Hi Richard

    I wear my scleral lenses for around 15 hours a day without changing the fluid, and have no problems! When I get back from holiday I will be putting some more guidance up about sclera’s so stay tuned….

  27. Matt says:

    Figured I would put out an update:

    Since my post back in July I have gone through numerous scleral lenses. My vision has been excellent with all of them, but the fit had to keep being ‘tweaked’.

    At this time, I have a lens that I am able to consistently wear 8 or more hours with excellent comfort.

    With earlier lenses comfort was ok, but trust me, when you find one that is right you will notice the difference. The change between my current lens, and the most recent lens prior was minuscule. An adjustment was made ( i can’t remember which) to one of the curves in the smallest way and it has made all the difference.

    With my previous lens, I had very good vision and was able to wear the lens for 8 hours, but it ‘pinched’ sometimes and left my eye feeling very raw some days. I also had to remove clean and replace saline sometimes mid-day.

    I have not had that issue with the most recent lens.

    The challenge with slcerals I think is:
    a) finding someone who knows how to fit them
    b) finding someone that is patient enough to work with you.

    My guy in upstate NY has been fantastic, but he has probably lost money in the process. I have spent about 500$ but have tried at least 9 lenses.

    Good luck to all those trying them, and if it doesn’t feel right keep trying. I was starting to become discouraged but stuck with it and am glad I did. I am now considering trying scleral lenses on my post transplant eye.

  28. Mellie says:

    Matt, Both of my eyes are post transplant (Having had 2 in teh left ey dude to complications) and the vision my Doctor is acheiving is phenomenal.

    I am glad you gave advice about persevering with the fit as we are having some problems getting it right and I know my doctor has just ordered my 5th set, hopefully these ones will work better although she told me her previous patient took 12 sets but is now deleriously happy with the fit that he has. It is hard trying to get that right fit and I am hopeful there is a light at the end of the tunnel.

    My Doctor decided to specialise in these lenses when she couldn’t find anyone in our area willing to do the fits, so I completely agree these lenses are all about patience and a good physician

  29. Matt says:

    Definitely keep working at it. Funny thing is with my last fit….

    I prefer my current lens – it is far more comfortable than the one prior.

    My doctor preferred the lens prior, he said that showed a better flouroscene (sp) pattern.

    He thinks my current fit looks a touch ‘tight’, but the difference to me in comfort is night and day.

    A couple other tips I can pass along:
    Don’t rely on the no rub cleaning solutions, in my experience they do not work well for rigid lenses of any type. Currently I am using Optimum ESC for my scleral and find it to be very effective.

    Also – oddly enough – drops cloud the lens up for me. I use no drops. Sometimes I will try a little fresh saline if I need it, but usually if I reach that point I just pop my lenses out, wash, fresh saline and reinsert.

    Use a preservative free Saline, I was instructed to use Unisol 4 and won’t use anything else.

    Lastly I have issues with ‘crud’ on my eyelids, don’t know if its allergies , genetic or what…. But I wash my eyes each time I shower with some J&J baby soap. I find this to help as well.

    I suspect there is a lot of trial and error here to find what works for you and it does require some diligence. Hopefully in the end you achieve quality, comfortable vision though…

    What sort of issues are you having with your lenses? Can’t get the fit quite right? What is the quality of vision without correction on your eyes, has KC returned at all post op?

    I was very lucky with my transplant, about 6 years now and no issues. I can actually see 20-30 with soft toric lenses, or glasses.

  30. Richard V says:

    Thank you Jon, will wait for that info, in the mean time have a good holiday!

  31. Mellie says:

    I am having a lot of difficulty with the fit mainly, a small cone returned around 2 years post op to my right eye, it is small and low, and came back following lasik to correct some of the astigmatism in the eye. I can still get around 20-40 in my right eye with glasses, but with the scleral lenses its better than 20-20 if we could only get the fit right! we need it to vault the cone and allow fluid exchange, but not be soo big that is like a flying saucer and spinning around in my eye.

    The left eye is a whole different kettle of fish, I had the transplant done in england in 2007, and I knew something wasn’t right from day one, my physican (The same one who did my far more successful right eye) said it may have been bad donor tissue as he could not fathom why the vision was not any better after the transplant, I could not even see the top letter on the eye chart with glasses over 1 year post op! I was offered an intra ocular lens but that in itself while imporving my vision has a whole slew of problems and drawbacks so I decided against it!

    I then moved to the USA with my husband, I got a new eye doctor and in the USA the intra ocular lens was not an option as the ones to correct the level of astigmatism I have are not approved for use here.

    He felt my best option was to have the transplant re done and go from there. I had it done April 2010 as an outpatient procedure with concious sedation and I have to say the recovery while still unpleasant with the goo and the cleaning and the constant urge to itch your eyes was a MILLION times easier. Not having to stay in hospital and deal with the effects of genral anesthesia made it much more manageable!

    The lens in my left eye is BIG, really big, it has to vault over my remaining stiches as well as the now giant corneal graft (he had to go bigger than the original graft) my physician says it is snugger than he would like, but I feel its pretty comfy, I was advised to use induvidually capped preservative free drops to fill my lenses but it is expensive and frustrating when I drop them off my finger (this happens a lot becuase the lenses are steep!) I am definitely going to look into this unisol 4 as a bottle of saline would be much easier to use!

    My 5th set are currently being manufactured and hopefully will be a better fit!

    I will keep you updated


  32. Jon Severs says:

    Hi Melli, sounds like you’re on a road to good a fit at last! I have been through so many scleral lenses, think I am due a new one in a few months too! Will be writing more about this in the next few weeks

  33. Jeff says:

    Wow, I’m glad I found this site. I’m going to try my first scleral lens tomorrow and can’t wait. I was diagnosed with KC about 8 years ago and have done relatively well with an RGP lens in my right eye; however, the RGP-corrected vision in my left eye is not good enough for me to bother with wearing the lens.

    I’ve recently started piggy-backing an RGP with a daily disposable in my right eye and it is very comfortable with good vision. Dry eyes makes the piggy-backing somewhat uncomfortable by the end of the work-day, though, so it’s not ideal.

    My doc finally suggested that we try a scleral lenses and after reading all of the positive experiences on the internet I’m afraid I’m getting my hopes too high! I just saw a photo of a standard RGP next to a scleral and my jaw dropped. I did not realize how massive these things were…

    Thanks to everyone for sharing your experiences. It really helps to relate with others who are living with KC. Good luck to all of you in your quests for better vision!

    I’ll be sure to post an update after I’ve had some time with the scleral lenses.

  34. Jon Severs says:

    Glad you find the site useful, main thing to remember with scleral lenses is patience, it takes a long time to get a good fit and a long time to get used to them, but the hassle is well worth it! Will post up some more stuff on slceral lenses next week, including a video of putting them in and taking them out as it took me ages to get it right without getting bubbles beneath the lens!

    Look forward to hearing how you go, good luck!

  35. Matt says:


    Whereabouts on the planet are you?

    Good luck with your appointment, be advised, you may need multiple tries to get it right. I too experienced ‘jaw drop’ at the first suggestion that I try the sclerals. My logic was that if my tiny lens is so painful, how could something that large possibly be better. I was completely wrong in my assumption! There is a learning curve for insertion/removal but once you get the hang of it (assuming you achieve a good fit) you will be surprised how comfortable they can be. I honestly don’t know they are there most of the time.

    I have found very few online resources for scleral lens wearers, so please report back so we can compare notes and offer tips.

    Again… Best of luck!

  36. Jeff says:

    Well, I ended up trying on several different lenses in each eye and as far as first impressions go I was pretty happy. The first lens that we tried in my left eye provided better vision than I have had in that eye for years! Alas, the lens wasn’t a good fit, so we moved on to another one which didn’t provide nearly as good of vision (but the fit was better). For my right eye we went through the same two lenses and the latter was also a good fit for my right eye. Vision wasn’t as sharp through the scleral as my old rgp, but it was definitely more comfortable. We did the whole eye-chart thing with each eye and we got my right-eye to 20/20 (though it didn’t seem as sharp to me as with the rgp) and my left eye to 20/30. The doc put in an order for my first set of scleral lenses which I’m sure will have to be tweaked some more for another set (ad nauseam). I’m hopeful that we can get my right eye to as good of vision as it has with the rgp and that my left eye can tolerate the scleral for all day wear.

    I didn’t have too much trouble inserting the lenses, though it was a bit awkward to have to tip my head and down and bring the lens up. Definitely a two-handed job. I’ll post an update after I’ve gone through a couple sets of lenses to let everyone know how it goes. I’m eager to try them out in the real world!

    Matt, I live in Utah, USA.


  37. Matt says:

    I am guessing he had you putting in trials, don’t worry too much about your vision quality with those as he can adjust your power to fine tune that once he gets the fit right.

    I have found the vision with my scleral to be as good as I ever had with RGP, and the comfort is 10x better.

    Good Luck with next round!

    PS – Reason I asked is I had a friend named Jeff that was diagnosed around same time you mentioned. He is in the Northeast though….

  38. Jeff says:

    Well, I got my first set of scleral lenses yesterday. The vision is fantastic and they are very comfortable. When I first went outside with the lenses I was amazed at how sharp the world was (it’s weird how you forget these things!) I’ve never had good luck with my left eye in RGPs, so I never wore a lens in that eye. Even with a scleral lens my left eye is not as sharp as my right, but it’s a huge improvement over no correction and the lens was instantly comfortable.

    I was able to wear the lenses for 6 hours yesterday and have had them in for only a couple of hours this morning. My biggest concern right now is that my eyes get very tired (though there is no pain, just tiredness). I’m hoping this is just something that my eyes will adjust to over the coming days/weeks. I was able to get my right lens out fairly easily by lifting it up from the bottom edge with my finger. The left lens, however, was not nearly as easy to get out. It was actually quite painful when I tried to lift the bottom edge with my finger so I resorted to the plunger. Though I sucked on to the lens on the very bottom edge, it did not want to break it’s seal on my eye! When I finally did get it to pop off it really pulled on my eye. I’m assuming this is a problem with the fit which can be resolved with a tweak to the lens. I have my next appointment in a few days to evaluate the fit/vision.

    In everyone else’s experience did it take awhile to adjust to these lenses? It’s not quite like getting used to RGP (which for me involved getting used to a foreign body sensation), this feels more like my eyes have been berated by wind for several hours (does that make sense?). My eyes weren’t very bloodshot last night when I took them out, but they were happy to be free of the lenses.

    So far my initial impressions are extremely positive. Assuming my eyes adjust to the tired feeling, I think I’m going to love these things!

  39. Richard V says:

    Last Tuesday I’ve got my sclerals for both eyes. What a vision, incredible. With glasses my vision was measured as .6 and with the scerals 1.5! super vision! I feel like a tourist in my area and house with this vision! Today I wear them 11 hours. every day + 2 hours. Every day my eyes feels better,. Today with 11 hours it feels very comfortable, and even without taking them out in between and without refilling the lenses. I have rather small eyes so to open the eye big enough for placing this lense ones is almost impossible for me. For me the easiest way is to start placing the lense in the upper part of the eye and secondly I draw a little on the downpart of the skin under my eye and the lense is placed. When doing this horizontally there are no bubbles. I use a mirror with enlarged view, so the eye looks much bigger which makes it a lot easier. Before I used many types lenses including piggy backs but nothing can be compared with these sclerals, not the vision and not the comfort. Also Jeff, I wish you the best with your sclerals I hope for you it works out same as for me till now. Thanks for everyones experience at this side, it feels I am not alone!

  40. Jon Severs says:

    Hi Jeff

    Yep, I got the beratd wind feeling and still do if I leave them in too long! You’ll also ntoice if you do leave them in for an extra long time your vision won’t be as good the next morning. When I say a long time, though, I comfortably where my lenses for 15 hours a day! If they do get soar, I just stick a couple of drops of saline in and that tends to sort it.

    One thing you might notice is gunk forming in the saline and clouding vision. When you replace the saline, all is fine till it gunks up again. This is where the protein builds up. You can stop this by putting the lenses in a saline bath with a protein remover tablet in it. The problem disappears 🙂

    As for getting them out, I lift my top eye lid, in the corner by my nose, push up til my finger rests on top of the lens itself, press gently and move my finger across the top of the eye, so dragging the eye lid with it. This pops the lens out easily every time. Will try and put a video up of this.

    Best of luck


  41. Jon Severs says:

    Hi Richard, I also put the lens in how you do! It gets to become second nature 🙂

  42. Karri says:

    I followed your blog for the last couple months. Long story short: I tried the msd (scleral) lenses. They dragged my lower lid down. Not only did my eyes look freakish, I felt like they dried out right away. They were uncomfortable for me. Did I not give them enough time? Did any of you find the lid pulling in your experience? I have good vision with glasses, so I am not too concerned, but would like to have options.

  43. Matt says:

    What led you to try Scleral lenses? It would seem that if you able to achieve good vision with glasses that soft contacts might also be an option for you (layman’s perspective).

  44. Deb says:

    Hi everyone
    I am 34 and was diagnosed 12 years ago. I am getting my new scleral lenses tomorrow. They hav been fit previously by a specialist here in Brisbane – QLD – Australia. Problem is that they are very expensive ($1500) and not covered by insurance AND I had to sign a disclaimer to say that I would still pay even if I wasn’t able to tolerate the lenses or if they didn’t fit correctly. Still – it’s cheaper than a transplant and I will be evaluated by cross linking if I can tolerate the lenses (apparently I’m not really viable but the doctor is positive he can try it). Hopefully all will be well! I’m really looking forward to wearing a pair of sunglasses and being able to see my 1 year old daughter properly! I will keep you posted on my success. I had no luck with the RGP – my eyes are just too sensitive and they kept falling out of my left eye – a very expensive and frustrating exercise! At least the sclerals are hard to lose!

  45. Richard V says:

    Hi Deb,
    I am sorry for you that these sclerals are not covered by your insurance, we have more luck with insurance in Holland, nevertheless when you will have the same experience than me it will be the same than with buying a Rolls Royce automobile. You forget the price and enjoy the comfort and quality. I wear these sclerals since 19 April last and my eyes tolerate them well, also the vision is very good, much better than with many different type of lenses tried before, so I am very satisfied till now. The first days where difficult to insert them without bubbles in the eye but experience will solve this surely, secondly my eyes feel more tired after a day wearing but I think that this will improve in the near future. Wish you lots of Success! and indeed, I bought myself also a good pair of sun glasses which I had missed a long time 🙂

  46. Jon Severs says:

    Hi Richard/deb

    Thanks for posting your experiences on the site! Richard, great news that they are working out for you, deb I wish you the best of luck! Please do let us know how you go and any probs etc I’m sure one of us will have experienced the same thing!

    Sent from my iPhone

  47. Karri says:

    Sorry for my absence. Soft lenses are not a good option for me. I can wear glasses – not the best vision, but workable. But the soft lenses (any type) spin like crazy, so I have blurry/clear/blurry/clear vision. I find myself repositioning them all the time. They also tend to be a little uncomfortable at times. Not sure why.

  48. Pete says:

    I am 34 and was diagnosed with Kerataconus a little over a year ago. (I had 20/20 until age 27 or 28, so I guess I’m lucky to be a late onset patient). My left eye is much worse than my right (I can read with my right eye without correction.. although I have to squint).

    I started with Synergeyes for the first year. I wore an A lens in my right eye and a KC lens in my left…These were quite comfortable once I got used to them..although I had to have them refitted a couple of times. My optometrist switched me over to Duette Synergeyes lenses a few months ago which were even more comfortable. A few weeks ago at my regular check in she examined my eyes and said that they were getting too dry with with the synergeyes lenses and said we were going to try scleral lenses. I’ve been wearing them for about a week now and I find them to provide even better vision then the synergeyes lenses and they really aren’t any less comfortable. They are a bit harder to put in.. but I picked it up after a day or two.

    One thing that might help others, my lenses each have a small hole for fluid flow to keep my eyes wet.

    My optometrist has me using only artificial tears (blink or systane)…. which is actually the expensive part of wearing the lenses (the lenses themselves are only a few hundred dollars and she charges a hundred or two once a year for fitting)… My wife actually got our insurance to pay for the lenses once we provided an opthamologists note that they were medically necessary (other people in the USA might want to look into this.. my wife had to bug the insurance company for a few months.. but they did pay!). Note that my lenses may be less expensive as my kerataconus is not that severe (I’ve been told I’ll never need a transplant and will just be able to wear contacts the rest of my life). My opthamologist did say that if he ever sees a big change he might have me undergo corneal crosslinking, but that I don’t really need it yet (and supposedly KC stops progressing once you get near age 40)

    My advice is find an excellent optometrist who specializes in contact fittings for corneal conditions like KC… I live near Chicago and the woman I see is absolutely fantastic….. it makes a HUGE difference to see an expert… to give you an idea it took her about 5 minutes to look at my eyes and come up with perfect measurements when I put the scleral trial lenses in

  49. Pete says:

    I am 34 and was diagnosed with Kerataconus a little over a year ago. (I had 20/20 until age 27 or 28, so I guess I’m lucky to be a late onset patient). My left eye is much worse than my right (I can read with my right eye without correction.. although I have to squint).

    I started with Synergeyes for the first year. I wore an A lens in my right eye and a KC lens in my left…These were quite comfortable once I got used to them..although I had to have them refitted a couple of times. My optometrist switched me over to Duette Synergeyes lenses a few months ago which were even more comfortable. A few weeks ago at my regular check in she examined my eyes and said that they were getting too dry with with the synergeyes lenses and said we were going to try scleral lenses. I’ve been wearing them for about a week now and I find them to provide even better vision then the synergeyes lenses and they really aren’t any less comfortable. They are a bit harder to put in.. but I picked it up after a day or two.

    One thing that might help others, my lenses each have a small hole for fluid flow to keep my eyes wet.

    My optometrist has me using only artificial tears (blink or systane)…. which is actually the expensive part of wearing the lenses (the lenses themselves are only a few hundred dollars and she charges a hundred or two once a year for fitting)… My wife actually got our insurance to pay for the lenses once we provided an opthamologists note that they were medically necessary (other people in the USA might want to look into this.. my wife had to bug the insurance company for a few months.. but they did pay!). Note that my lenses may be less expensive as my kerataconus is not that severe (I’ve been told I’ll never need a transplant and will just be able to wear contacts the rest of my life). My opthamologist did say that if he ever sees a big change he might have me undergo corneal crosslinking, but that I don’t really need it yet (and supposedly KC stops progressing once you get near age 40)

    My advice is find an excellent optometrist who specializes in contact fittings for corneal conditions like KC… I live near Chicago and the woman I see is absolutely fantastic….. it makes a HUGE difference to see an expert… to give you an idea it took her about 5 minutes to look at my eyes and come up with perfect measurements when I put the scleral trial lenses in

  50. Hi everyone! I quickly went through some of your comments on Scleral Lenses and know you probably have a lot of questions about them. I have been fitting them for the past 5 years and have found them to be so much more beneficial for the patient in terms of visual clarity and comfort versus the standard corneal rgp or products such as Synergeyes. There are many applications that the lenses can be fit on, but Keratoconus is probably the most common due to its prevalence in the general population. However, Post-Lasik thinning and ectasia is quickly becoming an issue as well.

    I am writing this so that if you have any questions that you need answered, I would love to help!

    Dr. Mike
    Charleston, South Carolina

  51. Ruben says:

    Pete thank you for your comment and i will bug the everliving crap out of the insurance company now you have stated that they will pay for it. I am 33 yrs old and have had Keratoconus for 14 years now. Ive been wearing the RGP lenses and quite frankly am sick of wearing them. I hate having this eye disease but realize people have far worse life long illness then me so i keep my thoughts to myself. Went to several different doctors and some talked about the Scleral lenses so i am going to give it a try. I read nothing but positive comments about them. I Live in North Carolina and go to UNC chapel hill for my eyes. I was wondering if the Scleral lenses improved night vision as far as halo affects and double lines caused by lights? they are going to cost me 500 bucks and 300 for a fitting fee. My insurance is not going to cover them but the eye doc is suppose to send a request for predetermination to see if it can be covered does anybody know of any vision insurance companies that will pay for them around my area??

  52. Matt says:

    Definitely push your insurance company. Contacts for kc are medically necessary and they should cover much if not all of the cost. Regarding night vision…. I can’t say enough good things about how sclerals helped me, including halls. Night and low light vision was previously a major challenge, driving at night in the rain was borderline suicidal. With my scleral lens howeverthis no longer a concern. I have very little to no halo affect now. Good luck to you…

  53. Ruben says:

    thanks alot Matt and good luck to you..

  54. Mohamed says:

    Greeting from Singapore, this site is great!! I was diagnosed with KC when I was 19. I have been wearing Rose-K lenses until now.

    Now at 26, I am going for partial thickness corneal transplant (left eye) due to the high risk of Hydrops developing. I can’t believe you actually sat out Hydrops and never went for surgery!! That sounds downright scary to me.

    If I do need lenses to correct my vision after the transplant, I will be sure to ask my doctor about scleral lenses.

  55. Richard V says:

    Dear All,
    I have a problem wearing sclerals and want to post this hoping on any comment which may be helpfull solving the problem. I wear scleral lenses since half April. First month was great, vision extremely good and comfort OK too. Approx. 2 weeks ago the comfort went down. My left eyelid swoll a little which results in some force at the lense. Also the eyelid hanged a little bit halfway the eye. Also the lenses sometimes in both eyes felt sticking at the eyes which makes it very uncomfortable, and sometimes there formed a blurry cloud between the lense and the eye. I went back to the specialist and was told allergy outside was the reason and got medicine against allergy. It didn’t help, it makes the eye dryer and was not able to wear the lense. I could only wear the lenses some hours, and in the first month even 15 hours a day was no problem at all. So, I thought to give the eyes one week rest without lenses and than start again. Yesterday I started again putting the lenses in and after one hour it felt in both eyes uncomfortable and the eyelid left already was swollen again and I decided to put them out. But than I experienced a huge pain, red eyes, swollen eyelids so went direct to the hospital. Left cornea (corneas are transplanted in 1991 and 1993) was swollen also and had rejection signals. Medicine worked out and now the eye is OK again luckely. Personal I think I developed a allergic against the Ote Saline, the fluid between the lense and eye. (Is there an alternative fluid?) Sounds the story maybe familiar to someone. I am 47, and for the transplantation I wore small normall lenses without allergic problems so I assume there is no allergic for the lensematerial itself. I would highly appreciate if someone who could say anything about this subject will respond. My view was extremely good with sclerals so…..
    Thanks & Regards,

  56. Christine says:

    Very, very glad for the comments and expeiences about the scleral lenses. I just started wearing them a few days ago and after removing them I’ve been in a blurry haze. My eyes cannot seem to lose the blur once the lenses are removed. Does anyone know why this may be occuring?

  57. Jill says:

    I have only had my scleral lenses for a few days. One of them seems to “leak” saline before I can put it in my eye way faster than the other. Is this normal or do you ruining might be a defect. I though it was odd since my other lens does not do this.

  58. Jon Severs says:

    Sounds like it doesn’t fit, it can take a few goes to get the best fit. A tell tale sign is bubbles in the vision that develop during wear

    Sent from my iPhone

  59. Diesel says:

    I am wearing sceral lenses mainly in my right eye were the Keratoconus lies, but as well in my left eye cause i hate RGP’s. I love the fit and the vision, but i despise putting them on, I take on average about two and a half hours trying to get them in. any tips on making it easier?

  60. Jon Severs says:

    It took me a few months to perfect it, if it doesn’t happen after ten mins leave it for a while as any longer your eye will be swelled up and the fit will get more difficult

    Sent from my iPhone

  61. Maria Antao says:

    My name is Maria and i have been living with KC for 23 years. I had my 1st transplant at 14 on my right eye and the left eye done when i was 18. Since then I have tried glasses, lenses, lasik, and other procedures. My left eye is stable but my right eye is always getting worse to the point where i can’t see out of it. I was just told about sclerial contact lenses and am willing to give them a try but worried about the results. It seems that alot of fittings are needed and how long do they last are scripts required for the vision? I need feedback so that I may make a good decision.

  62. bob archer says:

    Hi all. Glad to find this site-have things changed and improved.

    I’ve had kc for 50 years starting at age 17; had had several ineffective eyeglass scripts but the kc went undiagnosed until age 24 (pp oculists), while training in dental school. Got adequate vision with rigid contacts. Within ten years eyesight became so bad, I couldn’t practice. Twenty-seven years ago, a corneal transplant was conducted (its still good) on left eye due to apical scarring. Sight has been corrected with gp to 20-40 variable to 20-50 left and 20-30 to 20-40 right. Visual acuity varies hourly and daily, but the steepness of the cones seem static.

    Last spring had to deal with cataract in right eye-that improved acuity to almost 20/20, but the lens hurts more, but not quite enough to seek immediate relief.

    Knew there were scleral lenses but piggybacks and other treatments are new to me. I would love to be 20/20 or better. Have you any points to make for scleral, piggies or leave it alone as good enough?

  63. jesse says:

    i have KC and no insurance, my life has been pain, i have an old set of rgp lenses, and i cant tell you how uncomfortable they are. what do i do? is there any other insurance i could buy, i was laid off my job in march havent had any luck with anything yet, someone please help

  64. bhargai says:

    what solutions best suite with scleral lens for cleaning and storing.

  65. Jon Severs says:

    I use Eyeye cleaner and lens plus saline solution. Then every couple of weeks I bath them in saline with an amiclear Protein remover tablet

    Sent from my iPhone

  66. Richard V says:

    Hi all, I tried full sclerals this year with 24mm diam. and although the vision was really really perfect my eyes unfortunately didn’t accept them after approx. 2 months anymore and had to stop wearing them.

    But, after the dark there is always sun:) my specialist thinks after investigation to solve the problem mainly with mini-sclerals. left eye lens 17mm, and right eye lens 14mm. I have tried test mini-sclerals 4 hours in the hospital and no bad reaction came up so soon my vision will improve again with serious steps. I will let you all know my experiences, in the mean time if anyone has any advice for me related to the mini sclerals please inform.

    Can I expect same vision with mini sclerals compared with the full sclerals? the test lenses didn’t had the good correction and this specialist which is another as with the full sclerals had a different method so till I receive the mini sclerals I am not totally sure. Thanks for this site !

  67. DPeraza says:

    Hi all: Found this site while researching scleral lenses. I was diagnosed with KC +/- 15 years ago. I’ve tried RGP (hard) lenses Synergeyes hybrid lenses and even regular soft lenses but for some reason my eyes become irritated after a few months of use (perhaps dry-eye-syndrome). I am trying Scleral lenses after many years of not wearing any contact lenses. Test-fitting was done on Nov. 12, 2011 and it went well. I can honestly say the lenses are extremely comfortable. For people looking for a specialist in South Florida I can recommend Dr. Andrea Janoff in Nova Southeastern University. She specializes in contact lens fitting. Another alternative is Bascon-Palmer eye institute in Univ. of Miami but I do not have visited that institution. My lenses cost $700 and the comprehensive test and lens fitting session (lasted 4 hours) was $230.

  68. malcolm cohen says:

    i have just started wearing a miniscleral in my right eye ,over a graft,.for the last 4 years i have been piggybacking but recently it started to cause too much staining on the cornea,.the scleral i suppose is ok, some days i do not feel it at all and others days there is minor discomfort.but it does cause the side of my eye (by my nose)to become very red(if i did not know it was due to the lens i would run to the hospital thinking i had a rejection)the redness fades generally by the next morning.
    does anyone know where i can purchase a basket for cleaning with aosept(hydrogen peroxide)the basket it comes with is too small
    Malcolm (Israel)

  69. Jon Severs says:

    Hi Malcolm

    The easiest way to clean sclerals that I have found is using EYEYE you massage into the lens with your finger tip and then you clean off with Lens Plus

    For storage, you store them dry, so just in any small box that is cushioned so the lens does not scratch. I have a small box the lenses came with and they just sit in there happilly overnight and I clean in the morning.

  70. David Mazo says:

    Hi, i have been using scleral lenses for several years now. They are great, i can actually see 20/20 and super clear. the only problem i have with them is the ulcer it has made in one my eyes, due to the daily use and the scraping it makes when putting putting them on.

  71. Ronnie says:

    I had a terrible time inserting my lenses until I came up with a solution some of you may want to try. Use a small o-ring from a faucet repair kit. Find one small enough to lay flat on your index finger tip. Place the lens in the o-ring and fill with your choice of solution. The o-ring will help hold the lens on your finger tip. Now just lean your head over a mirror laying flat on the counter top and use the remaining fingers on the hand with the o-ring to pull down the lower lid and the other hand to pull up the upper lid and insert the lens. You will be surprised at how much better you can see what you are doing. The o-ring may stick to the lens but you can remove it by blinking or you can just pull it off. This did wonders for my mornings by being able to insert my lenses without a great deal of time and trouble.

  72. Jon Severs says:

    What a brilliant idea!

    Sent from my iPhone

  73. Kylie says:

    Hello all,

    I am also a long term kc sufferer. Mostly in my left eye and developing in my right. I had corneal cross linking done last May, which was an experience!! However I shouldn’t complain as my sister has had a corneal graft in both eyes and it seems to be a much harder process.

    I was fitted with mini scleral leneses yesterday. Don’t know how I feel about them as yet. I find that my vision is still very blurry and I am even squinting to write this. I was hoping to have great vision straight away with these ones. They are pretty comfortable but I am wanting to put my glasses back on because I would see much better with them.

    Did anyone else experience this problem? I am trying to deal with it and just stick it out.


  74. Jon Severs says:

    Hi Kylie

    In my experience, if the lens fits and the power on the lens is correct, if you’re putting it in correctly you should be able to see. Hence, if it’s blurry and you have no bubbles behind the lens when it is in the eye I would go back to your optician to check the fit and the power on the lens – it too me about three fittings to get one that was right!!

  75. Kyle says:

    I work in the US for an optomitrist who fits scleral lenses on our KC patients. What a rewarding job to help people to see! I love your sight and all the positive comments. Our insertion and removal techniques are different, (we use a”plunger” to insert and remove) and our care regimen is different also. Sclerals are an amazing thing!
    Thanks for sharing!! Kyle, Longmont Colorado USA

  76. Jon Severs says:

    Nice to hear Kyle! I know a lot of US people who have read the website don’t know about Sclerals… Good to hear you are helping people with them

  77. Thank you very much for the information and sharing your life with us. I know little about what my husband suffers through and I think your blog will help me understand and be more compassionate to his situation.

  78. Vision 4 All says:

    I have been moved by all the comments on this blog. I am starting a discussion forum to help the patients in United states.All suggestions are welcome.Feel free to ask any questions, post your experience.
    I was surprised to know my patient her in los angeles was paying $3500 for Scleral Contact lenses

  79. Mark says:

    I LOVE the vision I get from this lens (only wear one), but I can’t keep the lens from clouding up after about 45 minutes of wear time. So frustrating. I have tried different cleaning products and everything. The lens fits great, but the darn thing clouds up so fast. :0(

  80. Jon Severs says:

    I had that problem and a preservative remover solved the issue for me. I buy Amiclair use it once a week and it seems to solve the problem. If it persists still it may be you are touching your eyes too much, the lens is not fitting correctly, your cleaner is not good enough (i use EyeEye cleaner)… loads of things!

    I change my bedding once a week, change towels once a week and alwyas make sure I have clean hands before they go anywhere near my face! Overwear doesn’t help either…

    Hope you get it sorted!

  81. Matt d says:

    Mark, I also had that problem and as I recall it ended up being a fit issue. The lens felt fine and vision was good but there was no room for fluid movement so the lens clouded up. My current lens I wear all day with no issue.

    Another thing I learned which was counter intuitive – I do not use rewetting drops. They always cause my scleral lens to cloud up. If my eyes get really dry , which is not thst common, I pop the lense out and clean it then put itback in with fresh saline.

    Last tip – use preservative free saline. I use unisol 4

  82. Jon Severs says:

    Ah yes the rewetting drops is a great shout – I also avoid them for the same reasons!

  83. Mark says:

    Thank your guys for the response! My doc fitted me four different times. He says the fitting looks good. So, I don’t know what else I can do with that? I have tried Lobo, that Boston stuff, Clear Care and even Opti-Free. I also use Unisol 4. Heck, I even tried using Refresh Plus in the bowl. I haven’t tried that protien remover tablets yet.

    Also, when you were having the same issue, did you notice a rainbow around lights at night? All I have to do is remove the lens and add fresh fluid to fix the issue, but this isn’t very realistic every hour! :0)
    Thank you guys and gals!

  84. Jon Severs says:

    Ha yes I remember changing every hour – those tablets really did fix it for me. Didn’t get any rainbow affect though, just halo.

  85. Matt d says:

    Yeah I think I was fitted with at least 6 lenses and even the one I have now my Dr wants to tweak a little. For me even very minor adjustments in fit have made significant differences in comfort and vision.
    Has your Dr fitted many patients? Experience
    seems to be quite limited from whati have seen….

    Is your lens fenestrated? (small hole in lens)

    My first few were and then the manufacturer decided to getrid of fenestrations alltogether. I don’t know how much this might play in to the hazing…

    Other thoughts, do have seasonal allergies?Spring is always a tricky time for me and my contacts. Proper meds including eyedrops definitley help.

    If it helps at all this is the routine that works for me:I soak my lenses overnight in optifree repleneish (not express,that stuff is no good)
    In the morning I puta drop of optimum rewetting solution in my eye (or allergy drop during allergy season) then I was the lens with optimum esc, fill with unisol,inser….

    Figuring out what worked for me took a lotof trial and error, I think different people need different solutions, but the one thing that helps for me the most is cleaning in the morning just before putting in my eye. I think the soaking solution was contributing to hazing.

    I think one of the challenges with sclerals in particular is commitment it requires from the practitioner and the patient. My Dr has been fantastic and replaced many lenses for me and listened to me throughout the process. I was getting fustrated in early phases of the process because it was starting to feel reminiscent of past failures, (rgp lenses, piggy back, synergyes) but he helped me along and I have been over a year with this lens an the best vision I have had in 20+ years.

    Good luck, my apologies for sny typos, doing this on my tablet and it is fighting me every step of the way 🙂

  86. Larry Louisy says:

    I’m 44 and have had KC for over 10 years. I’ve used the piggy back method for most of that time and am not just trying the Sclerals. I’ve oly been trying the for the past 4 weeks but have had issues with sensitivity to light and increasing soreness throughout the day. Different fittings have lessened the effects but they persist. I’m starting to get discouraged but this website has been incouraging.

  87. Jon Severs says:

    It took me around three months to be entirely comfortable, building up the wear time each week. I wish you the best of luck, keep trying as it does reward you in the end.

  88. unpsoken says:


    I have keratoconus too!! But mine is really advanced I wear the same lenses and just wanted to say if anyone is having difficulties inserting their lenses, an awesome idea would be to get a little plunger (available from most opticians) I use one its so much easier and eliminates the possibility of getting bacteria onto the lens.. 🙂 🙂

  89. emilyessely says:

    I was diagnosed with keratoconus around the end of high school/beginning of college, had soft lenses for awhile and then moved to RGPs by the age of about 23ish, I think? I never liked the RGPs; they always caused some pain by the way they sat on the corneas, etc., although more recently a new doctor “fluted” the sharp edges out a bit and the pain was less. Still – I had constant issues with dry eyes (stashes of eyedrops ALL OVER THE HOUSE and office and in my purse) and getting grit in my eyes, and having stabbing pains at random times, or terrible discomfort if I hadn’t gotten enough sleep one night or whatever. Or my eyes randomly tearing up from them, which is not cool when you’re like, trying to talk to your supervisor at work or going to an interview or something. And when tired or if it was windy or for various other reasons I’d have major issues with starring and clarity of vision as well.

    I then had corneal collagen crosslinking in 2010 and 2011 (both eyes), which has halted the degenration thus far (hooray!) and did improve my vision in my worse eye, although it’s still atrocious. I got fitted for RGPs again after (twice or so already), but recently with my eyes still changing from the surgery, I needed another new fitting and the (other) doc suggested sclerals (I have 4 eye doctors).

    Just got my first set yesterday, and although he wants to adjust the prescription more after looking at how these fit, and it’s only Day 2 with this temporary pair, so far the difference is phenomenal. I wish I’d gotten these YEARS ago. I am still using eyedrops a few times a day, but the doc thought I probably would feel the need for that and then eventually get used to not needing them much or at all. Overall, the improvement from how dry my eyes used to get is very good, and the comfort is AMAZING. I can’t even tell they’re there, basically. Also the vision in the eye that is almost the right prescription is much sharper than anything I’ve had lately, and I expect that the right will be the same once I get the next (hopefully final for now) pair in a few days. I am currently very very happy; sort of ecstatic, really. 😀

    Also, re: putting them in, what helped me a TON is using a suction-cup plunger to put them in. I was having NO luck using my fingers, but with the plunger it’s been fairly easy (after the first 4-5 practice rounds) to get them in after 1-3 tries to ensure no air bubbles. The way that plunger works is it has a hole in the middle, and you squeeze just a little before putting the contact on the plunger, to get it to stick to it; then, (with your head down, of course, to keep any saline from spilling out of the lens) when you feel you’ve got the contact on your eye, you squeeze the plunger all the way to unstick it from the contact, and the contact stays on your eye.

    I use a regular plunger to remove them, and it is fifty thousand times easier and less painful for me now than it was with the RGPs, which could sometimes take me about 20 minutes of agony to get out. The trick with this is to put the plunger near the outside edge of the contact, not the center, when you’re removing them.

    I live in hope that when I get the next pair this week, they will be perfect, and I will have better comfort AND vision than I have in years.

  90. Emily says:

    Aaaand I didn’t mean to post my name as “emilyessely,” hah. Oh well.

  91. Jon Severs says:

    Thanks Emily – great to hear your story! Glad you have had a breakthrough with the sclerals 🙂

  92. Cindy Wex says:

    Ive used scleral lenses for nearly a year after receiving two cornea transplants. My doctor was at the point where he was going to sign me up (or “out” as I saw it) for disability and I would have to stop teaching- no way. My last hope was using scleral lenses. Changed my life. It did take a bit of time getting used to them and I lost one down the drain within the first 3 hours of owning them ($500 down the drain)- however, I couldn’t live without them at this point! I use a little “blue plunger” to insert and a little “orange plunger” to remove them- I saw that you do this using your fingers and that seems like a PAIN!! Hopefully, you can find a plunger to make your life easier. To anyone in a similar situation, GO FOR IT! They are worth the money and the time it takes getting used to them! I love mine!

  93. Dave says:


    I also have been having some issues with lens clouding. Only get about an hour of wear time before I am seeing the fog! The lens is a smaller scleral. Say maybe a mid size. Doc decided to try a full size scleral with fenstration. The other one didn’t have them and I filled it with saline. When he fitted me for the new full size scleral, he didn’t put any saline solution in the bowl. He said the type of lens he was fitting me for didn’t require it. Told me that my natural tears should work or something like that. Has anyone ever heard of this type of scleral before??

  94. Jon Severs says:

    Never heard of that! But clouding was common for me if 1: the lens was I’ll fitting and 2: if I didn’t use the protein removers on the lenses weekly.

  95. Dave says:

    Hmm, ok. I actually found an article online about this type of lens today. Been searching! Haha. No saline required because of the holes and it’s not sealed like a non fenstrated scleral. Still wonder how it works though? The trial lens felt ok, but my first lens was very uncomfortable and the vision was terrible. Bubbles right dead in the center that wouldn’t budge. Sent it back for some tweaking.

    I am also post surgical, so I read that sometimes contributes to the clouding. Not sure why? Just my bad luck I suppose? 🙂

  96. Jon Severs says:

    Ah keep me posted on that lens type – never heard of it but sounds interesting! Hope they get one that works for you.

    As for post-surgery – I’m not sure how that affects but someone on here might!

  97. Dave says:

    Will do! Thanks

  98. malcolm cohen says:

    a couple of years ago i tried a fenestrated scleral that did not need saline it was invented by Donald Ezekiel and manufactered by a company called gelflex in Australia it is supposed to be the Rolls Royce of all scleral lenses.I did not have much success with it and my surgeon actually forbade me to continue with them as he said it was rubbing on my graft.i now wear minisclerals with much success although at the beginning i had issues with red eyes and also fogging.i experimented with diffferent brands of saline and some apparently seem to cause less fogging.I am able to wear them for over 12 hours a day and i do try to change the saline once a day
    Malcolm (Israel)
    good luck

  99. Dave says:


    Yes sir, that sounds like the one. I really hope this one works, because I have had a lot of issues with mini sclerals. Everything from fogging to distortion. I really don’t know which other solution to use help battle the cloudiness? I have read clear care would help, but it didn’t. I understand it can be a fit issue, but I have had multiple fittings from different docs. What other type of issues were you having with the non saline scleral? Was it still clouding up on you?

    Thank you very much for your time!

  100. Prue says:

    I had grafts 17 and 16 years ago, but the vision has been on a downward slide for the last 3 years. I went to the optometrist and he says glasses are done for need to look at contacts and he is thinking sclerals. He wants me to see my opthalmologist to check my grafts are secure as he has some concern about them dislodging my grafts. I have 3 school age kids and a husband who is away a lot, no public transport either. driving is a necessity for me, so I am off to see my dr to check then either lenses or new grafts.
    Gotta love KC. I laugh a lot about it, the alternative is tears.

  101. UA says:

    I have been fitted with sclerals a little over a month ago. I am using the plunger to insert / remove the lens. The first day, I was able to wear the lens on my own at the clinic without any problem. however, from about a week later, it has been taking me so many trials for me to put them on without any bubbles. The comfort and vision are lot better and i am liking these lenses. But the only think is the daily hassle of putting them on. I dont understand where i am going wrong while inserting them. I look sown straight into a mirror while putting them on but it is only after some n number of trials that they go in without a bubble. Any suggestions on how to wear them with the plunger method and not getting a bubble would be sooo appreciated.

  102. Merfat says:

    Hello all, i have also experienced some difficulties with the lenses. I’ve got them through a doctor in Malaysia, i went to do the fitting there, at first they were not as comfortable but my Dr. said that i will get used to them. it’s been 2 months now or over and now i can’t even put them on for longer than an hour! not so sure is it the solution im using to clean them or something else!
    when i asked my Dr. she said this shouldn’t happen.. but it’s happening not to mention my eyes go so red around the lenses! and my eyes start to feel like burning !
    surely the haze still there since day one!..
    my biggest problem is i don’t have a specialist in my country to consult .. that was the reason i flew to malaysia from Saudi to get the lenses!!
    note that I’ve been suffering from this and wearing soft, hard and now these lenses for over 10 years!
    any suggestion please ?
    im 34 years old female.
    Thank you all

  103. Merfat says:

    hi, no body 😦

  104. Jon Severs says:

    Hi Merfat

    I had something like what you have had for two reason: 1. The lens was not fitting properly (the red eyes and stinging sounds like they are too tight?) 2. Build up of preservatives. I use a protein remover every week, called Amiclair, that strips the lenses of the build up and they are much better as a result!

  105. Merfat says:

    Hi Jon
    thank you very much for your reply .. so you suggest we try new preservatives or get teh protein remover.. and by preservatives you mean the lenses container ?

    thank you

  106. Jon Severs says:

    Hey, I meant protein sorry not preservative! But yep, I would try and get hold of protein remover tablets, you dissolve them in saline and soak your lenses overnight – clean well next day

  107. Shontiel R. says:

    What is the differance between the hybrid lens and the scleral lens? They look the same to be because you insert them the same way. I’ve been wearing the hybrid synergize lens for 2 years now and they still irritate pretty bad. There is nothing more that the doctor can do to them because we have tried every fit. Will the scleral be any better?

  108. Alan Rogers says:


    I am 62 and have had KC for 50 years! I have tried all sorts of lens, with the exception of the scleral type. Now that I know, I’ll ask my eye Doc.about them tomorrow. I like all the stories I’ve read here. I once had to put special drops in my eyes and lay in a quiet room on my back for a half hour while they worked their magic. When the Doc. came back, he had me sit in front of a large scanner which took special pictures of my corneas. The right one,(my affected eye), looked like an aerial view of Mt. St. Helens after it blew up in 1980. I had a copy and was able to compare, it really did look that way. I last tried a new, to me, technique of a mini-perforated black backed lens that allows gas through, but only allows light in through these teeny-tiny ‘holes’ in the lens.(The ‘holes’ are actually only in the black coating to allow light through but not foreign matter.) I could actually ‘see’ much better than before, but nowhere near the quality of what I see in my left eye. They were also expensive, but, as I told my wife, “What is the price of vision?” “How do you place a cost on ‘some’sight over NO sight?

    Anyway, I’ll talk to Dr. Philips tomorrow and listen to his suggestions.

    Thanks very much for the site, Alan Rogers Portland, Oregon United States.

  109. Jon Severs says:

    Hi Alan

    Great to hear from you. Hopefully your doc will see if Sclerals can help you out!

  110. MJ says:

    Hello all,

    I am 25 and I was diagnosed with KC about 8 years ago. My KC is quite severely advanced in my left eye and moderately advanced in my right. About 18 months ago I got a corneal ulcer in my right eye from my RGPs which wasn’t much fun. I then got cross linking done in the same eye and had to wait ages for my eye to settle down before I could put RGPs back in and return to work. I should add that like many of you my RGPs were horridly uncomfortable…grit in the eye, dry eye, the works. Not to mention the hundreds of pounds wasted whenever one would pop out or fall down a sink or memorably, fall into a dinner plate a formal banquet! The whole process of ulcer to cross linking to trying to get a good fit post cross linking was an enormous pain as I was a pupil barrister at the time trying my best to get taken on ( I.e. I was essentially an apprentice trying to get a permanent place in Chambers ) and I was constantly having eye issues which in turn affected my work. I was receiving my eye care primarily via two private practitioners and neither of them said a word to me about Sclerals, save to warn me off them. I accepted their view and continued to suffer, physically and financially, with RGPs. After getting a bit fed up with the hassle as I was convinced there had to be a better way. I got on to the NHS on the advice of a friend and today spent the day at Moorfields being fitted for Sclerals. I must admit to being a bit daunted by the size and the process of getting them in and out but, with them in, I get 20/20 vision! I will finally be able to drive which is beyond great.

    I’m conscious I may need a few more fittings to get them perfectly comfortable but I am very much looking forward to having them in for hours at a time like some of you.

    Just wanted to say thank you all so much for sharing your tips, tricks and stories of success with Sclerals…KC can be such a pain and as most people haven’t a clue what it’s like, it’s incredibly nice to hear from other people in the same situation.

    Finally if anyone reading this remains unsure, ask your eye doctor about Sclerals and ( if in the UK) use the NHS! When I think about how much time, stress and money I could have saved….

  111. Lucia says:

    Hi have you heard about the scleral lenses inserter which makes it easier to deal with it? I would like to buy it in the US because here in Rio we cannot find it ….if anyone can give me the address of where to buy in Chicago I would really appreciate! Thanks, Lucia (rio de janeiro)

  112. Pete says:

    Lucia: Try the Dry Eye Shop –

    I just got my frirst sclerals and proceeded to lose the insertion plunger by the second day (of course). So, I ordered a supply of both plungers (large scleral cup for insertion and small for removal) from there. Once they arrive, I’ll have them at home, work, etc..

    For a more high-tech soution, there’s the Daisyey Adaptives Light Stand. I haven’t used it, but I’ve heard folks talk highly of it.

  113. Denise says:

    40 years with keratoconus. Had corneal graft and years with hard lenses but now have Sjogrens, which causes dryness of the eye. Going to get fitted for sclerals on Monday. Apparently, you can put your moisturising eye drops in instead of saline. I get those on prescription and I have a prescription prepayment certificate so the cost won’t be as bad. Thanks for the advice.

  114. Stan Ingham (Ophthalmic Tech & Lic'd Contact Lens tech) says:

    I fit the scleral lenses here in the Vancouver, B.C. area of Canada. The scleral lenses are working very well for my patients with Keratoconus or post corneal transplant. Also using for Sjogrens, dry eye, Stevens-Johnson syndrome, post refractive surgery, trauma and so much more. The sclerals do come in smaller sizes too from about 13.0 mm to 24.0mm, it is imperative they are custom fit to your eye size , eyelids, eye shape and and at a power to optimize your success. FYI for some patients soft keratoconus lenses may also work on some patients.
    Got a question please feel free to ask me at I will give you a reply , or get you one.

  115. Denise says:

    Have had a fitting at Moorfields Eye Hospital today. They recommended the smaller sized lenses but the effect was so comfortable for me that I nearly cried ( tough one that 😉 ) . I’ve been advised against soft lenses.

  116. Jon Severs says:

    Good to hear it was a successful fitting!

  117. Naz says:

    Hi im 23 n from the uk … Iv been suffering from KC 2 weeks after passing my driving test so was banned n that was back 2006.

    Iv never been able to read the driving distance requirement since 2006 n my sight has gradually got worse

    A month ago i suffered acute corneal hydrops n went to see an opthomologist n he sed i need a corneal graft in both eyes. I want to avoid this as much as possible but being an accountant i need my vision too

    Reading all your comments makes me stop and consider these lenses however theres not much mention how bad your eyes are before the lenses.

    I cant read a computer screen with my glasses on unless i look closely or squint

    Your responses will b appreciated many many thanks in advance to all the KC family


  118. Jon Severs says:

    Hey Naz

    Before my hydrops I was about fourth line down on the chart so not great… Much better after but I am lucky. My doctors have always said to leave it at least six months before surgery after a hydrops so make sure you get a few opinions. I noticed improvement in those six months and this continued and still continues now bt I know others did not get any improvement. It’s a waiting game. I can recommend dark sunglasses as they seemed to improve my vision when i had hydrops. Definitely try and seek out scleral options after it settles down.

    Best of luck

  119. Clay in Canada says:

    I am going to my eye doctor tomorrow to get fitted with scleral lenses. I have had KC for over 10 years I guess and it is getting worse in my right eye. I hate the ghosting and weird vision. I feel sick from it and hope the scleral lenses will be good with me..hehehe.

    Nice to find this site and info!

  120. Jon Severs says:

    Best of luck Clay – takes a while to get used to them but I found that if you’re patient (and it took me months to get them perfect) they reward you for the long term

  121. Jeff, Lansing Michigan says:

    I have had KC for 20 years. Couldn’t stand RGPs any longer, so my doctor suggested SO2 clear scleral lenses. Best decision ever! I have had them for over a year now and I wear them for 12 hours regularly with no problem. My doctor advised not to use Unisol as it is easy to get the tip contaminated. He suggested .9% NaCl solution (in unit does to reduce risk of contamination). They are available at vitality medical online. These work great for me and I have very sensitive eyes.

    Also, for those who have difficultly inserting the lenses, try Softsert contact lens inserter. I bought a few from a seller on ebay and they make inserting the lenses very quick and easy.

    Hope these links will help others!

  122. Leah says:

    I’ve had KC for 48 years. I just turned 60. I was in hard lenses, and then RGPs. I’ve still been doing okay with the RGPs, but had cross linking about 6 mos ago, and the doc advised me to have my contact scripts rechecked. She suggested sclerals. I was skeptical, and so far (since I’m hard to fit), we’ve only gotten a good fit and prescription on the left one, but I absolutely LOVE it. No more dust in my eyes, and my vision is great. Fingers crossed on the right lens, which we tackle next week!

  123. fiffy says:

    gawd, this has been eye opening for me. my doctor diagnosed me with KC in both eyes when i was just about 8 years old and was fitted with glasses but my vision was constantly deteriorating. then wen i was around 14 i found myself wearing rigid lenses that were highly irritating, painful and kept popping out that i went back to glasses though they barely made my vision any better. and then when i was 15 yrs i had a transplant in my left eye and had to regularly take medications for four yrs after that with a monthly doctors consultation and all. thank god the transplant was not rejected or anything.the vision was very good initially and then again started decreasing and i was asked to wear glasses. after all the pain and money i spent, it was sickening. and now im 19, almst 20, i had another transplant in my right eye just weeks ago and the vision is better but not perfect though im worrying that it might fall again. even with glasses i cant see much, all that halo is most annoying. i wanna know if sclerals wud help me……. can i wear them after a corneal graft w/o them affecting my graft, if so, how long after the surgery can i start wearing them. im from sri lanka, do u think i cud find sclerals here, and how much would they cost?

  124. keratoconusinfo says:

    Hi there – it would be worth trying to contact the leading eye hospital in Sri Lanka and asking them about Sclerals and if they are not sure about them or do not know them getting them to contact Moorfields in the UK. As for cost, we have the benefit of the NHS over here but hopefully someone can give you a better idea from outside the UK

  125. Juan says:

    Merfat: redness around the lens of the edge and decreased wear time typically indicates a tight fitting lens or a lens that is landing at the limbus (the area where the cornea and sclera meet).
    Shontiel: Although the insertion techniques are similar between the hybrid and scleral lenses the hybrids may not work for more extreme corneal shapes whereas larger scleral lenses can be made to vault extremely steep corneas. Both are very good, but sometimes the hybrid lens is just not an option.
    Dave: Fogging can occur for several reasons: waste build up behind the lens, too much space between the posterior lens surface and the cornea, deposits to name a few. Some patients will experience fogging despite an excellent fit lens. By fenestrating the lens you create a hole where tears more easily exchange underneath the lens. This can help wash debris under the lens out. The drawback is that fenestrated lenses are not as predictable as solid lenses. Air can also be pumped into the fenestration when you blink, this can interfere with vision, comfort, and even the overall fit. Depending on your situation a fully soft lens may be an option. There are several new soft lens designs that are meant to fit irregular corneas. I’m most familiar with the Kerasoft IC, but there are others available.

  126. Patrick says:

    I have advanced keratoconus and almost lost vision in my left eye, this all happened in my early 20’s and it screwed up my life because I was training to be a rescue swimmer at the time, this disease comes out of nowhere and it hits you fast. Luckily I was able to get financial aid and join a study group where they performed cross linking and intact surgery. While I still have some issues with my left eye, it stopped the progression of the disease and it even regressed in my right eye allowing me to where just a simple soft lense for stigmatism. However, I still couldn’t find a lense for my left eye for over a year after my surgery. I was almost ready to throw in the towl and prepare myself for a corneal transplant when the doctor finally sugested the scleral lense. Thank god because this lense was a life saver. Before this lense I couldn’t see at night and being a bartender that was a problem and actually ended up lossing my friday and sat night shifts becuase I couldn’t do my job anymore; hard to have a conversation and poor drinks when you can’t see what bottle your holding or the customers face! As soon as i put this lense in I went from projection screen tv to an hd tv vision. I could see at night, I could drive, I could work again; the lense is huge but very comfortable! Another reason I love this lense is it fits my active life style. I’m an avid surfer who had a couple of very close calls surfing blind in double overhead new england winter conditions. Although it made me a better surfer it wasn’t worth the beatings i took. Now I can wear this lense and it will never come out in the water! Although it takes me longer to get ready in the morning I can live a normal life again!

    I also wanted to point out some differences I do for lense care. I use clearcare solution to clean my lense. Its a peroxide solution that becomes safe to insert your eye after six hours in this special case. However make sure you wait about six hours before you re insert your lense because this solution will burn your eye. The case has a carbon ring that stabalises the solution after 6 hours. I also insert and remove them with a plunger you can get from any eye doctor that fits you with this lense; makes it so easy to use this lense. Lastly I don’t use normal solution to insert them i use hard contact solution. Its thicker so it stays in the lense without spilling and it also makes the lense even more comfortable and less likely for air bubbles. Its more costly than regular solution 10 bucks for a smaller bottle but the bottle last more than twice as long because you used so much less.

  127. Jon Severs says:

    Great to hear your experience – I’ll have to give the thicker hard lens solution a try! It was the fact I could be so more active that really sold the scleral for me too – really changes my life and that’s not an overstatement!

  128. alohaoba says:

    KC for over 25 yrs. I tried everything from glasses +/- RGB’s, piggybacks and eventually needed transplants in both eyes. I also participated in the 10 year CLEK study so had the progression of KC monitored yearly over that period (at four different research institutions). MSD lenses over the transplants have been the best of anything–less glaring, better night vision, comfort, etc. Starting to decrease my wearing time not because of discomfort but increasing astigmatism leading to bad tension around eyes.
    You can buy plungers on eBay (new). I keep plungers (with a case + vial of preservative-free saline) everywhere in case I need to pop a lens out and put it back in or just keep it out until I get home.

  129. Gail says:

    for all you people out there having trouble putting in your lenses you have get the plunger stand i am a new lens wearer and i got the stand to hold the plunger and i am blown away how quick i insert the lense and how little solution i waste. I found his stand on line for 10 dollars and i am telling you it is the best 10 lollars i have ever spend.

  130. Corey L. Mims says:

    Thank you so much for this website. I was diagnosed with advanced keratoconus about ten years ago. No doctor has ever given me this much information. Thanks alot.

  131. Hey! I realize this is somewhat off-topic however I had to ask.
    Does running a well-established website like yours take a massive amount work?
    I am brand new to running a blog however I do write in my
    journal every day. I’d like to start a blog so I will be able to share my experience and feelings online. Please let me know if you have any recommendations or tips for brand new aspiring bloggers. Thankyou!

  132. Andy B says:

    I have advanced keratoconus (9years), and have had a corneal transplant in my right. Post surgery I was fitted with a scleral lense (just for my right eye) and have been wearing it on and off for 2years. The hardest thing for me was mastering the no air bubbles – it took me a good couple months to actually master putting the lens in and being air bubble free. I still on occasion get the odd air bubble which is frustrating but that’s life and the way I see it is I’ve gone through two operations what’s an air bubble compared to increased vision.

    Just stick with it and no doubt it does change your life. Before the lense I was unable to drive at night due to the glare and ‘hola affect’ of street lights and oncoming head lights. Wearing the lense let’s me drive at night knowing that I am confident to be on the roads.

  133. Justyn male says:

    Hi there I have had kerataconus for 6 years now, had a corneal graft In my right eye, since having this I have had many of infections etc had to have my retnia operated on but nothing as worked so my eye surgeon is talking about removing my eye cos I have no vision. I also have the kerataconus in my left eye. I wear glasses but it does not help at all. I have tried soft lenses before but that didn’t help. Just wandered if u could help me

  134. Charles Hagen says:

    My wife has had her Scleral lenses for a little over a month now. KC both eyes the lenses have definitely helped. We do seem to be having trouble only with right eye at night when she goes to remove the lens it sticks most often and is hard to remove. The result is her eye is very red in certain areas. We are on our second fitting should we be concerned. Her doctor does not seem to be we just keep trying lenses. We are concerned that this redness due to the process is hard on her eyes.

  135. Jon Severs says:

    They can be tough to get out and cause a bit of redness – as long is it is only then and not all day it should be ok. You could try squirting a bit of saline in the eye before taking it out to ensure the eye is not to dry.

  136. S.M.Ingham (Stan) Lic'd Contact Lens Fitter & Refracting Optician says:

    Charles Hagen, in all likelihood your wife will need either the lens modified or a lens that is slightly looser, larger or smaller. Her contact lens fitter will be able to assess the appropriate measure to take. These lenses do work very well. I also fit the Soft KeraSoftIC lenses, and the Soflex soft lens for keratoconus and irregular corneas, these do work very well. The trick as a fitter is to find the lens design, size and material that is best for each patient. Even the eyes are fit individually….. With that said she should be fine.

  137. malcolm says:

    i have transp;ants in both eyes piggybacked in each.last year changed to a miniscleral my right piggback lens and it was tremendous much better comfort and excellent vision.I was so impressed that i changed my left too.Initialy the vision and comfort are great but after a couple of hours the lens fogs up really badly and it becomes a little uncomfortable.I have noticed that when i go from outdoors(where it feels good) to indoors the fog starts to develop, does anyone have any ideas what is causes this. days that i need 2 good eyes for example driving i resort to piggybacking the left which actually gives good vision but a lot less comfort.any help from the experts will be much appreciated
    thank you

  138. Jon Severs says:

    I used to get fogging because the lens did not fit. Also, using a preservative remover worked for when the lens felt grubby and was not foggy but had a lot of haze on the lens.

  139. Kevin Sullivan says:

    No comments on the above, But, I just got a scleral lens for my right eye after having KC 43 years. The right eye had a transplant about 20+ yrs ago and managed well with RGP lenses until recently. The larger scleral lens has been a real positive surprise in terms of comfort and reduced glare when driving at night. So far not too much of an adjustment from the RGP insertion for the other eye.

  140. Stan Ingham says:

    As a very experienced contact lens fitter, (over 30 years ) scleral lenses are my first choice for keratonconus and other therapeutic cases

  141. Vaughan says:

    I’ve just completed the first week with my 2nd set of sclerals (first set were a bad fit but I used them for two weeks).
    Not having used contacts before I’m finding them very irritating but it is getting easier – up to 8 hours today.
    A few questions:
    – Does the cool windblown feeling continue or will that pass?
    – both lenses separate from the eye when I look to the right or left and the lens doesn’t slide under the inner part of the eye – is that typical or a bad fit?
    – when I remove the lenses and put my glasses back on my vision is not as good with the glasses as it usually is with my glasses. In fact, once the lenses have been in for some time, if I take them out my vision is better without the glasses for 3 to 4 hours at which point I need the glasses again. Is that normal or the symtom of a bad fit?

  142. Jeff says:


    I have had scleral lenses for 2 years and I gaurantee you have a bad fit. I had the sam problems with my first 4 or 5 fits. When the fit was finally correct, it was a life changer for me. I never have the windblown feeling and the lens should never “separate” from the eye. I now wear them 14-16 hour days and can wear them more if I want. I hardly notice when they are in. Don’t give up, but you need a doctor who won’t give up either. It is well worth the wait, but I would say you definitely have a bad fit.

  143. Stan says:

    The lenses are not the proper fit. Get back to your contact lens fitter asap. May take very little to correct the problems.
    Ophthalmic Tech/Lic’d Contact Lens fitter

  144. Vaughan says:

    Thanks for your advice guys. Difficult to know at first what’s expected and what’s not right. Back to the doc then…
    Thanks again for your advice

  145. Kevin Sullivan says:

    I’ve been wearing contacts for 44 years and just got my first scleral lens. I was lucky
    first lens fits fantastic. I can wear for extend hours 14 or 15 typical. Only drawback
    was relearning how to insert and remove the lens. It’s very different from the typical gas permeable lens. Hang in there it’s worth the effort.

  146. Juan says:

    Vaughan: from what you’ve described it sounds like the lens may be touching the cornea. Over time this can lead to serious problems. You definitely need to have it looked so that the doctor can make sure that you won’t experience any long term problems from the lens, and to improve the fit if possible.

    Good luck with your lens, they are great once the fit is good.

    Juan M, O.D.

  147. Beth Wade says:

    I have severe dry eye and just got to take home my first pair last weekend. It took 4-5 fittings but I’m not sure if they are 100% correct yet or not…do you have any sign of indention around your eye when you remove them? I thought that maybe I was pushing them in too far. But then it seemed to be worse when I took them out and re-inserted. :-/ My dr is off today but I’m going to try and get another evaluation tomorrow. Luckily he has been very patient! Thank you for the removal video – I had been trying to use my lower eyelid but I think it will be much easier to use the top lid, going to try it today 🙂

  148. Jon Severs says:

    I get indentations sometimes – depends how dry my eyes are and how long i have been wearing. the real sign of not fitting is bubbles/pain/gunge in the eye, but always worth getting a doctor to check!

    And removal/putting in are so difficult, took em ages to perfect, but now it is second nature!

  149. bethwade says:

    I’ve done pretty well today, had them in from 8am-3pm but have been using my saline solution and then preservative free drops, but they are still starting to feel a little sticky now :-/ you said you avoid using drops because they start to feel gunky when you do? I read this on another site: ”
    Reservoir Debris A well-fit scleral lens that is semi-sealed to the eye will slowly pump in tears to replace its liquid reservoir. Unfortunately, tear debris will also enter the lens chamber, which in some patients is subjectively noticeable and can disrupt their quality of vision. The risk for this complication increases with increasing lens diameter because of increased reservoir capacity and slower tear exchange.

    There is significant variation in the amount of debris that builds up underneath the lens among patients depending on lid and tear film differences. Also, some patients are more visually sensitive to the buildup of debris than others are. For symptomatic patients, the only fix is for them to remove their lens so they can rinse and refill it with fresh saline. In a 2007 study, Visser et al found that overall, 48.7 percent of patients wearing scleral lenses (18mm to 25mm) needed one or more of these breaks, and the percentage increased significantly to 66.7 percent for patients who had keratitis sicca. There does not appear to be any fitting change with the lens that can prevent this from occurring. However, having patients fill their lens with a high-viscosity, non-preserved artificial tear rather than with saline may significantly slow down this process. Refitting such patients into a smaller-diameter lens that holds less liquid reservoir and has quicker tear exchange may also be a solution.”
    Problem is…I have no tears!! and smaller lenses did not work for me bc of the way my eyes are shaped. I’m wondering if I try my preservative drops instead of the saline if it would make a difference…ugh. So much to learn. Thankfully I do have some patience 😉

  150. Kameel says:

    It’s nice to find such a personal site on Kerataconus! Scleral lenses really have changed my life as a Kerataconus sufferer too. I’ve setup a scleral lens FAQ site ( where I’m trying to collect as much helpful & practical informaiton on scleral lenses as possible. Would appreciate your inputs (and if possible a link!)

  151. Cesar says:

    Hello, I am from Venezuela and I am 54 years old. I had my cornea transplant when I was 24 and I also have keratoconus in my left eye since the same date. At the end of March I was on vacation in Orlando, Florida when suddenly I developed a hydrops. I went to two doctors at the United States, each one had very different opinions. They were both cornea specialists. The second doctor from Bascom Palmer Eye Institute, told me to use steroids four times a day and Timolol 0.5% two times a day. The last one decreases the amount of water that is inside the cornea controlling the eye pressure. He suggested patience because my improvement will be seen in the next 3 or 6 months. By this time he will define the actual situation of my cornea. A week later when I came back to Venezuela, I visited two other cornea specialists. Both told me that my case was a cornea transplant (second transplant in this eye), none of them told me to wait. I will be back to the United States in the following weeks to see again my doctor at Bascom Palmer because I have come to realize that his opinion was based on exams of all kinds and he seems to have a lot of experience. Also from what I have read in this page I have come to understand this pathology. Lastly I am really thankful for this blog and the amazing information it has provided. I will make sure to keep you updated when I come back from my appointment in the US.

    PD: From all my different doctors’ appointments through the years a cornea transplant is set to last for about 30 years.

  152. Kevin Sullivan says:

    Dear Cesar,
    I’m 61 with KC & had a transplant 25 yrs ago… I cannot speak to the specifics of your condition as I am not an MD. However, from having KC, I have learned that everything takes time. If you have not learned patience KC will teach you to have some. I know Bascom Palmer by reputation and they know what they are doing.

    I would monitor closely your condition and put off another transplant till you have no other options. I have never heard a time frame for how long a transplant should last before… I went to a presentation about KC here in New Jersey last year and one of the speakers was talking about some transplants that had lasted over 50 years. So, I think that it all depends upon the circumstances.

    I hate to ask but is the decision to have a second transplant perhaps influenced by the fee? I have been trying to do business in Venezuela with a distributor for the past 20 years and times are tough. I don’t know how that might influence the decision making process of more surgery or not. I know that there are many very talented and qualified ophthalmologists in Latin America.

    Good luck,

  153. Cesar says:

    Dear Kevin,
    Thank you for your words, I will be seeing my doctor at Bascom Palmer next month. I will forward you his recommendations and comments.

    My best regards,

  154. Cassandra says:

    Hi, I have been a keratoconus sufferer for approx 14 years, I wore glasses for the first few years and then was fitted with the tiny rgp lenses. I loved the new vision but hated the feeling of them, so much so I was unable to wear one in my right eye for four years. During the time of my tiny rgp lense wear I was constantly getting dust in my eye and having to leave work early due to the irritation. luckily for me I went to a keratoconus specialist and was fitted with 16mm scleral lenses about a month ago, I’ve been able to wear them BOTH for two weeks now and are defiantly seeing the world a whole new way! These lenses literally changed my life I am more confident and enjoy playing “can you read that” with my hubby and my children. I am so thankful for these lenses and are ever so greatful for my specialist!!!

  155. Adnan Zafar says:

    Hopes u all are doing great.
    I am Adnan from.Pakistan. i have KC since 2005.
    At first i used tiny regular rgp lenses for almost 5 years.
    Then they just got uncomfortable then my practitioner gave the the litle bulging ” Rose k” lenses .
    Last year there is a developmnt of additional tip in my left cornea and that lense became uncmfrtable thn i used “piggy packing” for a month but did’t worked for me.
    Where as the right eye i am using Rose k type lense but that’s also not a best fit . I have even lost one lense due to fitting issue it fell itself and
    Just vanished.
    Now my practitioner asked me for the Scleral lenses… but unfortunatly he does not practise them…
    Please any one guide me where could i easly get them with the best practitioners.
    And what its cost.
    I have an info about K N PULLUM in London how is realy expert for these lenses.
    Any idea please help me.

  156. Denise Danks says:

    I get mine from Moorfields Eye Hospital in Lomdon. It’s an NHS hospital which does do private work. It also has a hospital in Dubai, which might be more convenient for you.

  157. Adnan Zafar says:

    Thanks Denise Danks,

    but could u please inform me that their branch in dubai are also providing the Sclarel lenses expertise as in London ?

  158. Have you tried the smaller sclarel lenses? If so, is that why you went to larger ones, were they better?
    Im currently wearing the jupiter mini sclarel lenses and they are great. Ive been in theses lenses now for about a month. Ive been wearing contacts for years, so im use to having my fingers in and out of my eyes. The transition into these lenses have been fairly seemless.
    Their is still blur getting through the lenses.
    So im wondering if the vision would be clearer if i had larger sclarels.
    The dr that fit my lenses was fairly new with dealing with special fitted lenses. It took 16 visits total to get me where im currently at.
    Through all the visits we tried kera soft leses, wave lenses, synergise and then the sclarel, which were superior over all.
    My dr’s fees were extremely reasonable considering how many visits i had with him. It was only $1000 for the fittings and $500 for the mini sclarels. We must went through 12-14 pairs of contacts. And he told me he wasnt getting fully reimbursed for all of them.
    My vision is currently 20/20 according to the eye chart. But I dont know if I’m just being picky,”(because i dont know anyone with keractaconus personally)”. The vision is still pretty blurry, like a blurry 20/20, its frustrating to be so close.
    So bottom line I’m just curious to know if you had a similar experience and got better or more crisp vision with the larger ones.
    Im pretty happy with the vision i have just felt like the dr was at the end of his rope with me and frankly i was tired of all the 300 mile round trips.

  159. gauri gupta says:

    Why are my eyes turning red AFTER I take out my scleral lenses. Eyes are fine when I have them on. Its only after wearing them for a couple of hours, 6-7 hours, they turn very red.

  160. Jon Severs says:

    They might be too tight… But you will get a little redness after even with a good fit

  161. Jon Severs says:

    I tried a smaller scleral for a short period but it did not really work for me – apparently my corneas were to steep! I get the best result with these bigger ones but I think it depends on each individual case… Would be worth trying the big ones though to see I think…

  162. Rats says:

    Hi everyone, I am from India and got to know about my condition (suffering from KC) about 2 yrs ago. In Aug’12 I had my C3R done in my both eyes, though my left eye was the severe one and right eye with mild KC. Post C3R my KC in both the eyes is stable but I am observing some deterioration in my right eye vision, checked with my doc and she told that my topography shows that my KC is stable, but I am very concerned with the increased halos in my better eye (i.e right eye).

    Currently I wear rgp in my left eye which are very irritating and most of the time leave me exasperated. Also tried Kerasoft lens but the lens were not of much help. Will try for scleral in some time.

    Halos have created my life in to a real challenge. But I hope to see clear 1 day.

  163. hi i just came across this post i just got fitted with scleral lenses and there are great still adjusting fit with doc due to redness and irritation its been two weeks and all of a sudden they started fogging up the last couple of days i take them out and rinse and replace and im fine for about a half an hour to an hour then they fog up again i hope some one can give me a tip or some advice to fix this i really like the contacts. please help…….

  164. Jon Severs says:

    Get a preservative remover – they are tablets that dissolve in saline in which you stick the lenses. If that fails it’s probably the fit. I use Amiclair

  165. Juan says:

    Before you use a cleaner on the lenses call your doctor and ask what they recommend you use first. Different materials and coatings can be damaged by some cleaners. Just because it works with one lens doesn’t mean it won’t cause problems with another.

  166. malcolm says:

    i am after transplants in both eyes and wore piggy backs in my eyes. last year my right eye was showing staining on the cornea so my eye doctor got me into a miniscleral which does cause a red eye but is very comfortable and i can wear it for about 12 hours a day.i was so happy with it i asked to be fitted as well in the left.after a bit of tweeking the lens and several changes mainly due to misting the lens was good.Suddenly it too after a couple of hours fogged up.. the doctor is not sure why and i have tried all the different solutions and the protein tablets but to no avail.
    Now the right has started to fog up and wearing both sclerals in each eye is dangerous especially whilst driving.
    I now wear my old piggy back system in the left and the miniscleral in the right and when it fogs up it is less of a problem.

  167. Juan says:

    The fogging can be caused by several things. The minisckeral would not be my choice for most post-transplant patients as usually a larger lens is needed to get a proper fit. If you and your doctor feel that the scleral is no longer a good idea you can always consider a hybrid lens like the Ultra Health (from Synergeyes) or a soft lens for irregular corneas like the Kerasoft IC. The soft lens does not usually have as good of vision as a hard lens, but I’ve had some success with them for former piggyback lens wearers.

  168. thank you for all for your advice. this is a great site it helps to know im not the only on with this problem. thanks

  169. Damo says:

    Hi I am 16 years old and have had keratoconus since I was 11 and have had deteriorating vision since.I have tried all sorts of lenses and have had sclerals for 2 years. I have been greatly helped by Ken Pullum at Moorfields.My problem is that I am trying to do an IT course and am struggling with the heat/air conditioning and yesterday when I went to try another college to see if the environment was better I had to leave early since both eyes were sore but the Left was teary and since then my eye has been pink. I have only just started the course and am considering leaving since I cannot cope with the pain and discomfort whilst trying to concentrate and then finding I cannot socialise later because I can barely keep my eyes open. Any help greatly apppreciated

  170. Jon Severs says:

    Have you tried wetting the eyes with saline every so often? Or one of the ‘fresh eyes’ drops you can get?

  171. Denise says:

    Don’t leave the course. Go to a&E at Moorfields straight away or any hospital with an eye dept.

  172. Damo says:

    Thanks for that will go to chemist today to get saline drops to see if that helps

  173. Adnan Zafar says:

    I m 26 nd have keratoconus since 2004.
    Tried almost all kinds of lenses.
    Now i m finally going for seclarlz soon.

    Any thing i want to knw that could help me in supporting the doctor for best fitting?

  174. Robert says:

    I have had KC for the past few years. I was prescribed GP lenses, but they irritated my eyes too much so I went back to soft lenses. Just recently I went to a specialist and tried the “piggy back” method but found that the results gave me double vision. I was able to see better on the eye charts, but I still had the problem of double vision. And when I say I could “see better” I was taking the doctor’s word for it because I didn’t realize a noticeable difference when I had the piggy back lenses on. The lens fitter tried to correct for the double vision, but to no avail. Has anyone here had problems similar to mine who has found success with scleral lenses? I was thinking of asking a doctor about the INTACS procedure, but I’d first like to exhaust all of the non-surgical options before proceeding with the surgical options (e.g. INTACS, corneal transplant, etc). I am a tax accountant so my vision is especially important for my job. I realize that I may not be in the most suitable profession given my eye condition, but then again what jobs that can support a family don’t require good eyesight? Any thoughts or success stories are much appreciated. I just want to find a solution that works for me.

  175. Juan says:

    I’ve refit many piggyback lens patients into scleral or hybrid lenses (such as Ultra Health) and all of them strongly preferred the scleral lenses. I would strongly recommend you try scleral or hybrid lenses.

  176. I’ve been using scleral lense for four years, but in my right eye only. In my left eye, it’s just RGP lense. Though I don’t need it in my left eye, I’ve wanted to get it because they don’t fall out, and dust doesn’t get behind the lense. However, they’ve just so expensive that I’ve held off over the years.

    One thing I’m curious about. I developed hydrops, and haven’t been wearing my lense because it doesn’t have much effect on my vision right now. Has anyone heard, though, that it’s okay to wear the lense with hydrops?

  177. Jon Severs says:

    I left my lens out for around 6-10 months after the hydrops. That said – in the first few days they have me a large scleral to wear to protect the cornea as my eye lids were irritating where it had split

  178. says:

    I got My Mini-Scleral lenses just over a year ago, and I cant’t recomend them enough. I am not saying they are perfect, but they are so much better than anything else I tried. I spent months trying to get normal RGP lenses that fit properly then messing around with the persciptions. Lost at least one, broke another one. I got better vision than with my glasses but it was still pretty poor.

    I asked my optometrist about some other KC lenses I read about on the internet, she suggested sclerals instead. I went in to see the optometrist at the practise who had experience with the Mini-scleral lenses, had a topography done, went back to trial the fitting lens almost 20/20 with no perscription.

    I think the value is not that bad either; yes they are expensive but:
    they don’t fall out
    They give better vision
    They don’t move around on the cornia like smaller RGP can
    small changes in the shape of the cornea don’t mean you have to get a ney fit/prescription
    I have had mine for over a year and assuming I don’t lose or break one will get two years out of one set.

    I reccomend anyone with KC to ask about them if you are not happy with the current treatment, and it’s worth finding an optometrist who has experience with them,

    also, I have little suction things to put them in and take them out.. Get those much easier than trying to use your fingers!!

  179. Suzie says:

    Just got my first sclera lens for my KC today, when I took it out I can see a ring on the white out my eye where the outer edge had been and my eye is sore, is this normal? Did I wear it too long or did it dry out? Any feedback would be welcome!!

  180. Suzie says:

    The white of my eye, sorry for the typo!

  181. bethwade says:

    Suzie, check with your dr but mine said a mild compression ring is normal. It took my eyes a while to get used to the lenses (I wore soft contacts for years before my eyes got dry). Also it may help if you change the fluid midday. I put mine in about 8am, remove/put new fluid in 12-1pm, then remove about 6pm. HTH!

  182. Suzie says:


  183. tanya maile says:

    Thank you so much for posting this. I was referred to get these last week and its my last step before a cornea transplant.

  184. sentinel says:

    Hello…you are just awesome. you made me to know about my disease. .I do suffer from keratoconus..and undergone for c3r….but now am in dilema to opt the lenses…rgp or scleared lenses??

  185. Marisa says:

    Hi. It’s so encouraging to read your prospective experiences. I am now 27 and a keratoconus patient for the past 10 years. I have had two corneal transplants and was wearing glasses until I became legally blind. My doctor here in DC recommended scleral lenses. It is the besttt thing that ever happened to me. The process is long and you have to be veryyy patient but it will be worth it in the end. It took one month to get the right eye done and three months to get my left done because the Keratoconus is more progressive in that eye. My doctor was very patient and even though it was long, stressed out and expensiveee procedure, I couldn’t be more excited and blessed.

  186. Sajad says:

    I am so glad to find this really useful page ad read KC patients comments. I suffer from KC in my left eye. I had a Cross linking operation on my both eyes about one month ago. My right eye is rather ok but my doctor said the operation would prevent the right eye to become like the left eye.
    I am considering using scleral lenses thanks to your positive comments.
    Sorry for the poor English.

  187. Sajad says:

    This is a good article:

    Click to access EVDW-e.pdf

  188. Maurice says:

    I see that the Scleral lens can be used with patients with hydrops. My question is has anyone with hydrops used this? How well was it useing the lens?

  189. Hello Maurice,

    I’m not sure how well useful scleral lens will be with hydrops. I’m on my third month with hydrops, and my scleral lens doesn’t allow me to see the way it’s supposed to. My vision in my right eye is only slightly better with it in then with it out.

    My doctor advised me not to wear it, but every so often I’ll try it on to see if there’s been any improvement. There hasn’t been.

    I hate to say I’ve gotten used to seeing mostly out of one eye, but I suppose I have. I still find this whole process frustrating, and I can’t go back to my life as normal. But I don’t notice my limited vision as much anymore, and if this is cleared up in the next six months, I’d be happy.

    As long as hydrops isn’t some recurring affliction, and every other year I’m not partially blind, then I’ll just chalk this up to a living experience once it’s healed.

  190. Kevia says:

    I do not have KC but I wear scleral lenses. I have congenital nystagmus, photophobia, and severe astigmatism. This is a result of being born with albinism(albino). I was told all my life I would never be able to drive or wear contacts. I found a doctor in Atlanta Georgia who said that they might be able to get my vision high enough to get a license by using contact lenses.

    It took me a year to get used to the process and now I can put them in and out in under a couple minutes. I love how much better my vision got than glasses ever did. But with no melanin to filter the light that comes in i stay in sunglasses.

    Because I’ve gotten so good at them I’m wearing them everyday now instead of only sometimes and recently I’ve started to get mucus on both my eyes in the morning. And pain in the corner near the crease of my right eye and a red ring around the Iris of my right eye. Don’t know what’s going on.

    I use unisol 4 as a saline, Boston fit everyday cleaning, and clear care for the protein cleaning.

  191. K. says:

    Just wanted to say that for those that have tried scleral lenses without success, there is a a new treatment known as PROSE that might be helpful.


  192. Adnan Zafar says:

    Hi All.
    May u all having a great life with ur lenses
    I am 26. Having kc for 9 years.
    Recently 3 months back.i moved to the seclaral lenses.
    Thanks all for your coments and experience u shared.
    I am having a problem with my sclaral lens. It seems like i am addicted to it .
    Bcz my cornea irritates me when i remove the lens. A continuous pain remains in my eye .. but when i have my lens on it just vanished like no.pain..

    Could any one plz help me out.

  193. Stan Ingham says:

    As a scleral fitter (contact lens specialist), you need to see your contact lens fitter to determine if it is the lens fit and/or your technique in removing the lens. Are you using Unisol to apply the lens, your saline may be wrong for you.

  194. Stan Ingham says:

    Prose lenses are the same Gas Permeable scleral lenses, they are made from Bausch & Lomb Boston gas permeable lens materials hence the name Boston Prose

  195. Stan Ingham says:

    Kevin your contacts may need professional cleaning, when your comfort level diminishes please do not hesitate to see your contact lens fitter immediately.
    A change in vision, or comfort while wearing or after removing, get it checked out.

  196. Stan Ingham says:

    For the record there is a number of soft contacts made specifically for keratoconus sufferers who can not tolerate standard size gas permeable lenses, or scleral gas permeables. I have successfully fitted a number of individuals with the soft keratoconus lenses who have achieved 20/20 (6/6) vision and good comfort. I fit the KeraSoft IC, Soflex SoftK, and others with good results. I fit whatever will give the patient the results they need, want and deserve.
    Talk to your fitter.

  197. ADNAN says:

    Thanks Stan Ingham for your kind response sir.
    i am not using unisol. i will search if they are available in Pakistan.
    but if saline is not ok for my eyes than it must disturb me while it is on.

    The removing technique might gave some issues i will b care full with that next time.

  198. Robin Caverhill says:

    I was diagnosed with keratoconus about twenty years ago. I wore soft contacts for a few years more after the diagnosis, then changed to RPGs. As everyone says, RPGs were good vision correctors but a total pain to wear – literally. The lenses themselves hurt my eyes, they shifted around a lot and fell out frequently, and if you’ve worn the things you know what it’s like when you get grit underneath one, it’s excruciating. Finally this year I told my optometrist to find me another (non-surgical) answer, and after some research he decided on scleral lenses.
    Because I’ve worn RPGs for so long, my prescription actually changed a fair amount during the fitting process; the corneas rebound after years of compression by RPGs, like the earth rebounds after glaciers recede. This meant that first my doctor got the correct fit, and then the correct prescription, after the corneas had stabilized. He had to tweak the scrip a few times because the eyes continued to change – one actually improved slightly. I will get my very first correct lenses today, after two months of fittings and trials – very excited! The vision correction is very good and the comfort is fantastic – my eyes feel better with the scleral lenses in, then they do with the lenses out.
    A couple of things I’ve noticed that might help others:
    Compression rings are normal. Mine last over an hour after I remove my lenses, but are gone by morning.
    I know a lot of people swear by inserting and removing sclerals using a plunger, but personally I prefer the three-finger/tripod method – I find it provides more control. If the curve of your lens is very steep, using your fingers might actually be easier.
    I tried using the ClearCare method to ‘make’ my own solution to fill the lens vault (barrel case with catalyst in it, turns H2O2 into sterile water after 6 hours) but the tiny residual amount of hydrogen peroxide in the vault still irritated my eyes. Unisol 4 is not readily available in Canada; I would have to order it through my optometrist and he says the price is prohibitive. I can order it on Amazon but they charge a fortune to ship to Canada. Finally I coerced a friend into buying it for me when he went to the States. I strongly recommend this product – no stinging, it’s not slippery like artificial tears, and it provides very clear vision. I use Boston solution for storage and Unisol 4 to fill the reservoir.
    My lenses have no fenestrations, and if I wear them more than 8 hours, I’m finding they cloud up; once I change the fluid in the reservoir, they clear right up.
    I absolutely love scleral lenses and can tell they’re going to change my life – I can bike again, work outside when it’s windy, use my peripheral vision, and see better than I have in years.

  199. Robin Caverhill says:

    If it’s okay, I’d like to add my optometrist’s name – I know how hard it is to find a doctor who can properly deal with keratoconus. I go to Dr. Viktor Kuraitis, OD, in St. Catharines Ontario.

  200. Scaler so lenses have also changed my life, but insurance won’t cover them. At $750 a lense, it is now prohibitive. Any suggestions? I live near Boston and go to the Boston Foyndation for Sight. Thanks.

  201. Juan says:

    Dr. Lynette Johns is excellent (, and you could also try New England College of Optometry (

    Juan Menjivar, OD

  202. Philip Chmalts says:

    So I just got a scleral lens on Saturday and I cannot believe the vision it gives me. I have severe KC in my right eye and got cross-linking in Montreal last june to see if I could stop the progression and help the vision. I am still trying to get used to putting them in but I honestly found my old Synergize lens to be harder to put in and much more irritable. I just want my brain to get used to seeing again because I have only been relying on my left eye for the 15 years. They are surprisingly comfortable and i basically have to get into this zen yoga like state of mind when I put them in and just be very calm. So far this has been the only thing that as helped. Went from not seeing fingers to 20/25 with this. I hope it works out!

  203. Kameel Vohra says:

    HI Kevia,

    I wear scleral lenses get goo in my eyes everyday too.My doctor had suggested that it might be a mild allergic reaction to the lenses, and prescribed me Restasis eye drops. Since using them I’ve found the redness has markedly decreased and the volume of goo has also decreased, but it hasn’t disappeared.

    You might want to check if you have any other ENT related infections as they can also stimulate your eyes to produce goo.

    Hope this helps,

  204. I wear a scleral lens in my right eye, and got the goo in my eye for about two years before I finally developed hydrops. I don’t know if the two are related, but my doctor also said the stuff in my eye was an allergic reaction. He didn’t blame the lens, however.

    As a result of the allergic reaction, I ended up rubbing my eye more, which is really bad for the advanced condition of my keratoconus. Once again, I don’t know if this led to the hydrops, but I figure it probably didn’t help.

    For me, however, I have no other lens I can wear. I’ve exhausted all other options, so even when my hydrops finally heals, I’ll be back to the scleral lens.

  205. Sara says:

    Hi Todd, sorry to hear about your hydrops. I’ve luckily not had a case…but what I can offer is antihistamine eyedrops. I am lucky that I can still wear (tolerate) corneal lenses, albeit one of them is very big to accommodate the steepness of my cornea and I wear it piggy-backed as the climate where I live is not eye friendly! I have invested in a pair of scerals to use as backup in case all goes pear-shaped as it did about 2 years ago when I could not wear lenses for what seemed an eternity!
    But about the drops….I use these on a regular basis. And if I start to get any goop. I also make sure that I change lens cases and open new bottles of preservative free lens solutions…and I probably get a bit OCD with washing my hands! The antihistamine solution I use is called Zaditen eye drops which contain the active ingredient ketotifen. These are available without prescription in many countries. I know they are available in the UK and Australia. Good luck 🙂

  206. raman says:

    it is a very bad one affecting the eye. is it heriditory ?

  207. Linda says:


    Does anyone know a fitter of sclerals in Hawaii? Also, is there a brand of scleral which is working better than others? If anyone needs a great eye doctor who deals with keratoconus/pmd in Tampa, FL, Dr. Bruce Anderson is great.

  208. Mattie says:

    My sclerals make my eyes red after a couple hours of wearing them and I have also had problems removing the one in my left eye. I can’t break the suction. Do you all feel both of these issues could be resolved with a refitting?

    I went to the doctor today and he gave me the option of the scleral again or trying the synrgeyes or whatever with the soft skirt. Any thoughts or suggestions I would greatly appreciate.

  209. Stan Ingham says:

    Hi Mattie
    You need to have the fit of your lenses assessed. A minor change in the fit may eliminate your problem with redness. A change in your saline may help. As for the removal it may be a bit tight, or your removal technique may be not the best for you. There are some good YouTubes on the correct way to handle them.
    As a contact lens specialist I would hope you would give them another try. I have also found some of the soft lenses for keratoconus work really well.
    See your fitter and good luck
    Stan Ingham

  210. name
    Bettina Lowe

  211. Ashley says:

    There is a new lens that is helping many patients with keratoconus.


  212. William says:


    A have a question regarding the fittings fee, I went over my doctor today to change my lenses from synrgeyes to sclear ones, but she ask me $300 for fitting on each eye, $600 dollars sounds right?
    I never paid that money with the synrgeyes.


  213. Hello William, yes, that sounds about right. When my doctor first told me that I needed scaleral lenses, he quoted me a price of about a thousand dollars altogether for the fitting and the lenses. It takes a long time to get the fit just right.

    I think the price is why scaleral lenses are still a bit unknown by many people. But they *are* very expensive. And I’ve had to get three over the last five years. One of mine cracked within the first two years. Annoyingly, scaleral lenses aren’t easy to remove, and I have a habit of dropping mine when I pop it out with the rubber plunger. Then, a year later, it was discovered that the shape of my eye had become more steep, and I was causing damage to my cornea because the lenses was rubbing on it.

    I think that’s why the fit has to be just perfect. The doctor told me that scaleral lenses are usually given to people who have run out of all other options, and your cornea is really, really sensitive.

    Now I have to once again get another fitting because I’m in my seventh month of hydrops, and my third lenses no longer fits over my elongated eye.

  214. Wanda says:

    I wore soft contact lenses for 40 years. Over the past few years, each change of prescription was less and less successful in correcting my severe (asymmetrical) astigmatism.

    I then tried regular RPG lenses and could not tolerate them for more than a couple of hours per day. So my optometrist referred me to a doctor who fits scleral lenses. I first tried scleral lenses but had a lot of problems with them clouding. Then he tried me in semi-scleral lenses and I love them The acuity is amazing and for the first time in as long as I can remember, I have 20/20 vision. I can drive at night, also.

    I note that many people say they needed a long time to learn to insert the lenses. I did not find this at all. Here is what I use and how I insert and remove.

    I use Clear Care and the case that comes with it to store them in overnight (I read that at least one user on here has issues with the residual peroxide, which was great info to have.). but this is what I use.

    In addition to Clear Care, I clean the lenses using Optimum Extra Strength Cleanser. It is soapy and removes the scum that forms on the inside of the lens during the day. I rinse it with less expensive saline, such as Bausch and Lomb saline for Sensitive eyes, or sometimes even Shoppers Drug Mart Life brand saline.

    For insertion, I use Unisol 4 saline. I first saw it in the USA and bought several packages of it simply because it was the only saline I came across in travel size – and I travel a great deal for work. But I also learned that my doctor sells it as well, for about the same price as Walgreen’s does.

    Here are my tools – (1) a hand towel which I lay on the vanity to soften the landing should I drop one while inserting or removing. (2) a small mirror that I lay on the towel. Given my eyesight, I chose to use a magnifying mirror, but my doctor’s office just uses regular hand mirrors. (3) a rubber plunger which calls a “contact lens inserter/remover” and SoftSert contact lens applicator, which is essentially a rubber ring that slides onto your finger with little rubber cup attached to it.

    I bought my plungers for $2.30 on and the SoftSert cups at my doctor’s office, but I do see them on for around $15 from time to time. I paid about that same amount at the doctor.

    My method: I lay out my towel and get my saline ready. I put down my mirror. I put the Soft Sert cup on my finger and fill it to brimming with saline. I lean over the mirror and look myself in the eye. Without moving my eye around, I carefully raise the lens to my eye and put it in place. I learned quite quickly how to hold my eyes steady. Basically I use my left eye to watch my right eye in the mirror and vice versa. Very easy. (In a pinch, I have used the 3 finger method that someone else described, but it was a bit trickier for me. Practice is probably the key.)

    To remove, I lay down a towel – and make sure the plug is in the sink. I look up and then press the lower lid against the bottom of the lens. Then I look down and, using a plunger dampened with saline, I touch the contact. I try to make sure that my eye is opened very wide and that I am looking down when I remove it. That way, I hardly feel the removal at all.
    I do this looking into a regular wall mirror, not the mirror laying flat on the towel.

    I hope this helps.

  215. Wanda says:

    I do have a question about clouding of the semi-scleral lenses. My lenses get cloudy, not as much as with the scleral lenses I tried, but still cloudy. Some days, I have to clean them a couple of times during the day and other days, I can go all day without it being too troublesome.

    My doctor tried changing the vault of the lens and it helped a bit. Not a lot, just a bit.

    I read that some doctors see clouding like mine in 1 out of every 4 or 5 patients. My doctor says he has been fitting these lenses for more than 15 years and he sees it more like 1 in 10.

    I am wondering if there is anything I can to do help mitigate the problem, say by way of diet, medications or products used.

    Any ideas? Does anyone else have this issue?

  216. Wanda says:

    In Edmonton, Canada, I paid $600 for the lenses and $300 for the fitting. I also bought a third lens with a slightly different diopter for my left eye, so that I could have the option of a monovision set up. It is not perfect, but when I wear that lens, I can read all but the finest print without reading glasses. It makes life much easier for me. When I am driving, or in a new city, I wear the original left lens instead and I have amazing distance vision. (I always wear the same right lens.) So, in total for the 3 lenses and fitting, $1200. Given that my last pair of glasses cost $1200 and did not give me nearly the acuity of vision that I have achieved with the semi-sclerals, I think it is a bargain.

  217. Great post! Been reading a lot about contact lenses. Thanks for the info here!

  218. Wanda,
    We teach our patients to squirt inhalation saline into the edge of their scleral lens to improve midday fogging.

    Some of our patients place 3 to 4 drops of oasis tears plus into the scleral bowl prior to insertion then filled with inhalation saline. Hope this helps.

    Dr. Schramm
    Scleral Lens Fitter
    Fort Lauderdale, FL

  219. Thank you, Dr. Schramm. I will give that a try.

  220. Linda says:

    Hi, I am newly wearing sclerals and the vision is good, but when I take them out after 6 or 7 hours, both my eyes are red (like I swam in a chlorinated pool with my eyes open red) and slightly sore. I have not been taking them out mid day and refreshing the solution. Is any of this redness normal or does it indicate a fitting problem? Any insight would be helpful. Thank you!

  221. Dr. Schramm, I wanted to circle back with an update and to ask another question. I tried to find the Oasis Plus drops here, but reached the conclusion that they are not available in Canada, at least my part of Canada. Now I wonder if you might know what the viscosity is on the Oasis Plus?

    lso, I am intrigued by your comment about squirting inhalatin saline into the edge of the lens. I do have a prescription for inhalation saline, but am not sure what the technique woul dbe for accomplishing this.

    I asked my doctor about the availability Oasis Plus drops. He said he did not think I would be able to find them here and he suggested that I try Refresh tears. But Refresh comes in several viscosities. I tried Refresh Cellusvisc with a viscosity of 1%.

    Using RC, I find that the clouding has improved, particularly in the left eye, which was previously where I experienced the worst amount of clouding. Although it is not eliminated entirely, it is much easier to get through most of the day without cleaning them over and over.

    By the way, when I told my doctor where I heard about this, he said that he knows you and that he will consider your advice for other patients who experience this same issue as me. His name is Dr. Shane Keddie. He is here in Edmonton, Alberta where I love. It is a small world, indeed.

  222. Linda, have you spoken with your doctor about the redness? I wonder if switching to another saline would help? Perhaps you could ask him about the vials of inhalation saline?

    Where I live (Alberta, Canada), it is an over-the-counter item at the pharmacy that nonetheless needs a prescription. I would give that a try, first.

    Also, make sure that you rinse your lens with a saline for sensitive eyes.

    Are you sure it is not an eye infection? Does the redness clear up after removing the lenses, say, overnight? What is your storage routine for the lenses?

    I know some people store them dry. But I have a lot of protein in the fluids in my eye, and so I clean my lenses with Optimum Extra Strength cleaner and soak them overnight in Clear Care.

    Not sure if this helps you or not, but I hope you can get it resolved.

  223. Timothy Craney says:

    This site helped change my life. So here is my story.

    I was diagnosed with Keratoconus 33 years ago at age 12. 27 years ago I had a cornea transplant on my left eye and 25 years ago the right eye. Both due to scarring of my corneas. Even after the surgeries, I was still almost legally blind without corrective lenses. Speaking of corrective lenses, I have a plethora of hard contact lens pop-out stories from the playground when I was little, to driving at night, to popping out while I was delivering a discourse to hundreds of people. And the pain! Burning, dust, eyelashes, bright lights. 33 years of suffering (but surviving) with gas permeable contact lenses. For years I thought I was the only one. Now I know I was not.

    Last Friday I picked up my Scleral contact lenses. After over 3 years I am experiencing a world without burning corneas, light sensitivity and dust that feels like shards of glass in my eyes. I can look up, to the side, and sustain eye contact with people without the embarrassment of my lenses popping out. Each morning I wake up and I honestly have a momentary surge of panic that yesterday was really just a dream and I have to go back to wearing my RGP’s. No exaggeration. I never fully realized how much misery and discomfort had just become a routine part of my life. I am not complaining, just telling my story.

    Inserting and removing the lenses are easy with a little practice and determination. My vision is nearly 20/20 in each eye. I am up to wearing them 12 hours a day, and I have experienced some cloudy halo effects. I go see my Dr. again tomorrow. Hopefully this can be rectified, but if not, I can live with it!

    My wife keeps asking “Why didn’t you hear about them earlier?” “Why didn’t you hear about the earlier?” I’m just happy I have them now.

    These lenses are expensive. But if you can afford them, and if what I have described rings true for you, give these lenses a try.

  224. Timothy Craney, please let me know if your doctor has some ideas about the clouding. I had a lot of problems with it when I tried the scleral lenses. Then my doctor moved me to semi-scleral lenses and it was marginally better. I posted about it on one of the threads here, and Dr. Schramm suggested to use one or two drops of Oasis Tears Plus in the lens, instead of saline, when inserting.

    Oasis Tears Plus does not seem to be available in Canada. So I asked my own Dr about it and he suggested using Refresh tears. I did not realize how many kinds of Refresh tear products there are. After some trial and error with the various refresh products, I have found that putting 2 drops of Refresh Ultra will let me go most of the day with no clouding or, at worst, minimal clouding. I still generally take them out at dinner time, clean them and re-insert for the evening. But it might be worth asking the doctor about it, if he does not have a better idea. I would ask about Oasis Tears Plus, first, in case it is going to available where you live.

    Because I do have debris/protein in the fluids in my eye, I clean the lenses each night with Optimum Extra Strength cleaner. I buy it at FYI Doctors in Edmonton or at Walgreen’s in the USA, when I am there. Then I soak them overnight in Clear care, using the vial they provide in the box with the Clear Care.

    I don;t know if this helps you at all, but I hope it does.

  225. Timothy Craney says:

    I am using the same products you listed. For the clouding, because a ‘film’ sticks to the lenses, my Dr. recommended I give the lenses a good finger-scrubbing at night with the Optimum cleaner. Interestingly, before he told me this, that is what I did last night and the night before and I didn’t notice any clouding until late in the day.

  226. Your clouding sounds very similar to mine. If I touch my finger to it, it will come off on my finger. But I do use the Optimum cleaner at night, and also use it if I have to clean them during the day. I just make sure I rinse them super well before re-inserting. I wish there were some way to control it.

  227. Pete says:

    I posted here back in 2011 and I’m still wearing Scleral lenses and doing great. After wearing them for a few years I’d highly recommend using the “plunger” to put them in. I’ve only had to do it once without a plunger and I found it very difficult. My optometrist has me use Celluvisc for insertion (preservative free eye drops). This works really well, but could be expensive for some as each vial costs close to 50 cents (which means a dollar a day just to insert if you don’t mess up on the first try). I also use some generic preservative free eye drops throughout the day to rewet (which my Optometrist says is a good preventative measure and so far she’s been right; I’ve had no issues at all). If your health insurance won’t pay see if you can get on a VSP plan. They will pay for one set of Scleral lenses a year.

  228. Tanay Bag says:

    I am a Keratocouns patient and I’m using Rose K lens for years now. It is OK but the big problem is that I was advised to use the lens for max 12 hrs a day. So what I do, I do use it for 12 hrs and the keep it in solution for 2 hrs and then again ware for it another 3/4 hrs. That 2 hours is a real frustration for me !!

    If I go for Sclera lens, can I ware it for 16 hrs continuously ? Could you please let me know.
    Thanks in advance.

  229. If I were you, I would ask your physician about it, to be sure. My condition may be different than yours, but my doctor told me that there was no problem to wear it for up to 18 hours a day. He likes me to soak them for at least 6 hours at a time.

  230. Wanda,
    Sorry for the delay, I didn’t get an alert from the tread. I am not sure the viscosity percentage, but oasis tears plus is thinner than celluvisc and a tiny bit thicker than optive. I’d say Refresh Optive pres free is the closest thing to Oasis. They both have hyloronate in them, Oasis has it in a higher concentration.

    According to a recent study on 500 eyes, 90% of patients with fogging while wearing scleral lenses, resolves after two months.

    If you have any interest in seeing a clip from one of my opthalmology scleral lectures, click here

    Dr. Nathan Schramm
    Scleral Lens Fitter

  231. Tanay Bag says:

    Hello Every One..

    I am a KC patient and thinking to go for Scleral lenses. I have two questions in my mind –

    1. In a day how long I can wear it continuously ?
    2. A pair of Scleral lenses can be used for how long (in years) ?

    My KC condition is not at very early or advanced stage.
    Can any body who is already using Scleral lenses or any one who is an expert, can let me know..
    Thank you in advance!


  232. Rav says:

    First of all great site!
    @Tanay…I’ve recently been fitted for Scleral lens after going through pretty much everything listed on this site. I’m easily getting 12 hrs a day, these worked so well I actually had an emotional breakdown. Never ever been able to see this well or this comfortably. I can still notice the lens being in my eye but no more abrasions etc.

    I’ve had them about 2 wks now. Didnt have to build up really, after the second day i was able to have them in all day long.

    as for longevity, i can’t help you on that one, my doc has stated that with care and constant cleaning i should get a 1-2 yrs out of them assuming the prescription or shape doesn’t need to be changed.

  233. Rachael says:

    Hello –

    I am 39 years old and was just diagnosed with KC. I have tried RGB and piggyback lenses and have now been fitted for Scleral lens in both eyes.

    My doctor has indicated I will have to wear the Scleral lenses and then glasses to correct my astigmatism. Has anyone heard of this approach before? My doctor said they will correct the astigmatism with the glasses.

    I appreciate any information from this group – this website is a relief of information!


  234. Did he say why? I do not know whether the kerotoconus impacts the ability of the lens to correct astigmatism, so I will be cautious in answering. BUT I have severe astigmatism and have been able to get 20/20 vision with the scleral lens. I have never had such acuity of vision as with these lenses. I am 61 years old. The only glasses I wear now are reading glasses, for close work. I would ask some more questions, personally, to be sure i understood if that is really the only option.

  235. Jon Severs says:

    They can sometimes try and use glasses on top of lenses to get the right refraction of the lens cannot do enough to correct. But like Wanda my eyes are pretty bad and they have been able to make it so the lens does all the work.


  236. Timothy Craney says:

    Ditto what Wanda and Jon said. I have severe astigmatism, and the Scleral lens alone have given me near 20/20.

  237. Jeff P says:

    I had lasik around 15 years ago and was diagnosed with ectasia (karatoconus) a few years later. I went through the whole corneal lens then piggyback then scleral progression and absolutely love the scleral lenses. I do wear glasses on top of my scleral lenses to clean up a bit of astigmatism that is left over. The lenses alone provide very good vision; however, I work on computers and the glasses add a bit of clarity. In fact, my right eye is 20/15 with the glasses. I recently had CXL done on my left eye (it has never liked wearing contacts) and am now going through the process of getting refit with a scleral in that eye. It has been 3 months since the CXL and my eye is actually tolerating the lens a lot better than it ever has in the past. The vision isn’t as good as my right eye (20/25, so far). If we are able to correct my left eye sufficient for me to live without a lens in my right eye for a few months I will probably go ahead and do the CXL in my right eye. I hate this stupid disease! 🙂

  238. @Rachael, your eyes may have some internal astigmatism that is not corrected with the scleral lens. Some scleral lens companies make a design called a front toric that can correct the remaining astigmatism. We charge more for this design because it takes more time to get the fit correct due to possible rotation plus that type of scleral lenses are more expensive to manufacture. It may be easier for you to just get glasses, rather than start from scratch with another scleral lens design. Good luck!
    Dr. Nathan Schramm

  239. Rachael says:

    Thanks for the feedback and insight. This website has been super helpful in understanding/learning more about KC (I very frustrating part of my life). I ended up calling my Optometrist after all the fantastic information to ask more questions. My Dr says one of the main reasons I need to use glasses too is because I have 8 diopters of correction required… the MSD lenses are correcting 6 (which he says is very good) and the glasses need to correct the other 2. With lenses I can see 20/40… although I have not received my order yet.

    FYI Wanda – I am in Edmonton too. Who was your Dr.?

  240. Rachael, I go to Dr. Shane Keddie at FYI Doctors on Calgary Trail. He is very smart and very patient. He jusy kept trying until we hit the optimal prescription, vaulting of the lens, etc. I had a lot of issues with clouding in the beginning. Between the advice of Dr. Keddie and that of Dr. Schraam here, I am now doing very well in that particular regard.

  241. Nathalie says:

    Thank you so much for your amazing experience. My husband has the same problem and he is now using scleral lenses. His vision has increased tremendously. He used to put them on with a plunger but after watching the videos he’ll now try his own hands! Best of luck to you!!!

  242. Jon Severs says:

    Wish him the best of luck from me!


  243. Rachael says:

    Hello – I just received my MSD lenses yesterday. I’m hoping someone can help me understand. I see better with my glasses (which isn’t great as it is). With the MSD lenses there are shadows (plural) which makes it hard to see anything. My right eye is my strong eye and I see not bad with it (no glasses/lenses) and with my MSD lenses it is much worse. My left eye is the issue eye… on it’s own with glasses I cannot read and with the MSD lenses I cannot read. My Optometrist indicated I need to get used to the lenses and we may need to slightly adjust the prescription. But I cannot function with these lenses in – not safe to drive, I cannot read a computer screen (required for work)… etc. with the MSD lenses. He indicated it is my astigmatism that is the issue. All I know is I am so frustrated as I thought I would see better with the lenses… can someone please shed some light or help me understand what I should expect in this process? And one last question – the lenses feel like they are putting uncomfortable pressure on my eye. I do not have a white ring – which I understand means they are too tight. But I would not call them comfortable. Is this something to get used to? Thank you for any responses. I am so frustrated.

  244. Jeff P says:

    Rachael, I have been using mini scleral lenses for years and it often takes several different fit of lenses before getting a comfortable lens that provides good vision. Also, in my experience when you first get a lens they tend to have a film on them that needs to be cleaned off before you can see your best out of the lens. Once the doctor is satisfied with the fit of a new lens it will usually take me a few days for my eyes to adjust to the lenses and for me to see my best out of them. Also, for my eyes the scleral lenses do not take care of all of my astigmatism so I wear glasses on top of them to make my vision crisp for computer work. Another thing is that my lenses do need to settle on my eyes for an hour or so before I see really well through them. They are often a bit blurry when I first put them on in the morning but then get pretty crisp after an hour or so. If the lens is still uncomfortable to you after 2 weeks of regular wear I would have the doctor take a look at the fit again.

  245. RonnieoSullivan says:

    Hello. If any of forum members have the opportunity to wear semi-scleral lenses Rose K2 XL with Menicon Z material? I’m after a corneal transplant, and I have a problem with the ingrowth of blood vessels in the cornea as a complication of the piggyback. Is it a comfortable lens and Gas permeable enough?

  246. I wear semi-sclerals, but I forget the brand. However, I have to swing by that office this AM and will double check the brand. I love mine. I find them super comfortable and the accuity is amazing.

  247. […] בלוג – החיים עם קרטוקונוס […]

  248. Timothy Craney says:

    Hey gang, just came across something that’s probably a no-brainer for some of you but news to me. First off, I still love love love my scleral contacts lenses. But I have been having a problem with clouding on my left lens. When I take it off, I can actually see the clouding. For the longest time I thought it was a protein buildup one the interior of the lens, so I would scrub and scrub and scrub (I think a throw back remedy from my GP lens day). No, at least in this case it was the exterior! I ended up simply removing the lens, rubbed the outside with some solution, and it came right off. Popped the lens back in, crystal clear! Like I said, probably a no-brainer for most of you, but there it is.

  249. I am glad that you figured out your issue with the cloudiness. Or at least, how to deal with it. My clouding is on the inside of the lens. I usually have to remove it and clean the cloudy film off it, then rinse it with saline to remove the soapy cleaner before reinserting. (The film on the inside is almost sticky to the touch.) I also use Refresh Ultra drops to fill the lens for insertion. When I use saline to fill the lens, it becomes cloudy within 15 – 20 minutes of inserting it. With Refresh Ultra, I can get by with cleaning once, about midday. Occasionally, I will get a full day of wear without having to remove them at all.

  250. Jeff P says:

    I was having cloudiness issues shortly after inserting my lenses and switching to lobob optimum extra strength cleanser for my nightly cleanings and then soaking in clear care took care of the issue. I can now go 9-10 hours before I feel like I need to take my lenses out and put in new saline. I think I found that suggestion on this site.

  251. sp says:

    came across the site today; amazing collection of experiences.

    ive had k for about 10 years and also went through the horror that was wearing rgps. finally was introduced to scleral lenses about 3 years ago, which was definitely life-changing.

    ive been using unique ph to clean/store the lenses and unisol for insertion. also i use the supralens daily cleaner nightly and clean the lenses about once a week with the lobob extra strength cleaner. i found that this regimen worked pretty well for a few months before i started getting a foreign body sensation in one of my eyes when wearing the lenses, as well as fogging of the lens within a few hours of insertion. i also developed intermittent blepharitis, likely due to rubbing/pulling at the eyelid to potentially relieve the foreign body sensation while the contacts were in. the blepharitis would eventually resolve on its own; however the experience with the foreign body sensation has been fairly annoying.

    consequently i recently started using the lobob cleaning and disinfecting solution for my lenses instead of unique ph as it seems like a stronger cleaning solution; we’ll see how it goes

  252. I use the Lobob ESC Cleansser daily before putting the lenses in Clear Care for 6 hours. I also have clouding during wear. I usually remove the lenses part way through the day, clean with Lobob cleaner, rinse copiously with saline and reinsert using Refresh Ultra drops. If I fill the lens with saline, it will cloud within 20 minutes. Using 2 drops of Refresh Ultra, I will get approx 6 hours of wear before having to clean again. On days when I don;t work at the computer, I can often get longer between cleanings. This leads me to believe it might be related to how frequently I blink. Yet, the build-up is on the inside of the lens.I stopped asking why and just go with what works.

    I do use Unisol 4 saline solution, ut it does not work well for me for filling the lens prior to insertion. As I say, the lenses will cloud within minutes.

    If you are in Canada, maybe the Refresh Ultra is worth a try. I say in Canada, because I have not found Refresh Ultra anywhere in the USA. They might be there, but I have not found them in the places I travel to. Perhaps it has another name in the USA?

  253. Tony says:

    Hi everyone 🙂

    I am 22 years old, and have an advanced kc in my right eye. It’s 5 days now that i put my scleral lenses, it’s a little bit itchy and my vision is not 100%. Is there a chance that it will be more comfortable and see better, or i must go to my lense doctor and fit a new scleral lense? Finally when i remove it at night i see a scleral print on my cornea that fade away the next morning, is this normal or should i change my lenses?

  254. Tony, I think I would see the doctor for a progress check. The pressure rings are normal, but the lens should be comfortable. He may need to tweak the vault of the lens and the power. It took about 3 or 4 tweaks before mine were perfect.

  255. khalid says:

    Hi All,
    I was diagnosed with keratoconus before one and half year ago.Now I am 28 years old.during this period I tried RGP contact lenses but I faced a big problems with it because my corneas are sensitive and the worst moments were when the lenses become dry due to air in that time I was feeling the lenses like a knife in my the doctor adivsed me to try ultraheath hybird contact lenes.

    Now I am using the ultrahealth,my vesion in the right eye is about 75% and in the right eye about 90%,with both eys is about 90% which is very good.I have been using this lenses for 6 months .but before 2 months my right eye became dry so I have stoped using the lens in this eye

    So now i am wearing only the lens on my left doctor is trying to solve this problem,but he advice me to try the sclera lenes,according to him the sclera lenes will be more confotable than ultraheath since it will not stand over the cornea.but I have many concerns about this lenses
    So please I need yours help to answer my questions:
    1- during the last period ,no one person noticed that I am wearing a contact lenes(RGP or ultrahealth) what about sclera lenes?is it easy to notic it in my eyes?how my eyes will look with sclera lenes?

    2- one person told me it is easy to move inside eyes,and in this case the solution will go out and you need to refill it?is this correct

    3- I am suffring from glare at night spically from cars light?does the sclare lenes reduce this glare or it is same like any other lenes?

    4- which brand is better?
    5- when I wear the ultrahealth my eyes become red little bit ?will the sclera lenes do the same

    6- for people who tried the ultrahealth and sclera lenes?which one is more confortable?which one you recommand?

    Please I need your help and your experince
    I have tired from changing the kind of my lenes each few months

  256. Khalid, I would not worry about anyone noticing the lens while it is in your eye. I have worn various kinds of lenses for more than 40 years. Occasionally, someone will remark about it> But so what?

    You may need to have the lenses tweaked a bit at the beginning to get the best vision that is possible for your condition. If you find the vision is not as sharp as he indicates, such as continuing to have aura around lights at night, then discuss with him whether it is realistic for this be corrected or not.

    When I wore soft lenses, which was for about 38 years, I ALWAYS had an aura at night. I learned to live with it over time. With my scleral lenses, I finally realized what a “point” of light really looks like. Amazing acuity!

    My eyes are actually healthier with the scleral lenses. Again, discuss redness and discomfort with your doctor.

    I am not sure what you mean by the solution spilling out. You were likely taught to insert the lenses with them filled to almost overflowing. When you do that, there will be some solution that is pushed out, for sure. I use a solution in my lens that requires just 2 drops and I still have some solution come out on insertion. There is a very small clearnace between the surface of your eye and the dome of the lens. You do not need much in there.The lens should still be comfortable, if it is fitting correctly.

    I don;t remove them because they have no solution inside. But I do remove mine part way through the day and clean them to remove a layer of cloudy scum. I am one of the few who have issues with clouding.

    I would have a chat with the doctor and the fitter, if I were you. They should be able to answer your questions and address your concerns.

  257. khalid says:

    Hi wanda,

    Thank you very much for your replying.I mean with solution come out: that when you are wearing the lenses how is the stablity of the lens inside the eye?does the lens move inside the eye which causes the solution between the lens and the cornea to come out and in this case the lens become inusful so you have to remove it and fill it again with the solution?if this happens,how often it happen?

  258. Wanda Jollymore says:

    No, I do not notice this happening. Some days, I wear the lenses all day without removing them, if there is no clouding. I never have to remove them because they are dry or uncomfortable. I only remove them if they require cleaning from the clouding. I wore soft contacts for decades. The scleral lenses are much more comfortable and “lower maintenance”/less worry while in the eye.

  259. khalid says:

    Hi Wanda,

    Thank you for your clarifications.realy your answers are very helpful.

  260. Wanda Jollymore says:

    You are most welcome, Khalid.

  261. Sue says:

    Hi all
    Its good to read all your comments on scleral lenses. I have had keratoconus for 12 years. I have it in both my eyes but my left eye is very bad. I have worn rigid contact lenses for quite a few years, but the lens in my right eye wont stay in for some reason I think my cornea has worsened. It was hard enough getting a good fit last time I had them fitted. So i dont think I will be able to wear one anymore. I am seeing my optometrist on friday after waiting nearly two weeks to get an appointment, I am worried I may need to try scleral lenses. I must say they scare me. I really don’t know how I will put them in. It took me long enough to get used to hard contact lenses. Reading all your comments I have hope that I could get used to them but its going to take some time. Its amazing when people have watched me put my hard contacts in and say I don’t know how you do that. I could never do that. Which is what I used to think, but when you don’t have a choice you have to get used to it or not see. I will just have to wait and see what my optometrist says. Wouldn’t it be nice if there were some simple cure for this disease. Unfortunatley its a long process.

  262. Timothy Craney says:

    Sue, please go back and read my post. I’ve had keratoconus 34 years, wore RGP lenses for the same period, and cornea transplants in both eyes, I thought I was the only one, but then I found this post. I’ve had scleral contacts lens for 8 months and they have literal changed my life. Do not be intimidated. Scleral lens are a good thing. And like I said, with this post, you are not alone. Just come back here if you have any issues.

  263. Wanda says:

    Sue, do not be afraid of scleral lenses. For myself, the insertion was not difficult to learn. I had worn soft lenses for more than 35 years and had to move to RPG lenses, which I could not tolerate. So the doctor moved me to sclerals. Personally, I find that scleral lenses are easier to remove than the RPG lenses and no more difficult to insert. I use a plunger to remove them and a finger cup to insert them. Your physician will show you how. The lenses themselves are actually more comfortable to wear than even soft lenses were, because they do not dry out, and they are definitely more comfortable for me than RPG. The acuity is amazing, unlike anything I had ever achieved in the past. That for me is the big selling point. Good luck on Friday!

  264. Prachi says:

    I got my scleral lens yesterday. they are good. I am wearing them since morning and at the end of the day I am feeling lots of strain on lower corner of both the eyes. They are red like some tissues are tight overthere. Is this a common adaptation symptoms?

  265. Wanda says:

    See what happens after another day. If you continue to have the sensation of tightness, please check back with the doctor. Many people, myself included, needed to have the fit of the lenses tweaked a bit before it is perfect. They should feel almost like you have nothing in your eye, most of the time, just like soft contacts feel like they are not there most of the time.

    Other than that, I am glad you are happy with them. Did you find it a challenge to insert or remove them? I recall you were a bit apprehensive about that part.

  266. Prachi says:

    Thanks Wanda. I wanted to share few of my experience. I am 31, I have advanced KC in right and early KC in left. i was using Rose K2 from last 4 years and was kind of ok with them except there was lot of sunlight sensitivity and irritation when outdoor. My optometrist always told me my eyes adapt lens very well. I never had any kind of problem earlier regarding fitting.

    Now I am using Scleral from last 3 days. Vision is great. Regarding insertion, I am facing a little challenge but it is improving with every try. I think I will master it in next few days.The key is the wide opening of eye. Removal is no problem at all.

    While I put them in morning, I felt good but I started feeling pressure on top of my eye somewhere around noon. and I felt the vision is also going little blurry. I went to optometrist technician (Dr. was OOO) today with Lens on for 4 hours, he found they are perfect fit.
    As soon as the wear time is increasing, it is giving me pain and tightness in top of the right eye while closing the lens. Its not irritation, it pain as something heavy is pressing a portion of my eye. He gave me refresh tears to see if that works. Next time I am thinking to go to them (he is just 20min away from my work place) as soon as I feel red eye symptoms. Technician told me it could be adaptation symptoms. Stay tuned. will share some more experience and would like to have your views.
    Another observation is as I remove lens, I see my lens is really dirty as the saline under it is loaded with something may be particles.
    And after removal, I feel a ring around my eye like a deep impression left by the scleral lens. Is this normal? This impression stays for a while.

  267. Usman says:

    I have a question for those who know scleral lenses very well.
    Basically, when i get new scleral lenses, they work fine for about 4 months. However, after the first few months the lens start to irritate randomly during the day and my eyes get extremely sore and red. Any idea why that is? It seems to me that the lens also change shape after a while so the fitting becomes less effective and so maybe the corners of the lens interfere with the eyelids?

    Any info / advice would be much appreciated.

  268. Jon Severs says:

    Sounds like either your cleaning/saline solution is wrong/ineffective or you are rubbing your eyes and getting blepharitis.


  269. Robin Caverhill says:

    Prachi: You might want to ask your doctor about fenestrations in your lenses. The following is from a publication called ‘Contact Lens Spectrum’:

    “There are several advantages to fenestrations in scleral lenses. Fenestrations are physical holes in the lens, and therefore increase fluid and air exchange. This prevents suction of the lens to the globe and enhances lens removal. Furthermore, fenestrations allow for more oxygen permeability to the cornea, resulting in further prevention of corneal edema, dehydration, and neovascularization. As a result of increased tear exchange, fenestrations reduce the accumulation of metabolic waste products between the scleral lens and cornea with increased wear time.

    Conversely, there are disadvantages to fenestrations as well. Fenestrations expose the tear layer to the outside air, which can result in both patient discomfort and blurry vision. Patient discomfort results from small air bubbles entering through the fenestration, which can lead to corneal compromise with increased wear time. The bubbles can also make the fitting process more difficult as well. Fenestrations also allow the passage of mucus and/or lipid from tears, which ultimately gather in the tear layer, resulting in blurry vision.”

  270. Jackie says:

    Just got scleral lenses for both eyes yesterday. Very happy to have successfully inserted and removed them after 4 hours wear time. Hoping to increase it by an hour or two tomorrow. Reading all your blogs gives me lots of hope of success with them which will mean no grafts. Fingers crossed.

  271. Harden says:

    Hello. I have a question concerning the semi screlal lenses. How easy to remove of the eye should be the lens?I think mine is too loose. What are your experiences?

  272. Scleral lenses should be fairly easy to remove this a plunger after your have added some saline to the eye and used your pointer finger to press gently at the lower lid and scleral edge to break the suction. Then put a drop on the plunger and press perpendicular to the eye on the outer edge of the lens. Think about opening a cabinet door, NOT plunging a toilet!

    Scleral lenses are too loose if they feel very uncomfortable when you blink or if they pop out of the eye. I have never had a patient tell me their scleral lens just popped out but I have had scleral lenses pop out in the exam room while I was working on a scleral lens fitting because I started with too small a diameter.
    I hope this helps.
    Dr. Nathan Schramm, OD, CNS, FSLS
    (One of less than 50 fellowship trained Scleral lens fitters in the USA)

  273. I agree with Dr. Schramm. They should have a nice tight fit and you will need to ‘break’ the seal’ to remove them. I would go back to the doctor for a fit check.

    The plunger is very easy to use. I usually place it on the lens off centre and gently lift. It practically breaks the seal that way, itself. Open your eye wide and lift away from the eye. The lens are large and the top part might touch your eye as you remove it. It won’t damage you, but it might feel a bit uncomfortable when it happens.

    Personally, I find these lenses the most comfortable I have worn in 40 years. Much , much more comfortable than soft lenses, even. So if you feel it is loose, it probably is and the fitting needs to be tweaked.

  274. Lorietta, Malta says:

    Hi I have a question for scleral lens wearers. Apart from having keratoconus, one of my corneas has a scar. Anyone like me? Cause I’m considering trying scleral lenses. And how do you find these lenses? From what I’ve been reading, they DO make a difference for our vision, considering that from my right eye, I do not “see” anything!!.
    Thank you once again for your support.

  275. Anuj says:

    How long can mini scleral lens last? My optometrist tells me with proper handling I cam wear them for 4 – 5 years. Apparently The the lenses will be plasma coated on the surface and can be re polished in a couple of year to make them last longer.

    Also if I wear them through out the day 15 hours, without changing saline, will they cause giant papillary conjuctivitis?

  276. Ashish says:

    I have KC in both eye, got cornea transplant in LE, and its fine now..done C3R in RE in 2012 and wearing RGP lens in both eyes…but since last few months i am getting mild pain in RE while putting lens, my dr told me thats bec of Scar of c3r, and there is no solution of that. My vision in RE is not great with RGP..Is it good option to try scleral lens in RE? if yes, can i get in oman or in india?

  277. Ashish, why don;t you ask your doctor about scleral lens and ask for a referral to a doctor who fits them. When I could not tolerate RGP, My optometrist referred me to a specialist who does sclerals. Certainly, you would find them more comfortable than RGP. I cannot say whether you would get better vision. I did, but each person’s situation is different.

  278. Hector says:

    Hi, new on sclerals after piggy back for the last few years, right eye with c3r and cxl 3 yrs ago and a scar in the center. Due to all the good experiences I read evry day I decided to try them. Some weeks of use tells me that they’re very comfortables, but no better sight.
    are there different types of sclerals? Why I cannot see better with them?

  279. chemprachi says:

    Ashish, When I was consulting in INDIA, doctor never told me about scleral. may be because of its cost which is around 2 lacs in Indian currency (some friend told me, not sure). But it lasts for 2-3 years. I was using RGP before scleral. It makes a huge difference. you should consult for Scleral lens as RGP may scar the cornea further. Saline water in Scleral lens gives cushion to cornea and prevents further scaring. I am using Scleral from last 45 days and couldn’t feel better than this. vision is same as Rose K RGP I was using. No dropping of lens, lesser light sensitivity and no irritation through dust as it covers the eye completely.

  280. chemprachi says:

    Hector, I am not a doctor but my doctor told me that my vision in scleral will be same (or lil less) than Rose K RGP. RGP presses the cornea to make it more flat which may increase the vision. Scleral lens do not presses the cornea.

  281. chemprachi says:

    Anuj, Not sure about mini scleral lens. I don’t think they can last so long. I think you should ask this question in Doctor’s forum where they answer one question for free.

  282. Connie says:

    Hello, I just learned that the manufacturer of Unisol 4 preservative-free saline solution (Alcon, I believe) is discontinuing this product. I’m having a heckuva time finding another non-preservative saline! Please post with names of other brands if you know of any. Many thanks.

  283. Chemprachu says:

    I searched on internet for verification of whatever u r saying. Didn’t found a single article. If you have any please share. Else chill !

  284. I sent an email to Alcon Media Relations Dept asking about this rumor. I will keep you posted if and when I hear back from them.

  285. sir/madam,
    I am a medico.i suffer from keratoconus of both the eyes.i have been diagnosed for keratoconus viz the topography.Its in progressive condition.I also have undergone the cornea collagen cross linking with riboflavin in situ uv rays six months ago.I have been using my glasses. but i am very uncomfortable with in the eyes has been bad.i am afraid i wouldnt able to focus my studies as am in the medical academics.can u please tell me whether my eye sight be corrected with the rigid gas permeable lenses or scleral lenses or the piggybank lenses which s a combo of soft lenses and RGP lenses……?????¿

  286. Akshay,
    Good luck in your medical studies. We fit patients in Scleral lens very frequently after crosslinking. Sclerals do not run against the cornea and the
    microtrauma from an rgp can contribute to the progression of keratoconus. To find a highly trained fitter go to
    Good luck!

  287. *”Rub” not run! Sclerals don’t RUB against the cornea.

  288. Chemprachu says:

    Hi akshay. What’s the stage of your keratoconus? What i have learned from my KC is about acting quick n have a right fit n regular checkup. What’s ur location? I was using rose k in India which were kind of OK for medium KC cost under INR 30K last around 1.5 yrs. Sceleral is no doubt a much better option but its expensive in india but lasts much longer. Not covered by insurance being in India. Try checking both the options n get your lens done. I m sure you can get good vision. It’s life changing experience. Let me know what other info you are looking for.

  289. Lorietta, Malta says:

    Now I am using Scleral in my right eye (kerasoft in my left) for the past 4 days. Vision is great although not yet perfect. Doctor is seeing me again in a couple of days. Yes Ravi, I can see ants and our cat’s fur on the floor! lol!
    Regarding insertion and removal, I am facing a little challenge but it is improving with every try. I think I will master it in the next few days.
    When I put them in the morning, I feel good but I start feeling pressure on top of my eye somewhere around two hours after. I’m on a trial of 4 to 5 hours with it right now.
    As soon as the wear time is increasing, I start feeling a tightness at the top of my eye. It’s like an irritation, sometimes, a burning sensation, it’s like as something heavy is pressing a portion of my eye. I’m using refresh tears but it only works for a few minutes.
    Could this be adaptation symptoms?
    And after removal, I feel a ring around my eye like a deep impression left by the scleral lens. This impression feeling stays for a while. After removal, I also noticed some redness but only once during these past four days. I’m not sure if this is due to the fact that I’m not used yet to removing the lens properly.
    Is all this normal….or? Perhaps Dr Nathan Schramm can answer me too please…..

  290. Loretta, I think you should call the doctor and ask about it. It seems to me that the lens is not fitting well. It may be too tight. I suppose it could also be the removal. Do you feel pain on removal? Any time I do not do it right, it hurts at the time.

    Your eye will change shape while wearing the lens and it will take an hour or two – maybe more – for it to go back to normal shape. I am just not sure it should change the way you describe.

  291. chemprachi says:

    Lorietta, Wanda is right. I too had same signs in my first week. Take some pictures or take a appointment later in the day so that you can show the ring and redness of your eye to your Doctor. My doctor changed the one of the lens fitting twice to gave me best fit. Third time the lens was little impinging but doctor said it is because of high keratoconus and it will be adapted in a week. And he was right. Now after 3 months I am totally adaptive to new fitting. The earlier lens was so tight that it takes me long time to remove it as well.Greasing the lens with refresh tear while removing the leans help me to overcome pain if any. And remove it from the corner not from the middle.

  292. Jackie says:

    I have been having great difficulty in removing my scleral lenses, they just refused to come out leaving my eyes feeling very sore and bruised. That I am glad to say is all in the past, I’ve found the perfect remover. I got it through Amazon and is advertised as a Sports Vision 3 pieces ORANGE (this is important to get the correct one) contact lens hard only suction holder, inserter/remover. If anyone else is suffering like I was, I would certainly recommend you try it. Hope this is helpful.

  293. Lorietta, Malta says:

    Thank you so much for your replies. I’m seeing my doctor soon. As for removing the lens, I’m getting used to taking them out with my finger and I’m getting the hold of it now.
    I have tried the plunger but I don’t seem to be able to take the lens out with it. I did apply saline before using it but it doesn’t seem to work.
    After removig the lens, I feel releived from the pressure.

  294. Lorietta, ask your doctor about which removal technique to use. In using the plunger, you should wet it first, of course, then apply it to the lower part of the lens just slightly off centre. Look upwards, lift slightly on the lens with the plunger and then look down. It should pop right out. If it hurts when you remove the lens, you are likely too close to dead centre of your eye. it is hard to break the seal from that point on the lens.
    I wonder about you scratching your eye, using your hand to remove the lens. Although it certainly could come in handy in an emergency, knowing how to do it with your hand.

  295. Tracy says:

    When I was first prescribed the sclera lenses, it took 3 times to get a good fit. I could only wear them about 3 hours before having to take them out. My eye dr said I’d be able to wear them 5-6 hrs max. I pressed through it and now can wear them from morning to late night with some discomfort/dryness by night time but it’s better than not being able to see…so I leave them in until bedtime. However, recently, my eyes now burn and water when I put them in and they burn and water when I take them out. Is it possible to wear them too long? have I damaged my eyes by wearing them too long? I don’t understand the burning. I rinse them with saline, so it’s not the cleaning solution. Any advice appreciated.

  296. Jon Severs says:

    I wear mine 11-12 hours during the week but give them a break on the weekend by dropping wear time to around 8 hours. You can damage the eyes if you get an issue with a lack of oxygen getting to the cornea but with my wear time I don’t have that issue. The only time j get burning and watering is hayfever as I find the scleral locks it in! I have eye drops for this and it has sorted it. Other than that I have occasionally had burning from something the cleaner cannot get off and I have solved it with a protein remover (leaving the lenses in Saline overnight with a protein tablet or two in it)


  297. Tracy, how to you clean the lenses and store them? I am not sure that saline alone is enough. My doctor has me clean them with Optimum Extra Strength cleaner then put them in Clear Care overnight for at least 6 hours (although I have removed them in 5 hours from time to time and wore them fine.) When I first got them, I wore them for only 4-6 hours the first few days. Then I started to wear them from early morning to late night with no problem. My doctor said I can’t “over wear” them and that for many people, the lenses are their only option for vision and not to worry about leaving them in all day. I find they remain comfortable all day, much more so than the soft lenses I wore for 40 years. The lenses change the shape of your eye and it takes a few hours for the eye to go back to its previous shape. During that time, I do not see well with my glasses anyway. For me, it is pretty much that I wear the lenses or I go to bed, as the glasses are useless for anything more than getting me around the house without walking into doors.

    I, too, had to have several fittings. Even then, I did not feel I got the best fit until we moved me to entirely new lenses this past June.

  298. Jon Severs says:

    Agreed, I use Ote Clean-40

    On 19 August 2015 at 14:40, Keratoconus Info wrote:


  299. chemprachi says:

    Wear time should not be a problem if it is gradually increased like 4-5 hours in first week then 6-8 hours and then 8-10 in next week. It depends how you are adapting to it. Ask your doctor about your eye situation why he has asked to put lens for only 6 hours. I use my lens for 14-16 hours. Almost all the time I am up. Sometimes it gives me trouble after 10 -12 hours but that’s like once or twice in a month.

  300. Lorietta, Malta says:

    Yes the fit is too tight. Lens back for adjustment. Have a few questions….

    1. When you remove your lens, do you still have saline water in it because I don’t recall having any left?
    2. Do you wear your lens from morning till night without a break? And is this how it should be?
    3. Do you use artificial tears or saline water to wet / refresh your eyes during the day (without removing the lens)?
    4. If I remove lens during the day for a break, do I need to clean it like nighttime or just put in saline water and put back in?

    And Jackie I have recieved the plunger (the name is too long!lol!) that you suggested but now I have to wait for my adjusted lens to arrive to try it.

    Many thanks for your replies….

  301. To answer your questions: 1. You won’t find anything in the lens when you remove it. You fill the lens to put it on, largely to help prevent the formation of an air bubble under the lens. Much of the saline will spill out of the lens upon insertion and it will ride on a very thin layer of the liquid. Laymen’s terms here, mind you.
    2.I do wear them all day. My doctor told me that I could not over wear them. I am not sure if everyone finds that, but I do find I wear them comfortably from early in the AM until late at night.
    3. I never have had to re-wet them, like I used to have to do with soft lenses. Are you finding you need to do that? Do you suffer from dry eyes, normally?
    4.I tend to have issues with clouding in my lenses. It has to do with the composition of the fluid in my eyes. I will generally remove them around dinner time and clean them with the cleaner. I then rinse them with copious amounts of saline and reinsert. Make sure you rinse them well to remove trace amounts of the cleaner.
    5. I use a plunger to remove mine and a ‘cup’ to insert them, although I can insert without it, in a pinch. It is just trickier, is all.

    I hope this helps.

  302. Lorietta, Malta says:

    Thank you so much Wanda! You’ve been very helpful.
    Here in Malta, summer is very humid and dry and this normally effects my eyes by making them dry. In my left eye, I have a kerasoft lens and I use articial tears often during summer. However, with my right eye, I still have to experiment with the scleral, since the fit was not ok, perhaps that was the reason why it was uncomfortable…. 🙂

  303. I don’t know if this thread is still active, but I’m on my second day of scleral lenses and so far it’s been a bit up/down. The difference they make in my vision is AMAZING, and they’re very comfortable to wear, but putting them in and getting them out has been giving me great anxiety.

    I was diagnosed with KC probably 6 or 7 years ago. I tried the smaller permeable glass lenses but they caused me so much pain and discomfort that I could barely hold my eyes open when wearing them, even after a few months, so they didn’t do me any good. I was terrified of surgery and without insurance to help anyway, I just learned to live with my worsening vision. Eventually it got so bad I knew I needed to do something and I knew I didn’t want to go back to contacts… I was entertaining the idea of a cornea transplant, when my dad found a surgeon who did intacs. It sounded great so through fund raising and the help of my dad, I was able to get intacs implants in my worst eye. It did seem to help a little, but not as much as I hoped. I went back to my local eye doctor (local meaning in the next state) to see what my options were and he told me about sclerals. At first I was so upset – thinking of my horrible experience with the permeable glass lenses- but he insisted these would be much easier to wear.

    It took me almost 7 months of going back and forth to my eye doctor to get the perfect fit. Finally, my eye doctor flew a specialist in from across the country and he was able to get them right. I wore them home two days ago, and I was amazed at how well I could see. The trouble came when I got home that evening and took them out. I tried following the instructions- grabbing the edge of the lens with the plunger and lifting up to release the suction- but boy, did it hurt. Yesterday it took me literally all day to finally get the lenses in due to my extreme flinch and blink reflexes. I was so frustrated and upset… but after having them in for a few hours I was just happy that I could see. Then again came trying to get them out. Once again it was hard, and I was so scared I’d hurt myself that it took me nearly an hour. Again, trying to follow instructions failed, and I did end up hurting my left eye pretty badly… I think I blinked when it finally popped off and ended up whacking myself in the eye with the edge of the lens.

    Today I got them in with spending about half an hour on each eye (so relieved), but I’m dreading this evening when I go to take them out. They just seem so suctioned to my eyeball. I guess I should try using my fingers, but I’m scared of that too. I saw someone suggest putting lots of saline in the eye first, so I might try that and hope it’ll help the lens turn loose. I hate the feeling that I’m going to yank my eyeball out of the socket. :/ I hope it’s not the fit. They feel great when I have them on, and after trying for so long to get the right fit I don’t want to have to go back to my doctor and tell him they’re too tight or something.

    Well… I just wanted to get it all off my chest where I know others would understand the situation 😀

  304. You will likely get lots of suggestions on this one. But I’ll share my experience with insertion and removal. I’ll start with the removal, as that seems to be your upcoming concern.

    My first thought is that you are not placing the suction quite right. Try having it off centre, more to the side of the eye, and very close to the edge. Once you have it in place, look up and lift gently and ever so slightly on the plunger. Then look down and lift the plunger as you move your eye downward. Another key thing to remember is to force yourself to keep your VERY open while you do this. If you blink while doing it, you will (a) cause pressure to remain on the lens and (b) perhaps cause the upper edge of the lens to scrape across your eye and you remove it. Both will be painful. It takes some practice, but the key is having the plunger off-centre and keeping your eye wide open. AT least it is key for me.

    Now for the insertion. Do you have an insertion cup? If not, get yourself one. I buy mine on Amazon.

    Place a large mirror on top of a towel on the vanity or counter. You place the lens on your index finger and then put the lens on it, Fill it with saline to almost overflowing. Lean over the mirror and stare straight in into it. I always do my left eye first because it has the worst vision. I stare straight ahead and do not move my eyes at all. I move the lens toward my eye, watching out the corner of my right eye. I do let myself watch with my left eye as the lens approaches my left eye. If you do that, you are bound to blink.

    Practice keeping your eyes wide open as you move your hand toward them.

    Don’t stress. You WILL get the hang of it.

    Like you, I had real issues with wearing the normal hard contacts and I could no longer get adequate vision correction with soft contacts. Sclerals were pretty much my only option. When I started wearing them, it was like my life had been given back to me. For the first time in decades, I actually knew what life should look like, no halos, no double vision, sharp images yards away. They truly are amazing lens.

  305. Just to clarify – I put the towel under the mirror when I insert my lenses, in case I drop them. They tend to remain on the towel, rather than bouncing around. I hate having to look for a dropped lens, half blind.

  306. chemprachi says:

    Gradually increase your wear time from 4 to 6 to 8 and so on. Don’t judge them so quickly. :-). I had a kind of similar problem for a week. After taking them out with plunger, my eyes used to hurt and blood red with impingement. For removal, I use refresh tear eye drop with my lens on to moist and loosen the grip between lens and eye.and use plunger at lower portion of lens to break the suction. Wanda has explained it earlier. Though not recommended for long run but you can try removing and re-inserting somewhere during day to increase your wear time. Where are you located actually? Why it look you 7 months for lens? All is well when end is well. You are in a right group to share your feelings.

  307. zoldyck says:

    First of all hello to my fellow members suffering from this rare fckin disease , been looking into information regarding keratoconus from sometime now seeing other peoples stories , diagnosed in march 2015 , and had c3r in may 2015 , since then having trouble with the eye , anyhow right now fitted with rgp lenses costed me around 5k inr ($75) approx , for each eye (having keratoconus in only one eye as of now hopefully it wont get to other eye ) but the vision is 6/9 , was trying semi-scleral lenses 2 days ago and it seems getting a near 6/6 vision (doctor says 6/6 but i still fill a bit low) but they are expensive as heck 380$ (25k) for each eye , having no insurance , and not sure if in india insurance covers this , so i would like to ask especially my indian fellow people if there is any insurance covering keratoconus treatment and the lenses. also if members from other countries can provide me a approx cost of these lenses , would be grateful to them.
    btw i am 21 .

  308. Jon Severs says:

    In the UK they are given as part of national health service but I pay a contribution of £50 per lens.


  309. Lorietta, Malta says:

    Savannah I understand your anxiety as I’m going through this same experience as well! I’m waiting for my scleral lens to be adjusted and soon I will start again, going rhrough with the procedure of inserting and removing, which gives me a lot of panic, especially removing! We are in this together… I am hoping that practice makes perfect. Wanda gave us a detailed description of the steps we need to use to achieve these goals.
    Thank you all for your support. With sclerals, vision is amazing!

  310. chemprachi says:

    zoldyck –
    Few points –
    1. If your one eye is diagnosed with KC most likely second eye can also get it so go for regular check of eye say once in 3 months and if you get it, go for C3R asap. This is just an experience and cautious suggestion and you can talk to your Dr. for confirmation
    2. In india I do not think there is any Lens covered by any insurance and full scleral is expensive something like $2200 ( 1 lakh per eye) this is what i got information from my Doctor back in India 2 years age. Nothing is covered by Insurance. My lens was free in USA ( 100%) with my Eye med insurance as they cover the medical necessity lens in USA. I am not sure if we have any separate eye insurance in India. You can definitely explore this option. I believe the cost is same in allover world its just a matter of insurance. Another option is trying Rose K RGP ( much much better than simple RGP but nothing compared to scleral) I have gone through all these phases. Rose K costs Rs. 25K ($420) for both lens.
    3.Do you know how long Semi scleral last? I think scleral last 2-3 years and semi scleral just 1 year. Rose K -2 years. Not sure though. Read somewhere.
    4. Go for a good doctor for fitting and give time. Do not rush and go for regular visits, You are young choose a career with caution.

  311. Well, getting them in and out has been getting slowly easier. Thank you for your tips Wanda, they really helped! Today I got both contacts in on the second try, which is a new record for me. I could barely believe it.

    Today I have a new question. I put the contacts in and they seem foggy, like looking through smudged glass. There are no air bubbles- no abnormal discomfort and I can’t see any bubbles when I look in the mirror, at least…. I cleaned them last night as instructed, with the cleaning solution and then rinsed them with a conditioning solution, and left them in the conditioning solution over night. I just had to purchase a new bottle of the conditioning solution (the eye doctor only sent me home with a starter kit and it ran out quickly) and I did notice the contacts seemed to have a bit of residue when I took them out of the case( I tried rinsing them off with my saline solution). I bought the exact same brand and type (Boston advance conditioning solution), but could this conditioning solution possibly be the cause of the fogginess? I washed my lens case as well, using the same solution, The expiration date on the bottle isn’t until 2018 so I don’t know what could be wrong with it.

    Could there be an air bubble so big it takes up the whole contact and that’s why I don’t see it? But then shouldn’t it be very painful? And my vision isn’t blurry, just foggy especially when looking toward a light or window.

    Any advice would be appreciated it!

  312. chemprachi says:

    Haha. I am smiling because I faced the same thing in my first few weeks. It was foggy as some fuzzy is inside,
    Reason is many a times we do not wash our hands properly and cream/ oil/ moisture stay on lens. Try washing lens with cleaner solution and rinse off with clear running water and check if you can see the lens clean. ( make sure to close the basin outlet as you may loose lens). I do it on daily basis.
    If not, go to technician at your lens facility and they will clean it with special solvent. You really do not need a doctor appointment for this.

    See following link. I buy this complete kit. It also contain Liquid enzymatic cleaner for protein removal- to be used once in a week or once in two weeks. That can also help in cleaning.

  313. Sunny Gupta says:

    well thank you chemprachi and jon for en lighting the options , though i am feeling very bad and drawn back seeing , that i have to pay the prices up my sleeves as there is not much information available regarding these , also now i am getting a feel that full scleral will be better then semi – scleral since they are costing almost the thrice or atleast double for semi – scleral , is that so ? or should i go for semi ones , also my doc said that they can last for 4 years if cared good , but i am worried about the perfect fit , as they will just try the lenses on me for 3 days , and will order a lens for me , so i was wondering what if it doesn’t suits me , will they like provide me with another lense free of cost which is highly no as far as i know . 😦 maybe i should explore other hospitals.

  314. chemprachi says:

    I am sorry if I scared you. I am here with Advance Keratoconus. I do not have any vision in my right eye without my Lens. You are at least much aware and can take care of your problem in future.
    Here in USA Lens come with guarantee period. If you don’t like either full refund or change as per fitting.
    Ask your Doctor if you can try. Take a trial of both scleral and semi -scleral. Check your comfort. I have not tried semi scleral. My doctor told me about this. Compare cost and comfort. Ask reviews in this forum.
    If you want take a second opinion. What is your location? I was taking consultation in New Delhi.
    As far as I know all these lenses come from abroad and its upto doctor to process refund. ( not sure though)
    Can you check for some eye insurance in India which cover medical necessity Lens? At least for next year?
    I will also explore and let you know.

  315. zoldyck says:

    oh well not at all dear chemprachi , its actually you guys who are giving me a ray of hope ❤ , so i tried a new doc today , and he says then tried numerous glasses and test on me and deduced that i will not be needing any lenses as i can pretty much see 6/9 with my bad eye , i did felt a lot of change , will verify once i get the glasses . and if still i need scleral ill give it a try despite of its price and will also be looking into insurance regarding this.
    thank you all.

  316. zoldyck says:

    Yosh ! okay so booked my scleral lenses , will be arriving in like a week , pretty much 20/25 , learnt something new though so i would like to ask experienced people here , that since the saline slowly is decreasing or being absorbed by eye , will vision be affected a lot or just minor? , after 3 days trial i have a great fit now , will confirm once it arrives , since i was hoping for a all day out like 14-16 hour with the lenses in . also saline falls a bit and my doctor says its okay . but i read that there should be no drop spilling ? btw i have mini scleral .
    Thanks everyone.

  317. I would not worry about it, personally. My understanding is that the saline is really primarily to ensure that no bubbles form under the lenses. A lot of it will come out as the lens settles on your eye upon initial insertion. There really is very little clearance between the lens and your eyeball, if you think about it.I never have any trouble with dryness or with discomfort, even after 16-18 hours of where. In fact, scleral lenses are sometimes used to help people suffering with ‘dry eye’ syndrome. My lenses are also the semi-sclerals, which are about the size of a soft lens.

  318. zoldyck says:

    thank you for your response , this page gives a home like feeling where people understand each other 🙂 (fees better than asking a doc) , anyway i have one more question and it will sound like a noob one , can i wash my face with lenses on ? i have a habit of flushing water in my eyes and face like 4-5 times a days or more . mainly i do this to wash my face from oil and dirt and it feels great to refresh eyes and face . i have very oily skin .

  319. connie says:

    Hi, it’s probably ok to wash/rinse your face with the lenses in, but definitely keep your eyes *shut* while you do it. Anything but the plain (nonpreservative) saline solution you use to insert your lenses could contaminate the lenses and cause infection, or the oils from your face could make your lenses blurry, etc. etc. I’ve also read that it’s a good idea *not* to use any facial care products with microbeads in them, as those little beads could make their way into your eyes, get lodged in there, and create irritation and possible infection.

  320. Saimah says:

    Your article helped put at ease many of my fears. I was diagnosed with bilateral keratoconus 10years ago. Having struggled with piggyback and dry eyes for the last two years, I’m feeling hopeful the scleral lenses will change my life. I just wish I had known about them sooner.

    I am going for my second fitting of the scleral lens this afternoon and I can’t help but feel excited. My optician is hoping I will go home with at least one lens today, the lens for the right eye is not as straightforward

  321. Lorietta, from Malta, Europe :) says:

    Hi again! Scleral lens back again for testing. Still on 4 – 5 hours trial again. Hope fit is right now. Seeing doctor on Saturday.
    One question for the ladies please. What eye make up and eye make up remover do you use for less irritation? I know they have to be with no oil…..

  322. I really do not have any problems with makeup or eye makeup remover. I wear makeup every day. I have long dark lashes, so I rarely wear mascara, but when I do wear it is always waterproof. I use Cover Girl Eye Makeup Remover, as it is the only thing that really removes waterproof mascara well for me. One thing that I do is to always make sure I have removed my lenses before I apply the eye makeup remover.

  323. zoldyck says:

    so got my mini scleral yesterday (Yay!) , i can read the regular chart , but i have trouble reading the book or near by things (eg mobile phone letters). anyone experience same ? did not had this problem with rgp , but i could not see the chart last two lines with rgp so scleral is a better choice and no discomfort (first day and its 5 hours now no issue).
    also if everyone can explain there vision a more will be appreciated .

  324. Lorietta, from Malta, Europe :) says:

    Hi Zoldyck! I had the same problem a month ago when I tried my scleral for the first time. It needed adjustment in the vision. Now, yesterday I received my lens with altered vision and vision is perfect. I’m trying my lens for 4-6 hrs for these few days and then am seeing my doctor on Saturday. And I will ask him which line I’m seeing on the chart because I am curious! Without the lens I couldn’t even see the first huge letter!!!
    Talk to your doctor….. and a big good luck! We’re going through the same trial period with the famous sclerals!! 🙂

    Hi Wanda thank you. I use “Max Factor” for make up and mascara and “Nivea for sensitive eyes” for removing eye make up. The thing is, I do not always experience the irritation feeling on the lid of my eyes but once in a while. And after trying eliminating one thing at a time, it seems that the eye make up makes this feeling not the mascara, neither the remover. I think I need change of products? I usually disrecard them after a year.

  325. Hi Lorietta. You may be right – perhaps it is the makeup that is causing the irritation. I use several brands of eye makeup. Today, I am wearing 3 different brands of eye shadow at once – Clinique Naked and Ulta private label. You see it runs from very expensive to very inexpensive. I also use Ulta eyeliner and Christian Dior eyebrow powder. It may be a good idea to toss what you have and get some fresh shadow, especially if you are in a very warm and/or humid climate. Wash your brushes and applicators regularly, too.

  326. Zoldyck, sometimes the prescription can be tweaked a bit. In my case, I have a monovision set up where one of my lenses (left) is for close up and the other (right) is for distance. I also have a third lens for the left eye. When I need very sharp distance vision, I wear that lens in my left eye instead of the ‘near’ lens. But in both cases, I still need to wear reading glasses for very fine print, like on my cell phone. Just because you have scleral lenses, it does not mean you will not need reading glasses, also. I recommend discussing this with your doctor.

  327. Prachi says:

    Hmm… you know what i experienced the same with my scleral lens in one of my eye, i overlooked this when my doctor told that if you are good with both eyes, its ok, never try reading with single eye. and I was good in reading with RGP by both eyes. Do not know the reason, if you came to know by your doctor, let me know as well. My doctor said you may have this problem with your RGP as well and might be you didnt noticed. I never looked back for my RGP as I was happy by whatever Scleral gave me.

  328. zoldyck says:

    thank you all , i might try glasses on the lenses , might work a bit , i had very high expectation , like seeing 95% with sclerals assuming i have 35% with glasses and 75% with rgp , scleral gives me 80-85% (approx) , as for prachi i know what you are deducing and yes i also experienced better with both eyes , since my “right eye” do not have “keratoconus” (yet fingers crossed) so you guys might have a hard time to understand how i compare my bad eye with my good eye . describing vision is very hard , also i do not have option for trying other lenses , and ill have to bear with what i have got , i can just either spend more money 400$ per lense or cope with it and another option is trying glasses.

  329. zoldyck says:

    also @parchi assuming your are from india , may i know how much scleral cost you (also insurance covered anything {cxl,lenses etc) ? ) also you have mini , semi or full jupiter sclerals? .
    thank you . :3

  330. Prachi says:

    I am Indian but moved to USA three years back. In USA they were 100% covered by my Eyemed insurance. See my earlier posts, you will find an approximate comparison.

  331. Lorietta says:

    Hi again! This is my fourth day wearing scleral. Inserting is no problem at all, I still need to master removing, although I succeeded using the plunger. This procedure is so much smoother…
    However, yesterday, I experienced cloudness for the first time. I recall touching the side of my eye unconsciously and this moved the lens a bit. Could it be that air went in and caused the foginess? Worse still, I was out and I could only remove the lens when I went home which was about 2 hours afterwards I noticed the cloudness. Could this cause damage to my eye?
    Having mentioned this, this is my worst fears…. that in an emergency, I do not have an adequate place where to remove my lens, put saline and insert back again!
    Thank you once again for your help and support to all!

  332. zoldyck says:

    third day with sclerals and from yesterday i am noticing something odd like i get fog in my eyes , and as soon as i blinks its gone ? again after 4-5 min fogs build up , and as i blink its gone . anyone ever experienced this? its just breaking my concentration. :-/
    ps – i have mini sclerals boston xo2 uv.

  333. Wanda says:

    There was a similar question on another thread on this blog just yesterday. I had very bad fogging at first. My doctor tried 4 different lens before we arrived at the optimal ‘ vault’ for the lenses. We also added fenestrations. And I tried filling the lenses with different solutions until I found one that causes fewest issues. I use Refresh Ultra. I am not sure if it is available in the USA or not. It is a slightly cloudy liquid, more viscous than saline solution. Intuitively, it makes no sense, but it works for me.

    I also recommend that you wash your hands well before handling your lenses. Also, I strongly suggest cleaning them before storing them. I clean with a drop of Optimum ESC, then rinse with copious amounts of saline, then store overnight in Clear Care solution. This works for me. I still clean after about 10 hours of wear, rinse VERY well and reinsert. Hope this helps.

  334. Lorietta says:

    Thank you Wanda. Here in Malta (Europe), we have “Delta plus” by Sauflon: Daily Cleaner and “Delta plus” by Sauflon: Disinfecting, Soaking and Weeing solution. My doctor said these should be okay. Then I use saline water to fill in lens and to rinse off cleaner. I guess it’s trial and error for me at the moment. But still it is worth the effort. I am hoping that I will feel more confident in removing and reinserting in public so as not to worry anymore about these issues!
    Having said all that, it’s like a miracle for me, seeing from both eyes after 10 Years. I was on rgp in my right eye only for 7 years, then switched to my left eye only with Kerasoft lens for the past 3 years, Now I have scleral in my right eye and kerasoft in my left eye. Vision is excellent and I hope that it stays this way.
    Thank you all dear supporters for all your help and support!.

  335. zoldyck says:

    thank you all , wanda , prachi and other kc family , glad to have your support.

  336. I, too, have been having some trouble with fogging. I didn’t notice this my first week or so, but now the lenses seem to fog after I’ve only had them in for a couple of hours. My eyes secrete lots of ‘gunk’ (sorry if that’s tmi!) and I think this is caused by allergies. I can see it on the right lens when I take it out in little lumps, but the left lens looks more like it has a cloudy liquid still lingering on the inside when I remove it, Maybe the eye gunk is mixing with the saline and causing it to become milky?

    I always wash my hands with all natural soap before I insert or remove the lenses. When I take them out I clean them with the boston cleaner, then rinse with saline, then store in boston advance conditioning solution overnight. I wear them with the unisoft 4 preservative free solution. When I take them out of the case in the morning I check and they always look clear, so I’m convinced this fogging has something to do with my eyes and not my handling of the lenses.

    I have another appointment with my doctor in a couple of weeks so I’m going to talk to him about it then. It’s very distracting.

    So glad to have found this blog. It’s great to have a community of knowledgeable folks.

  337. Savannah, I think it is good to discuss this with your doctor. It is protein in the fluids or, as my doctor put it, ‘debris’ in the eye that causes the clouding. In my case, it was extreme clouding until my doctor lowered the vault of my lens and ordered them with fenestrations. Also, I experimented with a variety of solutions until I found one that I could wear without clouding occurring. Even yet, if I try inserting the lenses filled only with saline, I will begin to experience extreme clouding within a half hour of inserting them. If you do a search on this this thread and a couple of others for “clouding” or “cloudy”, you will find that it is relatively common. Dr. Schraam recommended a solution that his patients had success with, but unfortunately it was not available in Canada, so I was unable to try it. I forget the name of it, but do go back through this thread and check on it. Best of luck in getting it under control.

  338. Jon Severs says:

    I find squinting increases debris, also. On a bright day, if I do not have my sunglasses with me, the lenses progressively worsen.

    Interestingly, the advice in the UK – at Moorfields at least – is to not store scleral lenses in solution overnight, but to keep them in a case dry. then clean and rinse and fill with saline in the morning.

    Also, Boston solution is seen as a little greasy, but that is personal choice i imagine. Certainly, some salines – Boots own in the UK – tend to cause me more problems with debris.

    I should add that i am glad so many people use this website – I will put a message up at some point about it. I set it up after struggling to find information and experiences of what i was going through. I did find some very negative forums where everything was about how bad it all was, and how all was bleak, i wanted to be more positive and show what can be achieved and I am thrilled so many people share this positive attitude.

    On 22 September 2015 at 20:27, Keratoconus Info wrote:


  339. Lorietta, Malta says:

    Let’s be positive! It’s incredible, you helped and encouraged a lot of people (including myself) from all over the world Thank you Jon!!! You’re a star!!!!

  340. Lorietta, Malta says:

    Hi again! do you think it is okay to wear scleral lens for the whole day if it is comfortable? This might seem a stupid question but ….. how do you know that you need to remove, rinse and refill with saline and insert back again (if it’s not clouded)? Because sometimes, I’m so busy during the day that I forget all about the lens in my eye…. I hope that I’m not doing any damage by not refreshing it!…

  341. Jon Severs says:

    I wear mine 14 hours no issues, no reinserting – i don’t touch them from the moment they are in until the moment i take them out 🙂

    On 30 September 2015 at 17:17, Keratoconus Info wrote:


  342. Tracy says:

    I can tell you…from experience…that over wear brings misery!! Once I got past the transition period, I could wear mine from 7am until 11pm with no problems. Then, one day, out of the blue, my eyes started burning when I took them in or out. I had to make an emergency trip to the eye dr and she said the eye has 5 layers and I damaged the top layer by over wearing the lenses. It was 2 weeks before I could even think about putting them back in and now it’s like starting all over. I can only wear them 4-5 hours before they’re uncomfortable.

  343. connie says:

    I’m guessing that the length of comfortable wear time for sclerals can vary greatly from person to person. There are many variables: how “wet” or “dry” one’s eyes are in general, how severe a case of kc one has, how well the lenses fit, what kind of work one does (amount of eyestrain), etc. etc. I’ve had my wonderful sclerals for about 1 1/2 years now. I work very long hours (I’m a business owner who’s onsite from before opening till after closing every day), so my typical daily wear time is from appr 5:15 a.m. till about 10pm (8pm-ish on weekends), which is 15-17 hrs. a day. So far I’m doing okay with that. My clue to RRR (remove, re-wet and re-insert) is cloudy vision – which for me usually happens in the late afternoon/early evening. Hope this helps!

  344. Timothy Craney says:

    Sent from my Verizon Wireless 4G LTE smartphone

  345. Lorietta, Malta says:

    Thank you for your replies…. I’m having a check up with my doctor in a month’s time (after 6 wks weartime). But in the meantime I wanted to share with you guys…. Hope I do not have any more issues for the time being….

  346. jatin says:

    i am new to scerals in india plz guide me the cost in new delhi

  347. Arvy says:

    Hi, My name is Arvy. I have gotten Scleral lens two weeks ago. I have KC and I also gotten the CXL done on both eyes two months ago with Eptheliam on (hybrid procedure where the doc scrapes the epthelial with Qtip). To further get a crisp vision, I have opted for Scleral lens. So, I can definitely tell that the vision got crisp after Scleral lens. But once I remove the lens, my vision is blurry even after I put the glasses on. Its really hard to work looking at monitor after removing the scleral lens. Has any one encountered this issue as well? This blurrying effect seems to last for a very long time. I feel little bit normal in the AM once I wake up but if I remove the Scleral lens in mid day, the rest of the day seems blurry.

  348. Tracy says:

    I had a scleral lens fitted in my left eye but it hasn’t made my vision any better. The optician cannot understand it and has checked prescription and all sorts! This was the second one he tried, is this common?

  349. I have experienced this, also. My doctor says it is quite common. The scleral lenses temporarily reshape the eye.

    My regular glasses will work OK after I leave the lenses out for a few hours or overnight. my doctor said he could give me a pair of glasses that would work when the lenses first come out, but I would need to remember that those particular glasses will not work well after a few hours.

    I have learned to live with it. And I tend to wear the lenses longer anyway because they are comfortable longer than my soft lenses were. They don’t dry out like my soft ones did.

    If I were you, I would discuss it with my doctor.

  350. Liz Devlin says:

    I have corneal issues due to RK surgery over 20 yrs ago. The corneal specialist advised these lenses and the most reasonably priced ones I found are going to cost me $ 980 from walking in the door, fitting and lenses..and of course, insurance won’t cover it.
    I used to wear hard then gas permeable lenses before the RK and those took me awhile to get into my eyes. I freak out over doing anything with my eyes and I’m so nervous on how to get them in but especially how to get them out of my eyes!!!
    I’ve watched your videos but literally get nauseous from watching the one on getting them out…I don’t know what to do….

    Do you wear glasses at all when you take them out? If so, do you need more than one pair of glasses, one for distance, one for near?

  351. Jon Severs says:

    You get used to it! It took me a month to get it right but it thereafter becomes second nature. No glasses for me – my eyes are too bad, but I commute to work everyday without my lenses in to give my eyes a break.

    On Tuesday, 2 February 2016, Keratoconus Info wrote:


  352. Wanda says:

    Liz, if I were you, I would ask myself what are my alternatives? If glasses are not an alternative, then scleral lenses are likely your best plan.

    I am myopic and have severe, asymmetrical astigmatism. My vision worsened to the point that even custom soft lenses no longer worked and I could not tolerate regular hard contacts. Scleral lenses have been a godsend for me.

    The accuity is unlike anything I had experienced, ever. I learned to insert and remove them quite easily. I wear them from the time I get up in the morning until I get ready for bed, usually from about 5:30 AM – 11:00 PM, but have worn them longer if needed. They are way more comfortable than my soft contacts were. I do have glasses, but rarely wear them.

    Generally speaking, I think you will find that sclerals temporarily change the shape of your eye, which is not a bad thing, by the way. Over a period of a few hours, your eye will relax back to its normal shape. Your vision will change. Since I wanted my glasses for that period between removing the lenses and going to bed, we fitted them for wear during the first hour or two after removal of the lenses. Vision is OK with glasses, but nowhere near as good as with lenses.

    As for the video about removing them being creepy, I don’t know what to say. One does what one has to do. I do not remove mine the way the video shows, although, personally, I do not see it as being gross or even any different from how I removed my soft lenses.

    If you scroll back up through this thread, you will find a comment where I described in detail how to remove the lenses with a plunger. I have plungers in every vanity drawer in the house, in my handbag, in my travel bag, at my office, etc. They are cheap and easy to use.

    I am not sure where you live, so I cannot speak to the issue of insurance. Here in Canada, where I am, most insurance does not cover eyeglasses or contacts. My contacts cost approximately $650 – $700 per set. The last eyeglasses I bought cost $980 and the pair before that cost more than $1100. So for me, the cost is comparable or even cheaper than glasses, when you have severe vision issues. And I see far better with the lenses.

    I encourage you to discuss your options – and your fears – with your doctor openly. Examine your options and make your choice.

  353. Jon Severs says:

    Haha that made me laugh Wanda about plungers in every drawer, I have old sclerals all over the place in drawers too!

    On 2 February 2016 at 14:15, Keratoconus Info wrote:


  354. William says:

    Somebody knows a good doctor for sclear lenses in Houston or Katy area?

  355. Joy says:

    I just found this site tonight and read every comment. Thank you for starting it and giving us a place to talk about our experiences with this condition.

    I had corneal transplants in both eyes 25 years ago and have had horrible vision in my left eye since then due to my extensive astigmatism. I was about to have an operation on my left eye that would take a pie shaped cut out of my cornea and then tighten up what was left of it. I was told that my 12 diopters of astigmatism was no longer correctable any other way.

    Then by accident I walked into an eyeglass shop looking for a pair of reading glasses and the optician asked me why I wasn’t wearing scleral lenses for my condition. He told me all about them and it made me really angry. For 25 years I suffered poor vision and not one of the 4 ophthalmologists I saw in that time ever mentioned them to me. I tried everything else that all of you mentioned–hard lenses, gas permeable, piggybacking, etc and could not tolerate any of them. I got fitted for the scleral lenses by a specialist in Connecticut in April of 2014, and they were an absolute miracle for me. I have 20-15 in my left eye (the one that was going to be operated on) and 20-20 in my right eye. I was told by this specialist that scleral lenses are not fitted by most contact lens practitioners because it requires expensive equipment and lots of time with the patient to get the right fit. You definitely want to go to someone who has extensive experience fitting these lenses. I made lots of phone calls before finding this specialist.

    Unfortunately though my story doesn’t end there. About 6 months after I started wearing the lenses, I could only tolerate the lens in my left eye for a few hours. Nothing I did relieved the problem. I couldn’t see the contact lens specialist in Connecticut because I was spending the winter in SW Florida–yeah, yeah, yeah, poor me I know. But frankly, if I could I would have gone back to frigid CT just so I could see again. I spent 3+ months partially blind because eventually I couldn’t wear the left lens at all. I tried to find someone in my area who was knowledgeable on these lenses, and the closest one was more than 2 hours away. Mind you, I couldn’t drive 1 block, never mind 2+ hours. So when I got back to CT, I rushed over to see the specialist and he determined I had something called boggy conjunctiva–basically the white part of my eye was wrinkly and bunchy. The edge of the lens was sitting on that area and causing major irritation. I was also diagnosed with blepharitis, which is an inflammation of my eyelids. (Interestingly enough, I could have had both these conditions for years and never known it. It was wearing the contact lenses that made them obvious because of the discomfort.) He fitted me for new lenses and again I’ve been wearing them for 5 months and am at the point where I can only tolerate the left lens for several hours before the pain is really bad. I’m back in SW Florida–the no man’s land of scleral lenses so I am going to have to suffer until I get back to CT. I don’t know if it’s something down here that is causing me problems, or maybe it just takes 5-6 months for the issues I’m experiencing to become intolerable. Luckily I can wear the right lens and that does help with basic day to day activities. But for the most part without my contacts I’m legally blind.

    I know Dr. Schramm is on the east coast of Florida, but it is just not practical for me to take a 5 hour round trip with only one contact lens. Dr. Schramm, do you know anyone in the Naples area that is skilled in these lenses? I don’t have much hope but I’m just throwing it out there.

    Anyway, I just wanted to share my story with others who would understand. It’s hard to explain to people why I can’t drive anywhere, read the newspaper, etc. I have resorted to wearing 2 pairs of glasses at the same time in order to do anything at all, like use the computer–my regular pair of glasses that barely corrects my vision, and my reading glasses over those for magnification. If you had to do that, you wouldn’t want to go out either!!

    For those of you who are questioning whether to get the scleral lenses, my opinion is a resounding yes. They are fantastic and the only lenses I could tolerate since my Keratoconus was diagnosed 40 years ago. These lenses are absolutely a miracle. I know they are expensive–and mine were not covered by any health insurance I have. But in my case I am basically useless without them. I would rather sacrifice dinners out, new clothes, new cell phone, etc just to be able to afford them. They have completely changed my life.

    Thank you to everyone who shared their stories. It makes me feel a lot less alone.

  356. Gerald Dunning says:

    Just got my second pair of scleral lenses. I hate that I have to wear glasses for my farsightedness with my contacts. Boohoo, I know. It is a pain in the butt to put them on and take them off every time I have to read something. I’m fortunate that I can still wear glasses and get around driving and reading. I do like the the crispness the sclerals give me with distance though. They do help when I drive.

    My biggest recommendation is be informed when you go see a optometrist. They work with specific vendors and you may be sacrificing vision or comfort for your doctor’s cost and choice of lens they provide. I’m working with a new vision center who provided Essilor Jupiter scleral lenses (which are not multi-focal). I have no idea if my doctor offers other types of lenses but do have some questions to ask my doctor now. Does anybody have any experience with multi-focal scleral lenses?

  357. Joy,
    I just saw your message about your plight in Naples. Boggy conj. is one of the major difficulties to overcome for patients wearing sclerals.
    Naples is only one hour away from my office in the western part of Fort Lauderdale.
    An eye doctor I know just finished his fellowship in Scleral lenses (now there’s four of us in Florida). His name is Cory Collier, OD, FSLS. I think he’s at Bascom Palmer in Naples. He’s a very nice and highly competent doctor.

  358. Gerrald,
    Your “biggest recommendation is be informed when you go see a optometrist. They work with specific vendors and you may be sacrificing vision or comfort for your doctor’s cost and choice of lens they provide.”

    I think a better recommendation would be to look for an eye doctor that is a Fellow of the Scleral Lens Education Society.
    They have proven that they are competent with this modality.

    Your statement about, “sacrificing vision or comfort for your doctor’s cost and choice of lens they provide.” just doesn’t make sense to me. Why would a doctor purposely fit a cheap lens that doesn’t work?
    Not every lens / brand / material works for every patient. That’s why I have over nine different types of Scleral lens kits available.

    Jupiter does come in a multifocal, but only has an add of about +1.00. My experience with other brands of MF sclerals is 70% success. With KCN or the need for a front toric lens due to internal astigmatism will not allow MF sclerals to be fit. You can always ask your doctor to fit you in monovision. Good luck.

  359. William,
    I highly recommend Dr. Tom Arnold in Sugarland, TX at Today’s Vision. He fits scleral lenses everyday, lectures for scleral lens companies, and has nearly completed his fellowship.

  360. Joe says:

    Hey all, I’ve enjoyed reading all the comments from people on here.

    I was recently diagnosed with KC. Sadly it was already quite severe and I’ve lost quite a lot of vision in a short space of time, which has really hit me hard. Had cross linking early February which seems to have worked well from my post-op appointment; going back for a check up with the surgeon in May.

    I’m seeing an optometrist myself next week for an eye examination with a view to getting some corrective lenses. Obviously I’ll go with the advice he gives me. Ideally I’d want RGPs or hybrid lenses as they look the least invasive and I’ve never used lenses before. However it seems to be that the sclerals are popular.

    I am worried however it will take me ages to get used to them. This worries me as the hazy vision and ghosting I’m finding really hard to deal with and I just want some lenses to correct it as soon as possible. I know it’s not that simple but hoping for a good result.

    Have to say i admire the positive attitude of you guys on here. I’m finding this really difficult to cope with.

  361. Kathy D says:

    I’m so glad I found this site! No one around me knows what KC is. I moved two hours north of Phoenix in 2015 and figured it was time to see an ophtalmologist. Even the front desk at the physician’s office had never heard of it! I was diagnosed with a mild to moderate case of KC in my right eye more than a decade ago. I tried RGPs for a year, piggybacking for about two weeks and now I (barely) manage it with glasses that I only use for driving and other distance uses. But it’s gotten bad enough that I don’t even recognize co-workers when they pass me in the hall and even my 24″ monitors at work look fuzzy.

    I found a reference to KeraSoft lenses in these comments and would like to know if they’re available in the US. If not, if there is an equivalent product here? They sound awesome! I’d also like to learn more about Intacs surgery which also sounds quite successful. I think I have mild to moderate KC in just my right eye so I don’t think I’m a corneal transplant case yet.

    Any information would be appreciated. Thanks!

  362. Connie says:

    A reply for Joe, who posted on March 8: I wore soft lenses (weighted ones, can’t recall their proper name right now) and when the ghosting and blurriness got bad enough and I was finally diagnosed with KC, I then tried RGP’s – but those weren’t convex enough or big enough around to accommodate my KC-bumpy corneas, and at some points they rested right on the cornea. Talk about uncomfortable. When my regular optometrist finally sent me to a specialist and I was told about scleral lenses – and how big around and how convex-shaped they are – like you, I worried about whether my eyes would tolerate them. I shouldn’t have. When I inserted some “dummy” lenses for the very first time at my initial fitting appt, they went in just fine and were very comfortable. I did have to learn how to get them back out, but it’s easy. Be aware that that it might take several appts. for the doc to get just the right fit. (no two eyes are alike!) My specialist had me wear them for a week or so and come back for some tweaking – and we did that twice. I’ve now been wearing sclerals for nearly 2 1/2 yrs, and my vision has never been clearer and the lens fit has never been more comfortable. I wish for you the same, wonderful experience! Good luck and let us know how it goes.

  363. Chemprachi says:

    I have a. Question, the non preservative saline prescribed to me for several is no longer available in stores. Suggest another alternative of Unisol 4.

  364. Wanda says:

    My reply is for Joe from March 8, as well. I concur with Connie. I had gone to the limit that soft contacts could do for me. I tried RPG lenses and could not tolerate them. My optometrist referred to me a doctor fitted scleral lenses. It was like I got my life back. I no longer had ‘double vision’ and ghosting. The accuity is amazing. The lenses were easy to get used to and are far more comfortable even than the soft lenses. My experience with fitting is very. very similar to Connie’s. It took a bit of tweaking of the lenses, changing the power, adjusting the vault of the lens, etc. But now I am so very happy. Do give them a try.

  365. Chemprachi says:

    Please suggest substitute of Unisol 4 saline solution.

  366. Connie says:

    Reply for Chemprachi – I now use Purilens. I purchased thru AC Lens, online at (use their “search” box at upper right of homepage, just enter the word purilens ) It’s also available on Amazon (via AC Lens) and directly from the mfr, The most economical way to buy it is in a box of 12 bottles. (I ordered two 12-packs). When I placed my order it must’ve been at the height of customer demand, shortly after Unisol 4 had been discontinued – and it was backordered so I did have to wait several weeks to receive it. I’ve been using it for several weeks now, and it works just as well for me as Unisol did – wouldn’t know the difference except for the bottle/label Hope this helps!

  367. Menicon makes the only FDA approved Scleral insertion fluid called Lacripure.
    The link I give to my patients to buy is:
    Registration code: 011-307-F
    A small percentage of the purchase goes to the doctor’s office, so feel free to ask your eye doctor if they have a registration code for you.
    An “off label” Scleral insertion fluid is inhalation saline 0.9% 5mL. Your eye doctor may write you an Rx. I hope this helps.

  368. Sorry, I gave a bad link!
    Lacripure for Scleral insertion fluid
    Starter code: 011-307-F

  369. Joe, from March 8- If you saw some of my older posts here, you would have seen that I had a really difficult time at the beginning with my sclerals. However, now I can’t speak highly enough of them. It took me about a month of inserting them and removing them every day to finally get the hang of it, and at times I thought I’d never be able to do it, Even now, 7 months later, I still sometimes have days where they don’t do what I want them to, but it was so worth the trouble. I can honestly say the sclerals, once I’m wearing them, are ten times more comfortable than other lenses I’ve tried. The smaller RPG lenses were so painful for me I couldn’t handle them. My eyes are super sensitive- even getting water in them hurts The sclerals I barely even notice. My largest two hurdles were the actual anxiety about the lenses, and learning not to blink when I was putting them in and taking them out. The first day it literally took me all day, going back and forth, to ever get both lenses in. Now I get them in within a few minutes (counting the whole process of hand washing, etc.) and wear them happily for several hours every day.

    It’s your choice, of course, but I love my scleral lenses. They’ve totally changed my life. I can actually drive again, and just renewed my license. For the last 3 years until I got my contacts, I was unable to drive due to being legally blind. I can actually see my husband’s face instead of a big blur. I can even see the shingles on the roof across the street. I just feel so lucky that my eye doctor kept working with me until we got them right.

  370. Wanda says:

    Dr. Schramm, I tried the link but the page that comes up does not have Lacripure on it. It only has Progent and Unique pH. I did check Menicon’s FB page and they show lacripure on there. I wonder why it is not showing up in the link? Does it require a prescription?

  371. Joe says:

    Wands, Savannah and Connie

    Thank you so much for your replies which are really encouraging.

    I am seeing the optometrist on the 17th for an eye assessment. He has worked as a contact lens specialist at Moorfields for a number of years so I know I’m in good hands!

    Will let you know how I get on.

  372. Joe says:

    *Wanda, I mean

    Damn predictive text!

  373. Wanda says:

    This is a follow up to my post from last night about not finding Lacripure on the Menicon America website. I contacted the Company and received an email back saying that it is backordered until the end of march 2016. It will be back on the website as soon as it is available again.

  374. Joe says:

    Hi All

    I went for my assessment and contact lens fitting today. The RGPs seemed ok actually but my optometrist said he may have concerns for them resting on the cornea and the effect this could have, so we went for sclerals.

    He helped me for a pair, not bespoke of course, just dummy lenses to trial. Then with the aid of strong glasses in that little appliance thing he used, there was certainly an improvement. Things seemed a lot crisper, a lot clearer, and I was actually at driving standard on the chart!

    He had ordered me a bespoke pair which should arrive in 2 weeks so pretty excited for that.

    I then spent some time trying to fit the lenses myself, whilst I was there. Have to say, even though they weren’t the biggest sclerals, I found it really tricky. After about 40 minutes I had managed to do it a few times, but not without spilling some solution and getting bubbles in the lens. I have to say I am anxious that I will get the hang of it but I guess it’s just perserverence.

    Onwards and upwards 🙂

  375. Connie says:

    Joe, that’s great news! Keep practicing the insertion & removal, you’ll get the hang of it. And if you’re like me, having your clarity of vision restored will make any amount of practice time completely worth it. I still remember walking out of the optometry office for the first time wearing my new sclerals, and nearly crying with joy because once again I could see, crisply and clearly, the smallest twigs at the very tops of the trees. Oh happy day!

  376. Wanda says:

    Good news, Joe! I agree with Connie. I am so grateful to my doctor. It had been decades really since I had seen as well as I do with sclerals.

    I wanted to ask what method they were using for insertion and removal. Were you using a rubber cup for insertion and a plunger for removal? Or were you using your finger(s) for one or both operations? Either way, it takes practice, but you get the hang of it soon enough.

    For insertion, I find it helps to have a mirror large enough that you can watch in the mirror as you bring the lens to your eye. Try not to look at it as it approached the eye. For instance when inserting the lens on the right eye, use your left eye to look in the mirror at the right eye. Watch in the mirror as you bring the lens up. You find it less off-putting and it will lessen the likelihood of blinking and spilling the solution or getting bubbles under the lens.

  377. Joe says:

    Thank you Connie and Wanda!

    I guess I should expect some difficulty at the start. I’m just so keen to get my vision back!

    Wanda, I was using the little tube thing they have which the lens sits on. The problems I was having were difficulty in placing the lens on the right spot on the eye, also keeping my eye lids from slipping down/keeping them far apart enough to allow the lens. I also found my hands a little shaky when inserting the lens hence the saline dripping off.

    It was over a large mirror which I looked down onto. In the mean time until I go back I might just practice the technique of pulling open my eyelids to perfect that part of it, at least.

    How long did it take you both to get the hang of it ?

    I have a twin brother actually and he came with me for some moral support when my surgeon diagnosed me. He was diagnosed as well and is having cross linking soon. He’ll probably need the lenses too so this will be useful to him.

  378. Joe says:

    …for removal Wanda I was using the plunger. That wasn’t too difficult I just have to remember to slide up before taking the lens out.

    I guess I may find it easier with fingers but the lenses were not very big so that’ll take some dexterity.

    What method do you use ? I think I read above you use the plunger for removal?

  379. Joe, good luck! Like I said before, it took me a full month to get to the point where I could get my lenses in and out with no bubbles, no blinking, and no spilling. Learning to control my super-strong blink reflex was the biggest thing. (Even my eye doctor expressed concern over how bad it was!) Just don’t get discouraged and keep at it. 🙂 Sometimes I still have days where I have to try once or twice to get them in.

    I use the larger, hollow plunger to put my lenses in, and for me it helped to cut the very tip off the bottom to let in more light through the end of the plunger. I have lazy eyes that go off on their own if I’m not controlling them, so looking with the opposite eye doesn’t really work. I lean over a large mirror and watch my reflection through the plunger, and so far this has been the best method for me.

    I use the smaller white plunger to remove them. It helps for me to put a drop of solution in my eye and let it roll around in there for a few seconds before taking the lens out. Back when I tried to do it with just a drop on the plunger it was painful and really difficult.

    You can do it! And it will be totally worth it. 🙂

  380. Joe says:

    My Sclerals have been ordered and I now need to attend for a morning fitting, go to work for a few hours and then they want me to return to assess them in the afternoon.

    Trouble is my next appointment is not until 27th April. Apparently the guy is fully booked until then. How annoying is that?! A real choker for me.

    Especially as this is private and not on the NHS.

  381. Joe says:

    Whilst I wait, I may as well try to educate myself as much as possible from this forum 😃

    I’m quite an active person and I like to keep fit. I haven’t been doing it so much recently because of my eye problems and incidentally due to an ankle problem which isn’t serious.

    I just wondered, does having Scleral lenses affect your ability to do exercise at all? I assume (hope) not. I would like to get back into running, football and the gym when I’m fixed up with my lenses. Possibly swimming too.

    Also, what about when you go to the beach, for instance? Does having sclerals mean you shouldn’t go in the water?

    Any advice greatly appreciated 👍

  382. Wanda says:

    I wore soft contacts for 40+ years. I find it is easier to almost everything with the sclerals. They do not dry out as much and they do not pop out of the eye. The one thing that you should get in the habit of doing however is to wear goggles when swimming, no matter what kind of contacts you wear
    . You do not want to risk lose a contact in the water.

  383. Joe says:

    Thanks Wanda

    I am sure I’ll be fine with running and stuff like that, I am just a little anxious as I want to get into the habit of lenses as quickly as possible and just get back to doing the things I enjoy!

    I imagine the chances of losing a lens while you run are pretty slim!

    Appreciate the point about swimming. I would always wear goggles anyway to avoid getting water in my eyes, especially in a swimming pool. I guess I’ll just use them when I go to the beach as well !

    I don’t know what everyone else’s outlook is/was, but personally it feels like my life is on hold at the moment with my limited vision and I just want to get my lenses and get on with it again.

  384. Wanda says:

    Joe, I have no doubt that, like me, you will feel like you got your life back once you have your sclerals. I wear mine from 6AM to midnight most days. They do not dry out like soft lenses do and I rarely have any discomfort whatsoever. I cannot say enough good things about them.

  385. Joe says:


    I went for my contact lens fitting today – it was actually brought forward which was good.

    They definitely improved my vision to a bit better than driving level. However, when I had them on, there seemed to be a fair bit of blurring still. I was told that this is the best level they could get for me as there was residual astigmatism left over. Apparently glasses won’t resolve it. Have to say I’m disappointed about that.

    Has anyone else got this problem ? How do you deal with it ?

  386. Joe says:

    Perhaps my expectations are too high?….

  387. Matt says:


    Is your fitter experienced with Sclerals? I have fairly advanced Keratoconus and am able to see 20/25 with a proprly fit / prescribed scleral lens and the comfort is amazing. The lenses can be adjusted for Astigmatism – mine are and I have to ensure I insert them properly so they align correctly.

    Sclerals have been a godsend for me – nothing else was working anymore, very uncomfortable and poor vision but I am seeing better now than I have since I was a teenager (decades ago). The one thing it did take however was patience and a good lens fitter. Several appointments to get it right – and I have to do this every year or so as things change but the effort is worth it for lenses that are comfortable and give me my life back,

  388. Jon Severs says:

    Agreed, your experience sounds a little odd, Joe. It took a few fittings but my experience is the same as Matt’s and I too have very advanced Keratoconus as you can see from the blog!

  389. Joe says:

    Thanks guys

    The guy is very experienced from his CV. Worked at Moorfields as a specialist for several years. May I ask who your fitters were? I’ve heard Ken Pullum is good.

    They did say they could try to adjust them but it seemed the bottom line was that was the best result I could get. No issues with comfort, they seemed fine.

    My keratoconus is advanced in both eyes but I was expecting with sclerals that the blurriness would be eradicated.

    If that’s the best they can get then I’m tempted to get a second opinion although perhaps I should insist on a refit or some tweaking to improve things

  390. Joe says:

    Matt and Jon

    I assume then that with your Sclerals, you do not have he problem of blurred vision at all?

  391. Jon Severs says:

    Ken Pullum for me. And you do have to push them I find, mainly because their version of best result and yours can differ greatly. My eyes are not perfect, by any means, but I can do everything I need to do and not feel my eyes are a detriment. It sounds like you are still in a position where your eyes are a barrier.

  392. Joe says:

    Also another question guys;

    The optometrist said that the lenses were the same for both eyes. Is that odd? The fact that the fit is the same in both eyes, notwithstanding one of my eyes is a lot better than the other.

  393. Jon Severs says:

    Mine are completely different, visibly so when you look at the lens, but I guess there is no reason they would not be the same… No idea tbh.

  394. Joe says:

    Sorry just another question generally…

    Is your vision sharp with the lenses ? This ties in with my question above about blurring.

    I felt I had quite a bit of blurring even with my sclerals on…

  395. Frances Forbes says:

    I just want to say THANK YOU! for this blog. I had a CXL surgery in January of 2015 as I have kerataconus in both eyes. I’ve been wearing RGP’s for 1 year and 1/4. I can’t stand the one in my right eye because its always moving around and popping out. When I tell my Dr, she doesn’t want to change the size of it because it could compromise the vision quality.

    Anywho when I had a checkup in March, she mentioned that the next time I come in she wants to discuss different lenses. Can anyone give me the pros and cons between the hybrid lens and the scleral lens?

    Just based on what I’ve read, I think I’m gonna opt for the scleral! Again thanks for the blog, it’s been most insightful!

  396. Jon Severs says:

    Guess it depend a what you mean by blurring. I can see a computer with clarity at sitting distance and drive etc. But the vision is not perfect and changes daily – what level of blurring are you experiencing?


  397. Joe says:

    Well, the mirror on which I was viewing the snellen chart, the edge of it blurred and did the edge of a computer screen a few yards away on the desk. Perhaps that’s just something to be tolerated and close up won’t be so bad.

    Also the edges of letters of the snellen chart in the mirror were a little frayed

    But what was more disconcerting was that the outline of the optometrist was frayed and not sharp. That just seems not right to me.

  398. Jon Severs says:

    Does not sound right – sounds like you are getting ghosting and that – I think, in my experience – is a sign of a bad fit.


  399. Connie says:

    Joe, I agree with others who say it sounds as though your lenses aren’t quite the right fit just yet. If you’ve had only the one fitting appointment, I would suggest asking the doctor about some followup tweaking. In my experience, and as others have said in their postings, it takes more than one go at it. If memory serves: at my first appt. I tried on a “dummy” set of sclerals to see whether I’d find them comfortable and so the doc could get the correct strength, diameter and vault for my own specific set of lenses. Then came the appt to try those lenses, which was followed by two more appts to get the fit just right. So, I had a total of four appointments. – You also said the doctor told you your lenses “are the same for both eyes.” Do you mean the same exact strength, diameter, vault, etc? Everyone’s eyes are different, but in my case my left eye needs a stronger prescription than my right, so I definitely know if I’ve put my lenses in the wrong eyes. Hope this helps.

  400. Joe says:

    Thanks Jon

    Hi Connie

    I had an appt to try some dummy lenses a few weeks ago so guess this is the second appt, but the first to try my bespoke lenses. I’m going back tomorrow however they said that’s to practice insertion and removal – they said the fit for my eyes is perfect.

    When you talk about perfecting the fitting, do you mean from a comfort point of view? Or visual quality wise?
    Comfort wise I have no issues but I could see quite a bit of residual blurring which as I say, surely could not be right? I would have thought that would need tweaking to improve the vision as opposed for comfort.

    Re the same lenses, they didn’t really explain in detail. I think they meant the same diameter and vault, all the measurements basically are identical. Seems strange given my left eye is stronger than my right.

    Sorry for all these messages guys, just feeling pretty deflated to be told that’s it after my first appt for my bespoke lenses.

  401. Wanda says:

    Joe, I had some issues with fit on my lenses, not with comfort though. They were comfortable from Day 1. They needed tweaking only slightly for vision, but the fit was a bit sloppy and that led to clouding issues for me. So he tweaked the ‘vault’ of the lenses and it mitigated most of the clouding issue, as well as slightly improving the clarity.

    I have very bad astigmatism, and I was able to achieve 20/20 vision with scleral lenses.

    I was interested when I read that both lenses were exactly the same. For me, the vision in my left eye is much worse than the vision in the right eye. Also, my eyes are not shaped the same, thus the vault of the lenses is different for each lens. I would be inclined to seek a second opinion if he will not consider adjusting the lens. At bare minimum, I wold be asking for some answers in writing as to the reasons he sees that your experience should be so different from others who wear sclerals. He should be able to relate to what he sees your condition that leads him to his position/opinion.

  402. Joe says:

    That’s amazing Wanda that you have achieved 20/20 vision.

    I went back again today to ask some more questions about this. They said because my KC was very advanced, it’s to some extent a case of damage limitation in restoring the best level of vision. Also I have pretty bad astigmatism.

    They did say this is something to work on and that it takes the brain some time adjusting to the ‘new’ vision. To be fair, fundamentally vision is much better, things seem a lot crisper and clearer. It’s mainly just on writing (particularly on screens) where there is residual astigmatism. I’m going back there in a few weeks to assess how I’m doing so maybe this is something to work on.

    I did actually call another optometrist to chat it over (very) briefly, he said that the optometrist I’m working with is very competent. Perhaps I was expecting an instant fix at the outset.

    On a brighter note, I took the lenses out a little while ago and the comfort was fine. Also it seems that they temporarily reshape the eye such that the better level of uncorrected vision remains afterwards for a little while. A bonus I guess.

  403. Wanda says:

    You are right about the sclerals ‘re-shaping’ the eye, at least temporarily. While I do not like it that I have a bot of trouble with my glasses for the first couple of hours after I remove my lenses, I do like the verdict that I got today when I went to see the doctor. He said that my eyes have stabilized. Before, there was always noticable change from one appointment to the next.But the shape of the front of my eye and the astigmatism is the same now as it was last may. I was grateful for that news.

    I expect your doctor may be right that the eye will adjust with time. Also, whether it helps you to feel better about it or not, I do still wear reading glasses for handwork (my passion) and for the computer. But even the reading glasses are a consoderably lower power than before. Give it some time. I think you will be happy you switched to sclerals.

  404. Joe says:

    Thanks Wanda

    I think it’s maybe something to work on, possibly with the aid of glasses. My eyes had got really bad but I’m happy that the sclerals have largely eliminated the blurriness and there is now very little ghosting and double vision.

    The comfort is excellent so far. So I certainly am happy I have got sclerals.

  405. Ladies, I was hoping you could give me some advice. I don’t wear makeup very often since I’m usually always at home, but I’ve got some events coming up (mainly my brother’s wedding) where I’ll need to wear some. My problem is, I’ve tried two types of liquid foundation multiple times, one cheap and one expensive and both caused spotting and bad fogginess on my lenses. I thought at first it was my eye makeup, but I had the same results when I used only foundation with no other makeup. I’ve thought of switching to powder but I don’t want to buy it only to have the same problem. What kind/brand of makeup do you use and do you ever have this issue? I can’t afford to keep buying some from every brand just to try, and I don’t want to have to watch my brother get married through foggy lenses. I also don’t want to turn up without makeup to such an important event (because I really need to cover up some stuff). Help!!

    Also, Joe I’m so glad to hear the sclerals are comfortable. Great news!

  406. Sara says:

    Hi Savannah, I’ve realised that I have to be very careful using any makeup, eye or otherwise, like you have as well. What I can tolerate is makeup that is absorbed into the skin, no powder. I can manage concealer and lotions, eye pencils and mascara, but not too much. It’s been trial and error! If I use too much I usually pay for it the next day, as well as having additionally funny vision during the time I’m wearing it! Good luck with your experimentation!

  407. Arnie MKE says:

    Hello All,

    Glad I found this blog. I thought I was the only one on this earth who saw ghosting and halos during the night. I was very depressed but the blog adds motivation.

    I have had KC for about a few years and interestingly my eye doctor did not even know if such a thing exists ( this is way back).

    Can anyone suggest me a good doctor for scleral fitting in the Milwaukee or Chicago area?

    Also has anyone observed the eyes becoming weaker over a period of time due to continuous use of scleral lens?

    @chemprachi. Since I will be traveling to India can you please also send me the details of the eye doctor you visited in India for CXL? I would want to ensure I get opinions before anyone thinks about touching my eye. 🙂

    Any help is much appreciated.



    4/18/16 Crosslinking for keratoconus has been FDA approved in the United States.

    Where will you be in India? I know several excellent cornea specialist there. But, it’s probably best to have it done close to where you live. I can get you names in Chicago for CXL.
    Scleral fitters I recommend:
    S. Barry Eiden, OD, FAAO
    Casey Hogan, OD, FAAO
    Renee Reeder, OD, FAAO, FSLS

    They will all speak &/or attend my International Congress of Scleral Contacts in July.

  409. Arnie MKE says:

    Thanks Dr. Nathan @drnathanschramm for your recommendations and prompt reply. I will try to schedule an appointment with them. I have vision insurance so I will not hesitate to visit a doctor here.

    I will be in New Delhi.

    Any caution/nutrition you recommend for the eyes until I get to a fix.



  410. Salim says:


  411. Salim says:

    I have been diagnosed with KC FOR OVER 30 yrs now I’m 48 yrs old tried evry contact lens possible apart from sclerals I’m at an advanced stage at moment tolerating Kerasoft lens but struggling in the left eye my optometrist in Preston lances are now trying the scleral lens it’s been 2 months with them and gone back 2 times to alter them as they are creating a band round my left eye after wearing them has anyone experienced similar thing and oh yes I’m also struggling to take it out manually I end up using a plunger at the end

  412. Savannah says:

    Ok, so I’m having a brand new problem. It’s only happened a few times, but today it keeps happening and it’s driving me batty. I wore my lenses most of the day with no problem. Afternoon, my left started fogging up. Thought no big deal, I can just rinse it off and that’ll fix the problem (usually it does). This time the fogginess seems to be actually in/on my eyeball and not my lens. I take the lens out but everything is still foggy- not just blurred, but fogged. I left the lens out for a while, maybe half an hour to an hour, and my vision went back to normal. I put my lens back in and not 15 minutes later I had the same issue. I can barely function without the lens but the fogginess is so bad I might as well not have it in, and I can’t figure out what’s causing this. I have an appointment next week so I’ll bring it up to my doctor then but I want to know if anyone else has experienced this.

  413. Savanna,
    You could be experiencing corneal edema. This can happen from excess clearance, inadequate clearance, a tight lens, wrong solution, to name a few causes. Follow up with your fitter soon. They may need to check your endo cell count and pachymetry.
    Dr. Schramm, OD, FSLS

  414. Jon Severs says:

    Sounds like protein build up to me – tried a protein remover on the lenses? I tend to try and do this once a week. Immediate day after they can be clearer but a little uncomfortable then from then on no scum build up or fogging.

  415. Siobhan says:

    Can anyone recommend a barrel storage case for my mini scleral lenses that I can buy in the UK? I use oxysept and the standard size barrel is too small. Thanks brilliant site by the way.

  416. Jon Severs says:

    I bought a tower of travel ‘make up’ cases from Boots for mine!

  417. Lorietta, Malta says:

    Hi all… It’s been some time since I had a query although I go through this website from time to time. Doing fine with scleral, it made a difference in my quality of life.
    Someone from the UK please…. What saline solution do you use to fill in the scleral before inserting? I used to use 5ml mini doses (vials) which were excellent, but they are out of stock at the moment and was wondering with what I could replace them!! I asked for someone from the UK because it would be easier for me to buy. Thank you.

  418. siobhan says:

    Hi. I was recommended Ocupure Lens Plus by my optician because it is preservative-free. It comes in large green bottles and I’m very happy with it. I hope you can find it.

  419. Jon Severs says:

    I use this one – Moorfields recommend it

  420. Hector says:

    I say hi to ALL and thank you for your posts, it’s wonderful to have you there. I’d found this site more than a year ago when looking for alternatives to the very expensive i-drops to fill the cup of my recent sclerals. I live in Montreal, Canada so Purilens is not an option as it’s not delivered outside US. When I asked Dr. Brazeau, my optometrist and eminence KC expert, about Lens Plus, he told me that i could give it a try but stop it from the moment I experienced a burning sensation as it’s not indicated to be Preservative Free.
    So, I’ve been using it ever since to rinse the lenses and to insert my left one as that eye is less sensible, and keep on using idrops for my right one as is more jelly and comfortable.
    Well, that said although I love my sclerals experience in general, I feel I have not taken the best results out of them yet due to foggines, it’s an almost constant issue in both eyes, together with redness (though for this less on the r.e.).
    I’ve just received a new and refitted pair last week which seemed to go well the first day but then again fog and red eyes symptoms. Although I have my next app next wk, there are some questions for you,
    -do you experiment that fog appears less when you stop blinking your eyes, though that’s not a solution o.c.?
    -are you sure that Lens Plus are preservative free saline?
    -why a saline like Bausch and Lomb Sensitive Eyes Saline is not recommended for filling? I just begun using it and I don’t see…anything, lol, just kidding. I don’t remark any issue on the discomfort side of this.

    Thank you again and just tell you that I’ve taken notes about the products and procedures exposed above to give them a try.

  421. Wanda says:

    Hi Hector. I fill my lenses with 2 or 3 drops of Refresh Ultra drops. it comes in an opaque green bottle, 15 ml. Don’t confuse it with Refresh Tears, which comes in the same color bottle.A 15 ml bottle will last me about 1 month. I live in Alberta, so I am thinking you should also be able to find this product in Quebec. Also, when mine do cloud, I remove them and clean them with a couple drops of Optimum Extra Strength Cleaner. I hold the lens with my thumb and 3rd finger and rub both sides. Then I rinse very, very well with saline.

    As for filling with saline, I will get clouding within minutes if I fill with saline, preservative free or not.

    My doctor said to try preservative free saline, but I saw no difference. At his office they us Bausch and Lomb saline for filling. But if you gave sensitive eyes and experience redness, then you probably should stick to preservative free.

    Also, do you clean them with Optimum ESC at night, rinse with saline, and then soak in Clear Care for 6 hours. Maybe you are not leaving them in the Clear Care long enough? That could cause redness, too.

  422. Hector says:

    Hi Wanda, yesterday I read all the posts from the begining and took notes of your recommendations and experiences, thx for repeating them again and again!
    My routine goes like this:
    -wk days rinsing and cleaning only with Lens Plus till now and just bought B&L sens. eyes. Cleaning here with peroxide may not be efficient as I don’t sleep 6 hs to let the lenses soaking enough. But I do it anyway once or twice.
    -wk ends: (3 nights) take them out, Boston Advance for cleaning, water for heavy rinsing and saline to finish it, soaking on Boston Simplus all night, then rinse them with desmineralized treated water (it was my suggestion and accepted by my optometrist), again finish rinsing with saline.
    -insert filling with saline most of the time on left eye and idrops on the right (more sensitive eye).
    So, comparing with your approach I’ll be doing some changes in order to detect what is causing the cloudy surface on my lenses.
    It may be the products, the fitting, or the lack of enough resting for my eyes during wk days.
    I’ll see and let you all know!
    Last, I understand you don’t fill the lenses completely, just 2 or 3 drops of refresh before inserting?

  423. Maria says:

    Thx for sharing your experience. Let me ask u a question: did you face any problems with foggy vision? If so, how did u solve it?
    I appreciate it.

  424. Jon Severs says:

    Only when my lenses were the wrong fit or I wear them too long!

  425. Kevin A Sullivan says:

    I am 65 yrs old male, KC diagnosed @ 17
    KC both eyes, rgp lenses for years, thermal kerataplasty right eye @ 21 (no longer done)
    penetrating kerataplasty right eye @ 35
    RGP lenses since
    RGP small lens left eye, Scleral lens right eye last 4 years,
    best vision every, best long term comfort,
    When Scleral lens fogs just remove clean, fresh saline and put back in.

    Did karate & scuba dived with RGP lenses when younger.
    Don’t let KC stop your life.

  426. Wanda says:

    Maria, please do a search for previous posts by me. I do have issues with clouding, and I have heard statistics anywhere from 1 in 4 through 1 in 10, as being users who experience chronic clouding issues. As someone else mentioned fit is often an issue when there is clouding.

    My doctor changed the vault of my lenses as much as was safe to do. We also added fenestrations to the lenses. I have tried multiple solutions and finally settled on Refresh Ultra for filling the lenses. I use approximately 2-3 drops in each lens. The bottles are small and expensive, but a bottle will last me about a month.

    Some days, I have to remove the lenses and clean them several times and other days, not at all. It is inconvenient to have to clean them in public washrooms, but I have learned to do it with good hygienic practices. I carry a small bag with saline, ESC Cleanser, the Refresh Ultra, my plunger and finger cup and a small mirror. I also always have hand wipes and a couple of paper towels or Kleenex with me. These will be in my handbag or at my desk at work, so that it is not difficult to keep my vision clear.

    I wore custom soft lenses until I reached the limit of what they could do. I then tried regular RPG lenses, but could not tolerate them. They were so painful to wear. Then I was referred to a doctor who fits scleral lenses. My life changed. The level of accuity with scleral lenses is 20/20.

    My advice is to persevere. Ask you doctor to make adjustments in fit. Look into having fenestrations added. Just keep trying. It is so much worth it.

  427. María says:

    Really appreciate it your responses. I won’t give up definitely. I will continue cleaning several times during the day. I take with me a small bag as well with all I need to clean them.
    I will try several drops of systane in saline solution because what I did I tried full systane solution or others like celluvisc or optive but probably I need to try the combination of saline solution and Drops. And it is true that some days are great because I don’t suffer foggy vision. However even with this minor issue I feel better than ever with the sclera contact lenses.
    I feel great to find this group because you really understand what is going on.
    Thanks a lot!

  428. Savannah says:

    I’ve been wearing sclerals for well over a year now and I do have issues with clouding. It’s horrible some days, and some days I can wear them for hours with no problems. It seems to be much worse during allergy season, so I believe it’s because my eyes become so irritated they often produce discharge that gets on the outside of my lens and the inside, clouding the solution. I use Alaway eye drops and take allergy medicine, but neither are very effective. (My eye dr. assures me my scerals are fit as perfectly as is possible, so that shouldn’t be the problem here)

    I’ve also just sort of adjusted to the cloudiness. When I was first wearing my lenses and they would get just a little cloudy, it would drive me crazy. So distracting and annoying, I couldn’t stand it. Now I barely notice, unless they become so cloudy that they’re messing up my ability to see. I guess it’s just something you get used to after a while.

    Wishing you all the best!

    P.S. This board was SO Helpful when I was first starting out with my sclerals. I’m so glad to see its still helping others too!

  429. DryEyes111 says:

    Does scleral lenses cause high Intra Ocular pressure ?

  430. Wanda says:

    This is really a question that your doctor could answer best. But I have been told that it does not raise the pressure substantially when worn properly.

  431. I just want to confirm what is the best way to save from foggy vision.

  432. I’ve been wanting to post this for a while. After years of dealing with irritating scareal lens, I’ve found the best way to reduce itchy eyes is the following:

    1) Every morning, wash the plastic cups used to insert and take out the scareal lens.
    2) Every morning, wash whatever you hold the plastic cups in. Just cleaning these every day improved lens comfort.
    3) Buy Progent lens care. Ask your doctor about it, it’s easier if he/she explains what it is. Progent has to be bought through your doctor, it’s not for sale to regular customers.
    4) Remove contact every six or seven hours and re-clean.

    It took me years of wearing scareal lens before I realized how important steps 1 and 2 were. The plastic cups become contaminated if not cleaned daily, and that contamination affects your lens even if you soak them every night.

    However, Progent is awesome, and should be used once every month of so. The reason why it’s not sold directly to customers is that it’s basically bleach. Again, consult your doctor first.

  433. FYI Recent clinical studies suggest that there is an increase of 5-7 mmHg in intra-ocular pressure (IOP) in eyes with Scleral Lenses.
    It is suggested that physicians should be checking IOP with the lens still in the eye –
    Reference Article from Contact Lens Spectrum:

  434. Todd says:

    An updated lens care routine:

    After nine years of irritation from wearing a scaleral lens in my right eye, as well as a two year hydrops episode, I have finally found a lens care routine that works wonderfully. I would like to share it with you all now.

    One note. Unfortuantely, this will not be cheap. However, my comfort level wearing the scaleral lens in my right eye has been so good after so many years that I can’t help but suggest it to anyone who wants to try several of these techniques, or all of them.

    First, and what I think is probably most helpful, is to switch the scaleral lens in your right eye throughout the day. Currently, I have two scaleral lens for my right eye, and I also use a gas rigid permeable that I put in in the morning. I can’t wear this one outside as it’s not stable (not condition is really advanced), but at home it’s fine.

    I wear each scaleral lens about six hours a day. This really helps tremendously, as this leads each contact lens soaking in solution for 18 hours every day.

    Also, I didn’t do this for many years, but I now wash the plunger that I use to take out the lens twice a day. I use simple dish cleaner. I also wash the cafe they plungers are in.

    I use OPTIMUM by Lobob, extra strength cleaner, before I put in my contacts.

    For daily eye drops, I use Zaditor twice a day, or Olopatadine HCL 0.2% twice a day.

    Every two to three weeks, I soak all of my lens in Progent. Ask your doctor about this, it’s hard to buy except through a medical licensed practitioner. But it’s fantastic!

    And that’s it. As I said, this is not cheap by any means. But I’ve been doing this routine for the past six months, and after nine years of an irritated right eye, I can honestly say that most of the time, I no longer notice the scaleral lens in my eye when I wear it. This routine has truly worked wonders.

  435. Yi Z says:

    Hi I just recently found your website and thanks for all the information of scleral lenses! I was wondering what are the diameter of your lenses? They look really big. Due to ocular surface disease, I will probably have to try the 23mm – 24mm scleral lens. Not sure if they are comfortable in eyes.

  436. Matt Devlin says:

    Yi Z – I am not sure the size of mine, but they are quite large. I think around the diameter of a nickel? The edges are a couple millimeters outside of my iris when in the eye. When I was first shown these lenses I could not imagine how I was possibly going to get them in my eye, and how they could possibly be comfortable. I have now been wearing them for a few years and they are the most comfortable lenses I have ever worn. I spent years in RGP lenses that were awful, i knew they were there every minute of the day. My scleral lenses I honetly do not feel.

    It is important to work with your lens fitter and make sure they get it right though. It took some time and patience but it was so worth it. I wear these lenses every day for up to 16-18 hours some days and they are just fantastic.

    Good luck!

  437. Maria says:

    YES these lenses are the most comfortable ones. The only thing you have to take care of is not to forget to remove them before go to sleep, because you feel like have nothing in your eyes.

  438. Tracy says:

    I have scleral lenses in both my eyes. My left eye lens always has a film on the outside when I remove it from the solution. I clean it off and insert it in my eye. Within a few minutes, there’s a film back on the outside of it at the center. I clean it off again, reinsert…same thing in a few minutes. How can I fix this??…thanks.

  439. Matt Devlin says:

    Wow – the board has come back to life today 🙂

    @Tracy – do you have allergies? Have you tried different solutions? How long have you been wearing sclerals? I had to do some experimentation…. I have found issues with different lens materials, coatings and solutions. Have you had surgery in either of your eyes? I oddly enough have different allergy symptoms now in each eye since i had transplant in one eye!

    i do have periodic issues like you describe but it ends to be a day here or there, particularly during times when I am having allergy issues.

    Things to consider/try:
    – different solutions I have had the best luck with unisol (no longer made) so I now use Purilens which you can buy on Amazon. (preservative free is the key)
    – cleanliness of lenses – Lobob Optimum is good, I also like Sereine
    – I have played around with different combinations also…. I usually soak my lenses overnight in bio true solution, then clean in the morning with Sereine or Optimum, then i will rinse with some Bio tru to coat the lens with something a little viscous. Then I fill lens with Purilens and insert. This system gives me all day wear most days, some days I will rewash the lenses after many hours of wear if they seem hazy.

    Other things I have done that have helped at times:
    – a drop of systane dry eye in each lens before filling with purilens
    – clear care perozide cleaner (make sure you give it the full 6 hours) periodically
    – a good dose of saline right into the eye before inserting lenses.
    – Systane at bedtime
    – staying hyrdrated – i have a theory that the fogginess / haze is due to a persons tear chemistry. Dehydration may or not impact this, i really dont know the science behind it, but I know if I get dehydrated my eyes and contact lenses are the first to complain.

    Things that have caused me problems:
    – allergy eye drops when wearing lenses – they dry my eyes out
    – using different solutions than I am used to
    – not waking up enough before I put my lenses. Being awake and washing my face at least / if not a nice hot shower is a must do first thing before my lenses go in. If I hop out of bed and put my lenses in crusty morning eyes there are always problems.

    Something to ask your dr about…. If you have really dry eyes they can put tear duct plugs in to help you maintain tear volume. I have one on one eye – i am not sure if it really helps or not, but something to consider.

    If i wasnt clear on anything please let me know, I slapped this together pretty quickly before leaving the office.

    Hope you find this helpful.

  440. Jon Severs says:

    Interesting what you say about allergies. I have been meaning to update the site for a while to talk about some of the weird stuff I have as well as keratoconus to see if anyone else has them:

    Loads of allergies is the first thing – hayfever primarily, but allergies to dust, and also, weirdly, new clothes, I have to wash everything first before wearing. I think it is a fixing they use on new clothes. If I don’t wash it I get burn marks.

    The other thing is – according to my dad who is a doctor – connective tissue issues. So hernia, tear muscles easy, have a weird thing on my hand on a ligament due to rowing machine.

    Have to say none of this means I don’t do anything I want to do, but interesting if any of it linked to keratoconus!

    On sclerals, mine are about 2.5cm-3cm. I wear them 15 hours easy and no probs!

    Glad to see the board being used and the website being used. My eyes have been pretty stable since I set this up. No op yet.

  441. Adnan Zafar says:

    WOW Good to see the board active again.
    Lately i am also dealing with allergies. But not an issue as such. Wearing my sclerals for almost 5 years now. 15 to 14 hours a day.
    @ Matt Devlin, thanks for the detailed explanation.
    I will try few things out of your box😊. One thing i have to ask, how’s your post transplant experience.
    My doctor is suggesting me for a transplant.

  442. Tracy says:

    I have had surgery. I had crosslinking on both eyes back in June. The cloudliness is a film on the actual contact. Only the left one though. and whatever it is, I can clean it off, but within a few minutes, it’s right back on there. It’s on the outside of the contact. It’s on there when I take it out of the cleaning solution each morning. I can wear the contacts about 10 hours before they become uncomfortable. I can see so well with them that I tolerate them as long as I possibly can. I just wish I could figure out this film issue.

  443. Matt Devlin says:

    @Adnan – my post transplant experience has been very positive. it has been almost 15 years at this point and I actually am able to see very well with just a soft contact lens on that eye (I wear scleral on my other eye which still has KC)

    My vision is still very good in post op eye with the soft lens (even without a lens I can see well enough to use my cell phone easily enough) also I am able to wear glasses to get decent enough correction to read, work at pc, watch tv, etc…. This is fantastic for those days when your lenses just refuse to be comfortable.

    That said, I know that not all procedures go as well as mine did. My cornea is still very clear and even though I am 15 years in shows no signs of rejection. I am hopeful that I am one of the lucky ones that gets far more years than expected out of the procedure.

    I am hopeful that I will not need the procedure in my other eye, but if it comes to that I would do it with little hesitation.

    Between the scleral lenses for my KC eye and operation in my other eye I see better now in my 40s than I did in my 20s

  444. Adnan Zafar says:

    @Matt good to know about your experiences.
    You really are lucky …
    Just want to ask.
    What is the breakeven point after which one should definitely go for the keratoplasty?
    I have consulted 2-3 doctors every one is suggesting me for a surgery. But at the end they say choice is all mine.
    Vision i think i am having 60%-70% with sclerals in both eyes.
    According to your experience keratoplasty improves the vision.

  445. Matt D says:

    @Adnan – I am hesitant to offer my opinion on this as I am sure there are differences person to person. I worked with only 2 doctors and trusted their reccomendation and it has been a very positive experience overall for me. In my un-operated eye, I am at the same point where my dr’s are saying I can elect to have the surgery at this point if I want. I have not pursued that however because I am getting 20-30 vision out of that eye with Sclerals.
    For me it was not a difficult decision as I had reached a point where I was unable to continue to where my little RGP lenses without extreme discomfort and I felt that the potential reward outwiehged the risk. Sorry that this is not a real answer to your question… but I think it is an answer that the patient/dr have to arrive at together and there may not be a set tippping point. Good luck! Please let me know if I can provide any additional information.

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